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Topic: May have to leave Clusterville (Read 615 times) |
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catlind
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May have to leave Clusterville
« on: Nov 7th, 2002, 7:50am » |
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I had mentioned in a post a while back that I was having heart testing done to get approval for using triptans. Well, I've found out that under no circumstances am I to use triptans. I go in Nov. 14th for a cardiac catheterization as they've found a problem with my ticker and/or arteries. Apparently my heart is not able to get enough oxygen rich blood out to my body, and they think my headaches may be from that. Now this is a cardio telling me this, not a neuro. But I don't have a decent neuro within 50 miles of me to tell me one way or the other if the CH is real or a mimic because of my heart condition.
So if it turns out that I my left ventricle is fuckered up and not getting the O2 out to my head, I may not be a CH'er and would naturally have to leave clusterville as imposters don't do very well here 
Seriously though, I will probably be absent for a time, but I will return here to support those that want me, and I will find out for sure about these damn headaches one way or the other. Everything on this site and OUCH and different docs have told me I have CH, but of course, they didn't know my heart was fuckered up either.
I will let everyone know one way or the other after I have the procedure on the 14th.
See echo, you left and I had to go find my own echo (cardiogram) and now you've caused me all kinds of trouble! 
Luv to all my cluster family
Cat
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| « Last Edit: Nov 7th, 2002, 7:52am by catlind » |
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jimmers
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Re: May have to leave Clusterville
« Reply #1 on: Nov 7th, 2002, 8:02am » |
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Hey Cat, best wishes from our home to yours. Keep us informed.
Seeya,
Jimbo & family
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Woobie
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Re: May have to leave Clusterville
« Reply #2 on: Nov 7th, 2002, 8:15am » |
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YOU just can't leave... you have the BEST stories!!! ;D
I hope you get some sort of answer ..
I'm new to this whole website, but I'm sure the people here wont kick you out if you don't have clusters. I'm sure everyone will benefit from hearing what happens..
I hope you find your answers
all the best
Tina and Ramon
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NotH20
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Re: May have to leave Clusterville
« Reply #3 on: Nov 7th, 2002, 8:25am » |
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Cat - please let us know your results....you are in our thoughts and prayers....
Mia
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echo
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Re: May have to leave Clusterville
« Reply #4 on: Nov 7th, 2002, 8:55am » |
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Hang in there Cat. You will be in my thoughts. Thanks for letting us know you may be absent from time to time.
Take care of yourself.
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jonmach
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Re: May have to leave Clusterville
« Reply #5 on: Nov 7th, 2002, 9:10am » |
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I for one pray that alittle plumbing reroute takes your headaches away. be well and i will watch for your progress
jion
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Cathi
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Re: May have to leave Clusterville
« Reply #6 on: Nov 7th, 2002, 11:46am » |
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Hey, Cat-
First- get yourself well- if some plumbing work sends the beast packing- that's all good- but you have experience & concern that this gang needs- and your stories....we need your stories!!!
Cardiologists, neuros...whatever it takes...I'll be looking forward to your updates, and thinking good thoughts the whole time!
Take care,
Cathi
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don
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Re: May have to leave Clusterville
« Reply #7 on: Nov 7th, 2002, 1:44pm » |
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No reason to leave.
Hopefrully you'll turn out NOT being a ch'er and be able to eliminate your headaches but you know what?
You will make a great supporter. Stick around only in a different capacity. We need you.
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The mad viking
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Re: May have to leave Clusterville
« Reply #8 on: Nov 7th, 2002, 1:56pm » |
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Hey Cat, best wishes from Norway.You can`t leave.You are one of the best here.You have given us support and hopes.
keep us informed
Your friend Svenn
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jonny
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Re: May have to leave Clusterville
« Reply #9 on: Nov 7th, 2002, 2:39pm » |
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Ahhhhh, Wouldnt I love to see you get all fixed up and your HA's stop......Then I could call you a MEEGRAINER!!!!!
Wishing you luck, Cat
.................................jonny
BTW: No one is kicking you out of anything, I have spoken and you can take that to the bank!!!!!
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captdshea
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Re: May have to leave Clusterville
« Reply #10 on: Nov 7th, 2002, 2:41pm » |
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Hi Cat,
I'm new here at the MB. and have enjoyed reading your post. Hope this procedure ends all the pain you have
endured. And hope you return here to continue helping others. Like you have said.....
" There is more to CH than pain, There is our life"
I'll be pulling for you!
