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Topic: Educating Doctors (Read 1177 times) |
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don
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Bouncing around an idea.
Should OUCH set up an area on the website where people can subit the names of Doctors who's craniums are deeply imbeded in their Glutious Maximus?
Ex;
Quote:| "Don't call it a cluster headache as it is not one. You can't possibly be suffering from a cluster headache as it only exists in men between 18-45 yrs of age. |
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Should OUCH make a professional courteous contact with such Doctors ? Help them extract their craniums?
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| « Last Edit: Nov 12th, 2002, 12:13pm by don » |
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Ted
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Re: Educating Doctors
« Reply #1 on: Nov 12th, 2002, 12:18pm » |
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Depends upon how the submitals would be viewed. If it would be out in the open like the good doctors spot, nope. Could be a legal explosion there and people might submit names of doctors who they just have a personal grudge with. But, if the names of those who are submited could only be seen by a few people, I like the idea with having OUCH politely educating them.
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OneEyeBlind
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Re: Educating Doctors
« Reply #2 on: Nov 12th, 2002, 12:19pm » |
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I kind of like the idea of coming up with a nice, cutious letter from ouch stating that a patient did not get what they were looking for. Inlcude the specifics of the patients care in the letter and what was wrong. I think you always have to keep in the back of your mind, that you are looking to educate the doctors, not alienate them. You want them to be more aware. I thinks its a great idea if handled properly. Put someone who is very diplomatic in charge of this task and it will be a win win for everyone !!!!!!
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don
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Nope, no specific patient information, that would create a liability issue over confidentiality. Doctor would shut right down. I think a generic contact would be more suitable.
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Margi
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Re: Educating Doctors
« Reply #4 on: Nov 12th, 2002, 12:26pm » |
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I agree with Ted here, Don - posting Dr's names in a public forum could come back to bite us on the ass if handled improperly.
Maybe set up a committee for Physician Liaison and have folks send suggestions in to them, without actually publishing names (of doctors OR patients) on the website. The Liaison would act as a filter for professionalizing communication and information sent to the cluster-uneducated docs. We don't want someone writing as an OUCH representative without OUCH being fully involved in the process.
I volunteer Ted to head up the Physician Liaison Committee.  He's a really good letter writer.
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don
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Good thread. Good feedback. Keep it coming.
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Ted
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Re: Educating Doctors
« Reply #6 on: Nov 12th, 2002, 12:34pm » |
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I volunteer Margi to take dictation for whoever heads up the committee.
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Azrael
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Re: Educating Doctors
« Reply #7 on: Nov 12th, 2002, 12:37pm » |
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Dear Dr. <insert doctor's name here>,
It has come to our attention that a patient of your's may have received an incorrect diagnosis. It is our opinion that the patient may actually have cluster headaches based on their symptoms and/or prior diagnosis. We believe this issue may be the result of outdated, incomplete, or inaccurate information about cluster headaches that you may have received, and would like to offer you the following information about cluster headaches.
<insert information here>
This information is up to date, and is supported by the International Headache Society, National Headache Foundation, and the top neurologists around the world. If you would like to discuss this further, please feel free to e-mail O.U.C.H. at <insert e-mail address here>, or by phone at <insert phone number here>.
Sincerely,
<insert name here>
<designated position in O.U.C.H.>
This letter should be on O.U.C.H. letterhead, with proper contact information for the organization on the letterhead. It should be sent to the business correspondence mailing address of the doctor, with the O.U.C.H. logo on the envelope. The more professional the idea appears on the outside, the more likely it'll be opened. The more professional it is on the inside, the more likely it will be read.
PFDAN........................................... Drk^Angel
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| « Last Edit: Nov 12th, 2002, 12:40pm by Azrael » |
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kim
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Re: Educating Doctors
« Reply #8 on: Nov 12th, 2002, 12:49pm » |
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Or, ya could avoid the "incorrect diagnosis" thing (might peeve the bugger). OUCH letterhead, brief but ACCURATE description of Cluster Headaches (dispelling the gender thingy) and enclosing info + politely inviting them to visit the website for themselves? ..............i dunno. If that doesn't work, I'd still be glad to send a "nice, polite e-mail" ;D ;D ;D
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don
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A couple of suggested changes.
