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Topic: Head Check (Read 788 times) |
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Mark C
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Onward through the fog.
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I have been pain free for about the last month now. This cycle may be over.
I was wondering how you all are feeling.........who's hurting right now and who ain't. Head check I guess.
I hope for positive results.......thanks all.
Mark
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ChristineL
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To quote James Brown................
"I feel good"
Chris L
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jonny
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Teeth pain?
5 Bulging discs pain?
Sciatica pain?
Heart pain?
Oooohh, head pain, doing pretty good in that relm for me.
Thanks for asking, Dude.
....................jonny
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suzy617
CH.com Alumnus
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Love is friendship set on fire
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Re: Head Check
« Reply #3 on: Nov 20th, 2002, 5:12pm » |
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Pain free for around 3 weeks now, awww life is good!
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When God measures men, He puts the tape around the heart, not the head.
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Jackie
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Go For It!!!
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Re: Head Check
« Reply #4 on: Nov 20th, 2002, 6:17pm » |
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Blake is getting the crap kicked out of him right now. This has been going on since August.  The strange thing is that it's mostly during the day.
I've managed to get him an appointment with a new neuro.....we'll see ??? He may not know anything more than we do but at least maybe I can get him to write some different scripts. I know one thing for sure....he's GOT to get off the prednisone....it's been way to long.
Jacks 
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eyes_afire
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Re: Head Check
« Reply #5 on: Nov 20th, 2002, 6:28pm » |
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Hi Mark. Glad to hear the good news. Hopefully you never get CH again.
As for me, my current cycle started in September 2001 (yup, it's been over a year  ). But, I think it is finally ending. Last CH was about 3 weeks ago, but I'm still getting shadows  ???.
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| « Last Edit: Nov 20th, 2002, 6:29pm by eyes_afire » |
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Still around... in a brand new world now...
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jonny
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Eyes,
Thank you for sticking around!!!!
..............................jonny
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captdshea
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Re: Head Check
« Reply #7 on: Nov 20th, 2002, 6:34pm » |
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Hey Mark,
PF FOR 9DAYS NOW! 
David
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"Seek knowledge and truth"
"Respect divergent points of view"
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SommelierCH
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I’m awed by the amazing resiliency that we possess
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Re: Head Check
« Reply #8 on: Nov 20th, 2002, 6:37pm » |
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My cycle is peaking (I hope). The Big One always 2 hours after going to sleep, a Kip 5 late afternoon every other day and Kip 2-3 shadows most of the rest of the time (which seem to be helped by alternating aspirin and ibuprofen, which I know is bullcrap).
Jonny,
Sorry to hear about what you’re going through, shit, when it rains it pours. Just wondering if you can do a shot of Jack Daniels once in a while to help out? Or is that just a death sentence? Take care King, I’m praying for you.
Pace,
David J.
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Wine is a little like love. When the right one comes along, you know it!
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eyes_afire
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Re: Head Check
« Reply #9 on: Nov 20th, 2002, 6:38pm » |
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No problem Jonny. You guys are a lifeline. Thanks for supporting, it means alot! There is no way I can leave this place, after experiencing the torment of CH. Cycle or no cycle, I'm here. This board has made a big difference in lives (Thanks DJ!), but there is much more work to be done.
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Still around... in a brand new world now...
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SFChris
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Been pain free for going on three months now, after an eight month cycle. Can I get a hell yeah? Hell yeah!!!
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catlind
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Taz taught me the cluster dance
 
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Re: Head Check
« Reply #11 on: Nov 20th, 2002, 6:48pm » |
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Well, I had been painfree since the first week of Octoberish, and just finished a short, weak battle with the beast 20 or so min. ago....Oxygen is my best friend, thank any and every deity or devil or whatever else you may or may not believe in for the O2!!!
And especially Jonny, for making it right to use, and teaching me how to use it properly so it works.
Beast wasn't supposed to show up again until T-giving, guess his invititation got lost in the mail and he decided to set his own date to come to dinner. Here's hoping it was just a breakthrough CH or something else, like a reaction to the norvasc or something. Puleeeeeeze let it be one of those things.
I can't and won't leave this board, it saved my life and there's a host of people here whom I love dearly as my own family 
Geez, Slammy where are you? I'm doing that rambling thing again....
Can never count on some brothers can ya  
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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jonny
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HELL YA, CHRIS!!!!!!!
Fuckin A, Bro
.........................jonny
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domm
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I love YaBB 1G - SP1!
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Re: Head Check
« Reply #13 on: Nov 20th, 2002, 7:03pm » |
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Been PF for right around two and a half months. Thank you DJ ! Thank you fine folks who recommended Verapamil and taught me how to use O2 properly and gave advise and coached and, counseled and, and.......
