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Topic: Scary Stuff!!! (Read 331 times) |
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SoSoViolet
New Board Newbie
Pure Purple Power
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Scary Stuff!!!
« on: Dec 5th, 2002, 3:58pm » |
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Hi...
I'm SoSo Violet, &I'm really new to this game.
I'm an English lass who has been suffering CH for six years now, although I was only diagnosed a year and a half ago.
I turn 32 on the 7th of this month and as an early birthday present to myself, I've got myself 'online' (a major achievement for me as I am a true technophobe!!)
I have visited this site many times before on friends computers and it has made me laugh and cry. Doing them both at once made it difficult to breathe but the whole experience was worth it because I had finally found what I had been searching for for years... Other people who can understand and relate to the pain that I have to live with. I felt so alone until I found you all...
But it's taken me until now to pluck up the courage to try and make contact...
I've tried the 'live chat' a couple of times but there was no-one to talk to, so now I'm sat typing this, hoping that somebody, (ANYBODY!!) will reply so that I can have the best birthday present I could wish for... Allies against the demons!!!
Here's hoping...
SoSo
ps, Absolutely love the "Kip Scale" it's helped me discuss this hell with my family &friends in a humorous way that I couldn't before.
pps THANKS!!! 
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Dancin with this pain in my brain, and once again I'm going insane...
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suzy617
CH.com Alumnus
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Love is friendship set on fire
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Re: Scary Stuff!!!
« Reply #1 on: Dec 5th, 2002, 4:07pm » |
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Happy birthday SoSo and welcome aboard! They dont really use the chat here, just post. But I'm sure someone else can direct you to the chat site they use. Have you looked around at all the info in here? Lots of tips on what meds help and what doesnt. Hope you found yourself a good Dr. and he will help you out.
Good Luck,
suzy
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When God measures men, He puts the tape around the heart, not the head.
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eyes_afire
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Re: Scary Stuff!!!
« Reply #2 on: Dec 5th, 2002, 4:08pm » |
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Hello. As you already probably know, this place has tons of info... gotta love it. Most people don't use the chat located on this site, however a group of us often chat at around 10:30pm or 11:00pm EST (USA) at this site:
http://www.headachesupportgroups.com
I know that's probably not a good time for you over there in UK. But if you check in there periodically, you may be able to find some people to chat with at other times during the day.
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Still around... in a brand new world now...
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Scary Stuff!!!
« Reply #3 on: Dec 5th, 2002, 4:08pm » |
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Happy Birthday and welcome to the family. Sorry to read you needed to search us out. Glad you found us.
Thanks for stepping out from behind the curtain.
Again Happy BDay and welcome.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
   
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Re: Scary Stuff!!!
« Reply #4 on: Dec 5th, 2002, 4:10pm » |
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Welcome to the board! Sorry that they beast is slamming a rabid, demented, psychotic porcupine on steroids into your cranium. Good luck!
PFDAN............................... Drk^Angel
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"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
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Virginia
New Board Hall of Famer
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Re: Scary Stuff!!!
« Reply #5 on: Dec 5th, 2002, 4:10pm » |
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Hi Violet,
Welcome to the board! Sorry to hear that you have been struggling with this beast that we all hate so much! But you've come to the right place. The people on this board are wonderful and a wealth of information.
You will get more info about clusters here than you will ever get from a doctor.
take care,
Virginia
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The Clusterhead formerly known as 9erfan.
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domm
New Board Old Timer
I love YaBB 1G - SP1!
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Re: Scary Stuff!!!
« Reply #6 on: Dec 5th, 2002, 4:32pm » |
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Violet - welcome to the board. Hope you use every bit of info available here and on the OUCH wesite (buttons on the left) to fight the beast that we all have in common.
Read, Read, and read some more. You'll know more about this than most doctors. Then you have to educate them!!
good luck and let us know how things are going for you
domm
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: Scary Stuff!!!
« Reply #7 on: Dec 5th, 2002, 4:48pm » |
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welcome to the board soso, glad you found us, happy b-day & good luck to ya! .........2late
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Jimi
CH.com Alumnus
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Who loves ya baby!
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Re: Scary Stuff!!!
« Reply #8 on: Dec 5th, 2002, 4:57pm » |
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Welcome to the dark side. Sorry you had to join. I have a friend who lives in your neck of the woods. She doesn't post much anymore but i know she reads the board. Hey Cher, say hello to your neighbor. *s*
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I am convinced that life is 10% what happens to me and 90% how I react to it.
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Jabeen
New Board Veteran
What doesn't kill you, makes you stronger.
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Re: Scary Stuff!!!
« Reply #9 on: Dec 5th, 2002, 5:15pm » |
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Just another "hello" and welcome. I have not used the headachesupport chat but it seems popular among the group. I may be in London in Feb. Are you near there?
Happy Birthday-
Jabeen
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OUCH member since 9/5/02
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Mark C
CH.com Alumnus
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Onward through the fog.
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Re: Scary Stuff!!!
« Reply #10 on: Dec 5th, 2002, 5:44pm » |
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Welcome SSV,
and Happy Birthday
Sorry you need us but glad you found us.
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Click The Flag
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SFChris
Guest
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Happy Birthday SSV. Also, welcome to the wonderful world that DJ created for us to help each other, fight each other , and laugh at, I mean with each other. 
Chris
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
Posts: 371
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Re: Scary Stuff!!!
« Reply #12 on: Dec 5th, 2002, 5:52pm » |
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Happy Birthday and welcome Violet, oh, Marc, she is a person, not a plant---I don't think she needs watering---thanks for the giggle ;D
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Scary Stuff!!!
« Reply #13 on: Dec 5th, 2002, 5:56pm » |
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Happy 'early' birthday to you !!!!!!
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Ann
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Annage
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Re: Scary Stuff!!!
« Reply #14 on: Dec 5th, 2002, 7:37pm » |
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Welcome tot he board SoSo. Sorry you had to find us. Happy Birthday to you as well. Hope it's a good one.
hugs
Ann
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Ree
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2008's my year to shine~SUN IS OUT!!!YAY
 
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Re: Scary Stuff!!!
« Reply #15 on: Dec 5th, 2002, 8:06pm » |
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 Hi So So Violet... I should do this in purpleok this is Tim and he usually sings the Happy Birthday song and this is how it goes... Happy Birthday to you... Happy Birthday to you...Happy Birthday dear So So Violet... and Welcome to CH.com Happy Birthday to you................ love Ree (a ch supporter if you need me ree16angel@aol.com)
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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Lori
New Board Hall of Famer
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Re: Scary Stuff!!!
« Reply #16 on: Dec 5th, 2002, 11:50pm » |
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Happy Birthday and welcome. Sorry you needed to find us..but glad you did since you also suffer with CH. Feel free to tell more about yourself and your HA's and what youve tried to prevent or abort when you have time.
Take care and PFDAN to you.
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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Cerberus
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Whomever said that two heads are better than one?
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Re: Scary Stuff!!!
« Reply #17 on: Dec 6th, 2002, 11:37am » |
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Happy Birthday SoSo Violet!
Sorry you had to enlist into the psychic army but you are welcome here. If you would like to chat live go here.
http://www.headachesupportgroups.com but you have to figure out the time differential between where you are and U.S.A. Eastern Standard time around 9 or 10 P.M. which I suspect is sometime during the day for you.
Looking forward to chatting live with you.
Cerebus
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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