Dear Dr. <insert doctor's name here>,
Recently we have been made aware of the mis -diagnosis of Cluster Headaches for other maladies amongst many of our international membership.
We believe the issues may be the result of outdated, incomplete, or inaccurate information about cluster headaches that you may have received, and would like to offer you the following information about cluster headaches.
<insert information here>
This information is up to date, and is supported by the International Headache Society, National Headache Foundation, and the top neurologists around the world. If you would like to discuss this further, please feel free to e-mail O.U.C.H. at <insert e-mail address here>, or by phone at <insert phone number here>. Our services are with out cost to the Medical Community, Cluster Headache suffersand their advocates.
Sincerely,
<insert name here>
<designated position in O.U.C.H.>
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| « Last Edit: Nov 12th, 2002, 12:54pm by don » |
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Slammy
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Re: Educating Doctors
« Reply #10 on: Nov 12th, 2002, 12:55pm » |
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on Nov 12th, 2002, 12:12pm, don wrote:Bouncing around an idea.
Should OUCH set up an area on the website where people can subit the names of Doctors who's craniums are deeply imbeded in their Glutious Maximus?
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If we are trying to get doctors like Kudrow to recognize this organization, then this would not be a very good idea. I doubt that this would be well received. In general, doctors have difficulties receiving criticism, however constructive, from any panel that is not made up of their peers, and then, they have a hard time with one that IS made up of their peers.
Slammy 
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Ted
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Re: Educating Doctors
« Reply #11 on: Nov 12th, 2002, 12:56pm » |
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There's some typographical errors that need to be cleaned up in this too. But my question is why isn't O.U.C.H. up there with the IHS and the NHF section?
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Azrael
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Re: Educating Doctors
« Reply #12 on: Nov 12th, 2002, 12:58pm » |
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Also add a disclaimer at the bottom of the letter. something like "O.U.C.H. is a non-profit organization dedicated to the understanding of cluster headaches" Just for a professional touch.
PFDAN...................................... Drk^Angel
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don
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Slammy
Quote:| doctors have difficulties receiving criticism, however constructive, from any panel that is not made up of their peers, |
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Thats their problem not ours. Our responsibilty still lies in education and awareness. We can't force them to accept OUCH but we can make them aware.
OUCH is now a recognized, ligitimate non profit and we should be taking our place at the table.
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echo
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Re: Educating Doctors
« Reply #14 on: Nov 12th, 2002, 1:01pm » |
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Drk's letter is a great start. Much better than
Hey shit for brains,
It has come to our attention that you are an uninformed idiot and should have your practice reduced to wrapping rotting flesh wounds in a 3rd world country.
Kidding aside, I agree that the potential for some Dr to get their nickers in a wad and sue is subject. Proper wording would inform, show .org professionalism, and be beneficial. Maybe the officers of the .org could have a hidden data base of Dr/Neuro for members to avoid. Keeping the public list of who to contact.
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| « Last Edit: Nov 13th, 2002, 2:24pm by echo » |
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Azrael
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Re: Educating Doctors
« Reply #15 on: Nov 12th, 2002, 1:03pm » |
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Ted... Because O.U.C.H. is sending the letter, and providing the information, it should be assumed that O.U.C.H. supports the information. Throwing out names like IHS and NHF is just to add credibility to the information provided. Most doctors are aware of IHS and NHF, but they are probably not as aware of O.U.C.H. yet, so a little credibility may be needed to get our point across.
PFDAN................................................. Drk^Angel
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| « Last Edit: Nov 12th, 2002, 1:04pm by Azrael » |
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Slammy
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Re: Educating Doctors
« Reply #16 on: Nov 12th, 2002, 1:06pm » |
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Don,
I don't disagree with that. OUCH's responsibility is to educate and make aware. But "How" we do that is to be considered. The question is... do we take our rightful place at the table by being confrontational, or do we develop a positive relationship with the medical field and "team up" with them in regards to OUCH's goals.