2 1/2 months !! - ;D ;D ;D
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Karla
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One of Many and Never Alone - Join OUCH
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Re: Head Check
« Reply #14 on: Nov 20th, 2002, 7:05pm » |
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I am day 2 into Methadone 10mg every 12 hours. On Sat. I up the dose to 20mg every 12 hours. I am week 2 into Botox and am still getting hit 8x a day at kip 10's.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Ann
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Annage
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Re: Head Check
« Reply #15 on: Nov 20th, 2002, 7:08pm » |
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Hell Yeah to you Chris!!!!
I've been doing shitty for a while now...sigh! Started taking lithium about 2 weeks ago. I'm still waiting for the miracle to happen. I hope it kicks in soon cause I'm going away right after christmas and I dont' want to have to deal with this shit on holiday!!! <grumble, grumble, grumble>
Glad to know so many of you are pain free!! That's wonderful..gives the rest of us some hope!
Johnny...man..you've got it rough. I'm sending you some vibes dude...hoping it'll help some.
Cat...it was a reaction to the meds...I'm sure of it!! STay positive!
hugs to all
Ann
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jonny
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If you get an e-mail from anyone named Corjito, delete it.....this is a friend of mine but this mail shuts my puter down.
Hes a clusterhead and may have a virus.
be on your toes folks.
...................................jonny
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
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Re: Head Check
« Reply #17 on: Nov 20th, 2002, 7:18pm » |
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Yes ... I've just done my 7th format in as many weeks from a backdoor worm and an IRC trojan. Have had several infected emails....the trojan is a smart virus, I found the files, went to norton to find out how to manually remove it, and when I went back the files had managed to rename and relocate, couldn't find the stuff that had been where it was and in the end had to submit to format.
Everyone keep their virus protection up to date!
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Ted
New Board Newbie
I love YaBB 1G - SP1!
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Re: Head Check
« Reply #18 on: Nov 20th, 2002, 7:36pm » |
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I always keep my virus protection up to date. But, uh, I don't think that's what Mark meant by a "head check."
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Edna
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Re: Head Check
« Reply #19 on: Nov 20th, 2002, 7:41pm » |
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Happy to say that as usual I have skipped my cycle time for THIS year.....found this place last year during cycle time..........and I KNOW I'll still be here next year when it comes again...........(would still be here even if the bastard skips me over for once)
For those not there yet......hang in with us and pf moments will come!!
AND CHRIS
HELL YEAH DUDE!!
What a wonderful post mark c.......gave me some new found news about what fellow buddies are pf at the moment.
Gee, I sure do love this place....thank you DJ
EDNA
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Marc
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Re: Head Check
« Reply #20 on: Nov 20th, 2002, 7:44pm » |
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Ted,
You're right, all of should keep our virus protection up - especially for those back door viruses.
Marc
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| « Last Edit: Nov 20th, 2002, 7:46pm by Marc » |
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
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Re: Head Check
« Reply #21 on: Nov 20th, 2002, 7:49pm » |
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Into month 6 of nightly attacks. Longest cycle ever but pain level manageable. Need to be careful not to overdo imitrex, bad things happen when I over-med (get 5-6 one after another). O2 doesn't work for me so I do the toilet seat rock, no kidding. ;D
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Azrael
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Sometimes... Being good just ain't worth it.
  
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Re: Head Check
« Reply #22 on: Nov 20th, 2002, 7:52pm » |
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The beast hasn't visited in nearly 2 months here.
PFDAN............................ Drk^Angel
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Virginia
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Re: Head Check
« Reply #23 on: Nov 20th, 2002, 8:08pm » |
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HELL YEAH CHRIS!! ;D Happy to hear that! I know you were suffering for awhile. I'm glad to hear that so many others are doing well at this point in time. Here's wishing that it stays that way for you so you can have pain-free holidays!
I, myself am not doing well at all. I know I'm a broken record but last pain-free day was 2nd week of February, 2001. Currently, I'm 10-minutes pain-free  .
If I EVER get a permanent job (still waiting to hear on my last interview) with medical benefits again, I will be getting oxygen, verapamil, and lithium per the advice of Jonny and so many others.
Thank God for this board and everyone on it because it keeps me hopeful!
Virginia
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The Clusterhead formerly known as 9erfan.
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
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Re: Head Check
« Reply #24 on: Nov 20th, 2002, 8:27pm » |
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on Nov 20th, 2002, 7:44pm, Marc wrote:Ted,
You're right, all of should keep our virus protection up - especially for those back door viruses.
Marc |
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ROFL.....and especially with a ball and tube on the loose at the start of the thread
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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