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Topic: Hello, I'm back and glad to see ya'll still here (Read 266 times) |
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DuckFlorida1
New Board Newbie
Oh' How I long to be "Cluster Free" chronic 5yrs
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Posts: 2
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Hello, I'm back and glad to see ya'll still here
« on: Nov 15th, 2002, 9:07pm » |
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Well let's see I think the last time I posted was back in March or April, well boy oh boy has sh*t hit hit the fan since then, but at least I'm glad to see that the group here is growing and hopefully making some headway.
For those of you that don't know me, I have been chronic for 5 yrs but only diaginosed ( ya I know I can't spell ) 2 yrs ago and that was by a freak accident that I got a neuro that had just read an artical in a medical journal about cluster headaches the day before and when I described my problem he pulled out the mag and then looked it up in the PDR and made the call, kinda really freaked me out that I had lived with this type of pain and this little smart ass doc was having a great laught cause he got to make a quick call without working, but anyway, so we started the preventatives, well, I guess there aren't too many left to try before my luck is gonna run out, cause I've been thru the med-cocktails morning, noon, and night, using about 6 hrs of O2 a day @ 15LPM and still not able to get a little break the cycle this time, usually I can get at least a few days and even a week or so that are just like lite ( under 6's on the Kip ) but as of late or for the last 2 months its been like hell, even with the cocktail ( 240 Verap, 300 Topamax, 500 Depakote, 200 Indomethacin) x 2 per day. I get hit on average of 6 to 8 times a day and they last between 35 min to 2 1/2 hrs, the worst ones are the midnighters though wish I could get them to go they always are hard 10's, but that's my life, so just thought I would say hi and let ya'll know I'm bbbbbaaaaaaaacccccckkkkkkkk.
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Peppermint
CH.com Alumnus
New Board Hall of Famer
Work it out baby!
 
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Posts: 2605
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Re: Hello, I'm back and glad to see ya'll still he
« Reply #2 on: Nov 16th, 2002, 6:12pm » |
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Ueli...
Thank you for that link.. it was something I've beem looking for sporadically but haven't really had time.
A fellow clusterhead of mine will certainly appreciate it....his neuro's given him a hard time with upping the verapamil - this might help.
Crossing fingers...
Peppermint
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| « Last Edit: Nov 16th, 2002, 6:18pm by Peppermint » |
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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Jackie
CH.com Alumnus
New Board Hall of Famer
Go For It!!!
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Posts: 2963
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Re: Hello, I'm back and glad to see ya'll still he
« Reply #3 on: Nov 16th, 2002, 6:32pm » |
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on Nov 16th, 2002, 6:12pm, Peppermint wrote:
A fellow clusterhead of mine will certainly appreciate it....
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ummm...didn't realize you had clusters... ??? 
Jacks 
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Peppermint
CH.com Alumnus
New Board Hall of Famer
Work it out baby!
Gender:
Posts: 2605
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Re: Hello, I'm back and glad to see ya'll still he
« Reply #4 on: Nov 16th, 2002, 7:21pm » |
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NOPE... I do NOT.. that's cute Jackie
FYI... I'm not perfect.. though I REEEEALLY TRY - .. and I chat online with people while I visit here...
so I fucked up in typing my message - its been pretty clear on this mb that I am not a clusterhead - this is nothing new...
To satisfy your curiosity.. and for no other reason but that...
I was typing "a fellow clusterhead of yours" and then got an MSN invite to chat... and when I came back to finish my message... I was thinking "clusterhead of mine" and never edited it properly.
Hope that's good enough - and if its not....
Que sera, sera..
MINT
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You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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Jackie
CH.com Alumnus
New Board Hall of Famer
Go For It!!!
Gender:
Posts: 2963
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Re: Hello, I'm back and glad to see ya'll still he
« Reply #5 on: Nov 16th, 2002, 7:44pm » |
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on Nov 16th, 2002, 7:21pm, Peppermint wrote:.. that's cute Jackie
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Well....thank you, Peppermint ;D
Jacks
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DuckFlorida1
New Board Newbie
Oh' How I long to be "Cluster Free" chronic 5yrs
Gender:
Posts: 2
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Re: Hello, I'm back and glad to see ya'll still he
« Reply #6 on: Nov 18th, 2002, 10:51pm » |
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Sorry for the delay, don't have a lot of time on the computer these days with a 8 yo neice in the house!
My neuro up'd the verap to 240mg today ggain ang we are gonna try it for a while, last time I had major problems with the higher dosages and had to be taken off all meds except the O2 for 3 months then re-started the cocktails, so its been a lot of fun. don't want to go that route again, but it looks like its coming. well catch ya'll later, it's time to get ready for the "cast iron skillet in the head" later
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