Slammy
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Ted
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Re: Educating Doctors
« Reply #17 on: Nov 12th, 2002, 1:07pm » |
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I don't think it's a good idea to have any kind of a system of who to avoid. How would we know? If we just take the word of someone who writes in to OUCH how would we be sure it's not a competitor doctor trying to get more business or a patient who personally has something against a doctor? Or even a doctor who may actually be excellent but its the patient who's ignorant on the CH subject. To do something that potentially suable/libelous OUCH would really have to have a professional investigate each and every doctor a complaint was made about.
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| « Last Edit: Nov 12th, 2002, 1:12pm by Ted » |
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Ted
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Re: Educating Doctors
« Reply #18 on: Nov 12th, 2002, 1:11pm » |
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Drk, I know why the IHS and NHF was added to the letter. And it's a good idea. But putting our name there wouldn't detract from the credibility but would have the self-serving benefit of subtley giving/adding to our own credibility. It wouldn't make the letter or the impact of it any less, but it would only help OUCH to go out into the world saying we're as good as anyone else. It's all just about marketing us while also doing a good thing.
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Azrael
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Re: Educating Doctors
« Reply #19 on: Nov 12th, 2002, 1:13pm » |
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Slammy is right... And you know I don't say that often. The letter should not hint towards the possibility of the doctor being wrong at all. The letter should instead be written to appear that we, as a non-profit for cluster headache, are offering up to date, accurate information to better assist them with their cluster headache patients. Explain that with information changing so rapidly about this disease, that we felt it was important to educate as many doctors as we can with the newest information. That way we may be able to prevent an automatic rejection of the letter based on hurt pride, and may actually get our point across to more docs.
PFDAN...................................... Drk^Angel
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kim
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Re: Educating Doctors
« Reply #20 on: Nov 12th, 2002, 1:18pm » |
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Sending out letters could be a good thing. MUST be careful of the language or could get in big trouble and do more harm than good. Not a good idea to present a doctor with the suggestion that he/she MIS-DIAGNOSED or was INNACURATE. It just won't cut the mustard.
I still like the idea of mailers, keep it simple and see if get any nibbles. Take baby steps - LOL
High Anxiety 
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Azrael
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Re: Educating Doctors
« Reply #21 on: Nov 12th, 2002, 1:25pm » |
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Ted... But it may also come across to some that we are being a little arrogant, but I definitely see your point.
PFDAN................................... Drk^Angel
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don
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Absolutely any comminication should be in a non judgemental format and one of offering our services only. Weather or not a health care professional accepts the offer is beyond our control but we have planted a seed and at the very least the prof. may pass the OUCH info on to a sufferer.
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OneEyeBlind
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Re: Educating Doctors
« Reply #23 on: Nov 12th, 2002, 1:51pm » |
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Don, great idea ... Dark and all the others, great suggestions !!!! I am loving this post !!!!! You go guys .. think ya got a good team of advisors too, Don !!!!! I'll stay out of it ... I am a weinee ... and know it !!! Ain't life grand ?????
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Azrael
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Re: Educating Doctors
« Reply #24 on: Nov 12th, 2002, 1:58pm » |
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Dear Dr. <insert doctor’s name here>,
It has come to our attention that the continuously changing information about cluster headaches may have some negative impact on the proper diagnosis of the disease. With this in mind, we have decided to proactively work to update doctors who may deal with cluster headache sufferers on a daily basis. Please accept the attached information on cluster headaches, verified by O.U.C.H. to be the most accurate and up to date information available. The information has been gathered from the O.U.C.H. resources, and other headache professionals such as the International Headache Society, the National Headache Foundation, and some of the top neurologists around the world.
We hope that you find this information useful, and welcome your questions if further information is needed. You can contact O.U.C.H. at anytime by email at <insert email address here>, or by phone at <insert phone number here>. Our normal hours of operation are <list days and hours here>. You may also visit our official website at http://www.clusterheadaches.org/ for further information on cluster headaches or about our organization in general.
Thank you for your time and have a good day.
Sincerely,
<name of O.U.C.H. rep>
<official position of rep>
O.U.C.H. is a non-profit organization dedicated to the understanding of cluster headaches, and it’s sufferers.
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