Author |
Topic: I almost forgot how much fun this isn't (Read 246 times) |
|
Frank
Guest
|
 |
I almost forgot how much fun this isn't
« on: Dec 5th, 2002, 8:17pm » |
 Quote  Modify
 Remove
|
I have been mostly PF since the doctor gave me prenisone in October 2000... a half dozen attacks since then, but not really bad. Until the past two weeks. Had two last night (Kip 7 &  , and one the night before, and one a couple of nights before that, and again the night before.... and the night before that. Damn... I guess they're back for a while!
I went to see the doc today and got some Maxalt MLT (only four which sucks but they were free) and a Rx for O2. I'll pick that up tomorrow.
|
| « Last Edit: Dec 5th, 2002, 8:19pm by Frank » |
 IP Logged |
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender: 
Posts: 1
|
|
Re: I almost forgot how much fun this isn't
« Reply #1 on: Dec 5th, 2002, 8:32pm » |
Quote Modify
|
Shit, Frank. I'm sorry to hear they're back. Going to get another scrip for the Prednisone too?
|
|
IP Logged |
|
|
|
domm
New Board Old Timer
I love YaBB 1G - SP1!
Gender:
Posts: 474
|
|
Re: I almost forgot how much fun this isn't
« Reply #2 on: Dec 5th, 2002, 8:38pm » |
Quote Modify
|
Frank - sorry to hear they're back. Have you tried Verapamil as a prevent?
Hang in
|
|
IP Logged |
|
|
|
Frank
Guest
|
|
Re: I almost forgot how much fun this isn't
« Reply #3 on: Dec 5th, 2002, 8:40pm » |
Quote Modify
Remove
|
Yep... been on 480mg verapamil daily for four years. It isn't enough at this time.
|
|
IP Logged |
|
|
|
Frank
Guest
|
|
Re: I almost forgot how much fun this isn't
« Reply #4 on: Dec 5th, 2002, 9:00pm » |
Quote Modify
Remove
|
on Dec 5th, 2002, 8:32pm, Ted wrote:| Shit, Frank. I'm sorry to hear they're back. Going to get another scrip for the Prednisone too? |
|
Not sure prednisone would help this close to the start of a cycle? Never tried it.
The first time I tried prednisone, it did not end the cycle. I quit takinhg it because after several days I felt like all my bones were broken. Major leg, ankle, wrist, elbow, finger, knee, back, neck, etc pain. I thought it was the prednisone... but wasn't sure.
Last time (which apparently broke the cycle) I went through the same major body aches and pains after a few days. I assumed it was caused by the prednisone and quit taking it before I was supposed to. But the clusters have been gone for two years...
|
|
IP Logged |
|
|
|
KingOfPain
New Board Hall of Famer
Disgusted!
Gender:
Posts: 1552
|
|
Re: I almost forgot how much fun this isn't
« Reply #5 on: Dec 5th, 2002, 11:33pm » |
Quote Modify
|
I see you got a script for oxygen. If you have never tried it, get ready for some relief. You should fill the script asap.
I tried prednisone, couldn't deal with the side effects.
Good luck, KingOfPain.
|
|
IP Logged |
Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
|
|
|
Frank
Guest
|
|
Re: I almost forgot how much fun this isn't
« Reply #6 on: Dec 6th, 2002, 3:40pm » |
Quote Modify
Remove
|
on Dec 5th, 2002, 11:33pm, KingOfPain wrote: I see you got a script for oxygen. If you have never tried it, get ready for some relief. You should fill the script asap.
I tried prednisone, couldn't deal with the side effects.
Good luck, KingOfPain. |
|
Well I just got four tanks delivered... paid for by my insurance company. Now why did I have to pay for it during the last cycle, and the cycle before that ???
(Oh yeah... I changed insurance companies!)
|
|
IP Logged |
|
|
|
domm
New Board Old Timer
I love YaBB 1G - SP1!
Gender:
Posts: 474
|
|
Re: I almost forgot how much fun this isn't
« Reply #7 on: Dec 6th, 2002, 3:55pm » |
Quote Modify
|
Frank - hope the O2 does the trick. I've read many say they had to use Lithium with the vera. I haven't had to, but I'm out of cycle now and just doing the verap maintenance thing.
Hope things go well for you man
hang in
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss