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Topic: Bad day!!! (Read 233 times) |
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Stampertje
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For the first time in a long time my fighting spirit is starting to drop. And pretty fast too...
The lack of sleep is starting to kick in. I've been fighting now for 5 months and the last two have been the worst. I can't concentrate anymore and my temper is very bad. I'm feeling guilty for having this towards my girlfriend, because she has to put up with me. She says that it is the normal thing to do when you love someone. I know Í am blessed with her, but this only makes the guilt bigger.
I've tried verapamil, but that didn't work. Now I'm trying lithium on a really low dosage (200 mg/day), but this isn't working. I've called my neuro to ask him if he could up the dosage. He refused to do this, because he wanted to see me first. Now I have an appointment for Thursday next week. I know that this quik for some of you, but with this guy that's long.
And lithium is giving me a dry mouth and my intestines feel terrible.
Sorry for this unlogical story. This is a strange feeling to have. Normally I am a pretty positive guy, but I can't smile today.
This thing in my head really sucks!!! 
Thanks for listening to my crap.
PFDAN,
Stampertje
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Hound_Dogg
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Well, that's what this board is for. I wish I could give you some input on the Meds., but I haven't gone down the Lithium road. Was the Verapamil, immediate release? I know the immediate release usually helps clusterheads better then the extended release. What was the dosage you were on? Cause we need a high dosage, for it to help. Also keep your head up. Remember, it's the bad times that make us appreciate the good times....Good Luck!
Jim
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cher
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Re: Bad day!!!
« Reply #2 on: Nov 22nd, 2002, 7:05am » |
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hiya,
just read your post, sorry to see you can`t smile today, not even a little curl at the sides of your mouth? your feeling bad then.
we`ve all worn that T-shirt, just look forward to tomorrow being a better day hun, that`s all we can hope for.
I know what you mean about the doc appointments, it seems like forever till you get there, but you will, your determined enough to make it in the first place and want to go, your part way to feeling better.
just hold on to your tomorrows and make the best of today.
cher x
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cher x
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captdshea
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Re: Bad day!!!
« Reply #3 on: Nov 22nd, 2002, 7:13am » |
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Hi Stamperje- I can feel your pain, I'm A newbi here
and should not be posting about meds. Because I have never had to use them, only the Verapamil @ 480mg per
day. I've learn here custerheads are takeing the Verapamil and Lithium togeather.
Try to bone up on the medical information before seeing your doctor, And make demands.
Every three months I hit Amsterdam for A weekend
many I'll catch up with you sometime. Wishing you
well, PFDAN
David
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"Seek knowledge and truth"
"Respect divergent points of view"
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RevDeFord
New Board Old Timer
Pain is real if the neighbors know you have it!
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Re: Bad day!!!
« Reply #4 on: Nov 22nd, 2002, 7:21am » |
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Sorry to hear dude. Have you tried Oxygen? Get your doctor to prescribe oxygen for you and see if it gives you relief. There are instructions here on the board of how to do it. It by far is the best abortive.
I started my episode back up last night after 3 weeks off.....I have a serious shadow right now. When it comes down to it, I want my oxygen.
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I don' know why it hurts, but I pray it will stop.
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Stampertje
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Re: Bad day!!!
« Reply #5 on: Nov 22nd, 2002, 7:41am » |
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Thanks for your kind words.
I'm just tired and everything just sucks today. I can't really look forward, because the night comes first. And I am fucking scared of the night lately. He even comes in the day-time.
Jim: I tried both, but no result. My dosage was not real high, but according to my neuro I should have had some relief. So we started the lithium, because he didn't want to waste time. Yeah right, he won't even help today.
Cher: Thanks for the feel good words. I'll try to keep it in mind today.
David: Maybe you can give me an e-mail, when you come to Amsterdam.
Rev: Know how you're feeling right now, mine is been here all day (not ment as a pissing contest).
I have oxygen and Imitrex injections. Both work like a charme, but sometimes it's not possible to use them. My favorite is also oxygen.
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SommelierCH
New Board Hall of Famer
I’m awed by the amazing resiliency that we possess
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Re: Bad day!!!
« Reply #6 on: Nov 22nd, 2002, 8:11am » |
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Hang in there buddy,
I know the feeling of not having anyone to turn to, so bang away on the keyboard and let out your frustrations on our “Wailing Wall of Anger”.
You don’t mention any “abortives” you might be using, such as: Imitrex, Maxalt MLT, Zomig ZMT or oxygen. You really need to get an abortive. The Reverend and I are on the same page concerning oxygen, it's absolutely necessary!!! (and that’s kind of scary since I’m a diehard Harry S. Truman, Independence, Missourian,…… well, I’m in LaLa land now, but you know what I mean.)
What works for me is a triptan, Maxalt MLT 10mg. (fast acting, under the tongue dissolving tablet) combined with oxygen therapy. You can’t get many Maxalt tabs from insurance (6 per month max. for me) so you have to save those for the Big One and you can’t take more than 2 in any 24 hour period, so the oxygen is absolutely necessary for all the other times you feel the shadows creeping in. Go to the search button in the top right corner and type in “oxygen” and read up, the more knowledge you have the better you can communicate with the medical community. Be sure to read about and do a search for “triggers”, these are catalysts that can really set us off. My major ones are alcohol, bright light entering my right eye and some times flickering florescent lights. Avoiding triggers during your cycle can dramatically affect the intensity, duration and number of attacks.
I tried Zomig ZMT 5 mg. last night, (it also is a fast acting dissolving tab under the tongue) and it worked, with the oxygen, of course.
Wishing you PFDAN's, (hell, I guess even PFN's would be a blessing),
David J.
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Wine is a little like love. When the right one comes along, you know it!
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SommelierCH
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I’m awed by the amazing resiliency that we possess
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Re: Bad day!!!
« Reply #7 on: Nov 22nd, 2002, 8:17am » |
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Sorry, you posted about your abortives while I was trying to type (while my “cluster eye” was defocusing) but check out the Maxalt MLT or Zomig ZMT—they are more convenient than injections or lugging an O2 tank around.
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Wine is a little like love. When the right one comes along, you know it!
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Mr. Happy
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If I can do it, it ain't art.
   
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Re: Bad day!!!
« Reply #8 on: Nov 22nd, 2002, 8:28am » |
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Ahhhh, Stamp, I don't know how you, or anyone else here like you, does it. Month after month after month. Unrelenting. As an eposodic, most day's I don't even feel like I should be here.......listening to these long term stories.........how y'all do it and still keep wading back in.........there's no words of any type to comprehend/comfort the situation that I can offer.
The sleep deprivation has to be the real kicker of it all. It's bad enough living thru this hell.........if only one could get a night's rest, then wake up refreshed to enter the arena for another day of battle, maybe it'd be just a tad easier to keep the faith. Wouldn't it be great to walk into the kitchen, and remember why you went there? Or to complete three coherent sentences in a row. Or be able to look at a bed without shudders running down your spine.
Life's a shit sandwich, and every day's another bite.
Hang in as best you can. There's them what's appreciate you, know it or not!
Have a Prune Danish on me...............remember, your colon is still your friend.........
Best,
RJ
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May those who don't want any
Have memories of never getting any.
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Stampertje
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Re: Bad day!!!
« Reply #9 on: Nov 22nd, 2002, 9:17am » |
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Thanks you all.
I am logging out now. I'll be back on monday.
I'm already feeling sorry for my girl, because now she has to put up with al my crap.
Have a nice and painfree weekend everyone.
Stampertje
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