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Topic: Hello! Here's my story (Read 338 times) |
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GlennR
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Hi all!
I ran across the site the other night at 4:00 am while calming down after a CH attack.
I've been having CH's over the last 20. I have been in remission for the past 2 years, but the monster has reared his ugly head once again this week. Same old story, wake up at 2am, left side, eye watering & swollen, ice pick pain, and the desire to pull my teeth out....
I was officially diagnosed about 4 years ago by Kaiser (don't even get me started on them...) and was given a course of steroids and codeine. I also learned I have a brother who also has been suffering for years, and was diagnosed with CH's.
So this morning I go to a new Dr (no longer Kaiser & my last one just retired) and he was totally clueless, said it was sinuses, and wanted to give me decongestants and Tylenol. I asked him if he was familiar with CH's, and he says yes I see them every day! I'm wanting to say "so you see over 1600 patients a day!"  So we go round and round, and I tell him I really want O2 and Imitrex, he finally caves and gives me a Rx for Imitrex, Prednisone and a decongestant and best of all a referral to a Neurologist!
So that's me and my story, hopefully I wont be posting tonight at 4:00, but if I do, and it in screaming ALL CAPS or something, at least you have a bit of an idea who I am!
Off I go to the drug store, full of hope that this Imitrex is the magic bullet I've been looking for all these years!
Thanks for letting me rant! ;D
Glenn R
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captdshea
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???Re: Hello! Here's my story
« Reply #1 on: Nov 14th, 2002, 11:24am » |
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How did the steriods and codine work for you??? ???
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"Seek knowledge and truth"
"Respect divergent points of view"
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Jackie
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Go For It!!!
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Re: Hello! Here's my story
« Reply #2 on: Nov 14th, 2002, 11:54am » |
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Glenn,
Did you get the 02 you asked for?
The imitrex should help.
Good Luck,
Jacks 
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don
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Re: Hello! Here's my story
« Reply #3 on: Nov 14th, 2002, 11:58am » |
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Way to go Glen
EDUCATE THEM DOCS
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NotH20
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Re: Hello! Here's my story
« Reply #4 on: Nov 14th, 2002, 12:02pm » |
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Glad you found us Glenn.....print off as much info as you can from this site and the OUCH site and mail it to your doc......maybe that will give him some insight to the CH's.....
I'm assuming that you've never taken the injections before....they are HEAVEN!!!!!
Good luck to you,
NotH20
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echo
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Chronic and still alive --- I Win!
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Re: Hello! Here's my story
« Reply #6 on: Nov 14th, 2002, 12:06pm » |
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Glad to read that you didn't back down. Odd that the doc says he sees CH'ers every day and wants to treat it with tylenol. Glad you got the rx for Imitrex.
Welcome to the family -- glad you found us, sorry to read that you needed to.
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| « Last Edit: Nov 14th, 2002, 12:07pm by echo » |
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Edna
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Re: Hello! Here's my story
« Reply #7 on: Nov 14th, 2002, 12:36pm » |
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Welcome although sad you had the need to look at us
Imitrex injections are my god send so please don't give up on it if the tablets don't work right away....hoping they do but they didn't for me.
Let us know how it goes.......and it's ok to come here in CAPS at whatever time you need to.........even if it's 4 in the morning.......humph.......watch out....you might even find somebody home at that time!!!
Welcome,
EDNA
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Charlie
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Happy to be here
   
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Re: Hello! Here's my story
« Reply #8 on: Nov 14th, 2002, 3:18pm » |
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Welcome to the asylum. I can't speak about drugs but I just wanted you to know that there is an amazing amount of stuff here from great ideas, not so great ideas, insane ideas, funny ideas, and pure nonsense. I like it all but then I'm not all that tightly wired.
Stick around and nice going with the sawbones.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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GlennR
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Re: Hello! Here's my story
« Reply #9 on: Nov 14th, 2002, 3:27pm » |
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Thanks everyone!
Quote: Posted by: David Shea
How did the steroids and codeine work for you |
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The jurys out on if the steroids did anything, so I guess I'll try them again. I used the codeine to help calm me down after the attacks so I could get back to sleep quicker.
Quote:Posted by: Jackie
Did you get the 02 you asked for? |
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Nope, he looked at me like I was out of my mind  But, I just got back from stealing my brothers tank.
Quote:Posted by: NotH20
I'm assuming that you've never taken the injections before....they are HEAVEN!!!!! |
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Yea, I'm quite leery about giving myself a shot, but in the middle of an attack I'd do ANYTHING for relief! Sure hopes it works half as good as everyone says!
Thanks again for the welcome and all the great advice!
Glenn R
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Mr. Happy
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If I can do it, it ain't art.
 
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Re: Hello! Here's my story
« Reply #10 on: Nov 14th, 2002, 3:52pm » |
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GlenRrrrgggghhhhhh,
Quite a story. 20 years condensed into 6 paragraphs....and here you are! A most humble welcome. As you've seen, there's plenty of info and opinions from every direction. Just keep one thing in mind: you're getting input from a waft of people that spend a fair amout of time beating their head against both stationary and movable objects. :) Hope the Imitrex works!!!!! BTW....be careful how you use the word "bullet"......tends to make some folks a _little_ jumpy. <G>
Has anyone checked the stash of sacrificial virgins this week?
http://www.drfeller.com/randy/godman.html
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May those who don't want any
Have memories of never getting any.
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Azrael
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Sometimes... Being good just ain't worth it.
 
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Re: Hello! Here's my story
« Reply #11 on: Nov 19th, 2002, 12:49pm » |
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Welcome to the board! Sorry that the beast is whipping your cranium into submission. Good luck!
PFDAN.............................. Drk^Angel
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"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
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Bob P
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Shut up Bob!
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Re: Hello! Here's my story
« Reply #12 on: Nov 19th, 2002, 3:06pm » |
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Mr. Happy,
I've got one of them ordination thingys too. Is that what I joined?
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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jonny
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Re: Hello! Here's my story
« Reply #13 on: Nov 19th, 2002, 3:15pm » |
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WTF?, wheres my ordination thingy?
WTF is an ordination thingy?......I dont care I want one!!!!
.....................jonny
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M.R.
CH.com Alumnus
New Board Old Timer
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Re: Hello! Here's my story
« Reply #14 on: Nov 19th, 2002, 9:29pm » |
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damn...we have sacrifical virgins here?
I want one of them instead
Quote:Has anyone checked the stash of sacrificial virgins this week?
Hmmmmm...I don't seem to have the quote function down quite yet
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| « Last Edit: Nov 19th, 2002, 9:39pm by M.R. » |
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Calling an illegal alien an undocumented immigrant is like calling a drug dealer a unlicensed pharmacist..
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GlennR
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Re: Hello! Here's my story
« Reply #15 on: Nov 19th, 2002, 10:30pm » |
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Let me know when you get yours, so I'll know when to expect mine  ;D ;D ;D ;D ;D
Thanks Everyone!!!!
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