David
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Linda T
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Re: May have to leave Clusterville
« Reply #11 on: Nov 7th, 2002, 2:56pm » |
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Hi Cat. Hang in there. However it works out for you I hope you do stick around. But more importantly, get a definite diagnosis (or at least try your best too LOL).
Wishing you all the best, Linda T
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Jabeen
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Re: May have to leave Clusterville
« Reply #12 on: Nov 7th, 2002, 3:35pm » |
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Hey Cat-I am relatively new here, but I have seen your posts many times. I know you have been an active supporter on this site- I wish you luck. My husband is having similar problems and may require cathertization.
I hope it solves both problems for you-cardiac and CH!
Good luck- 
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kim
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Re: May have to leave Clusterville
« Reply #13 on: Nov 7th, 2002, 4:06pm » |
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Hey Cat,
Just wanted to wish you good luck and good health!!! Your posts brighten up the board, ya can't leave!
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Azrael
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Re: May have to leave Clusterville
« Reply #14 on: Nov 7th, 2002, 5:03pm » |
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Good luck Cat! Hopefully the docs can get ya all fixed up soon. No matter what the outcome, I think ya should definitely stick around.
PFDAN.......................................... Drk^Angel
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ShariRae
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Re: May have to leave Clusterville
« Reply #15 on: Nov 7th, 2002, 5:19pm » |
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Cat,
Hang in there hon...You are in my thoughts and prayers..and no matter what.. you just HAFTA stay...sufferer,supporter,cheerleader,storyteller,referee...somethin!
Best to you
Shari
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2late
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Re: May have to leave Clusterville
« Reply #16 on: Nov 7th, 2002, 5:45pm » |
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Cat, i hope you get yer ticker adjusted & then be done with CH, wouldn't that be a blessing in disguise, you hang in there, give 'em hell & get back here A.S.A.P. ...........2late
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getlit
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Re: May have to leave Clusterville
« Reply #17 on: Nov 7th, 2002, 5:55pm » |
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Hey, can anybody help me out here? I'm a rookie trying to get to the live chat room.
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jonny
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Re: May have to leave Clusterville
« Reply #18 on: Nov 7th, 2002, 6:16pm » |
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Sure, I would help you out BUT who the fuck are you?
.....................jonny
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SFChris
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Re: May have to leave Clusterville
« Reply #19 on: Nov 7th, 2002, 6:40pm » |
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Jonny - thanks dude!! I actually spit out the water I was drinking laughing out loud at your last post. I'm not sure why it tickled me so much, but it did... ;D
chris
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catlind
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Re: May have to leave Clusterville
« Reply #20 on: Nov 7th, 2002, 7:17pm » |
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Thanks everyone for the well wishes and good vibes and luck. Jonny, you always manage to make me laugh 
I would be happier than a pig in a shit if the headaches went away, somehow heart surgery is a little more unnerving than clusters 
I don't imagine I could ever leave anyway, I may get rid of my CH's, somehow I doubt it, of course it would be my luck I'd have one while on the table having the heart cath done LOL. Besides, until Slammy is back harass me I can't leave.....it just wouldn't be right
I've grown to know this place as family, and a supporter I can be, even if I'm a meegrainer
I will be sure to keep everyone posted on what happens. I have just been so busy the last few weeks with appts for this that and the other thing and chasing a 2 year old that has decided to make my life a circus to which he can enjoy from the comfort of the inside of a warm car while I freeze just makes it hard to have the time to keep caught up with the posts.
Either way, I believe in the cause too much to stop participating. I've set my mind to get the word out and educate all those dumb fuck dr's about CH and my stubborn streak can be pretty bad
Oh yeah, and I was told "request for leave denied, reapply in 50 years for final disapproval"
Cat
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Ree
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Re: May have to leave Clusterville
« Reply #21 on: Nov 7th, 2002, 8:25pm » |
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Cat ... then you would have to hang with US supporter folk... "seriously" as you said take care of yourself... I hope that whatever they do for your heart does truly cure your ch problem... wouldnt that be great... think positively and if there is anything I can ever do for you please let me know... Us Military family women gotta stick together... hang tough... love you alot Ree
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Not4Hire
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Re: May have to leave Clusterville
« Reply #22 on: Nov 7th, 2002, 9:10pm » |
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Quote:| I had mentioned in a post a while back that I was having heart testing done |
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...don't worry,sister....yer heart (HERE) is not in question...... it's a big one and you are one of the *gems*.....
....hope it all works out, that you find relief from CH, and that you make this crazy place a *stop* on yer way to living a life that makes sense........
yer bro-in-arms....Steve ;D
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cootie
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Re: May have to leave Clusterville
« Reply #23 on: Nov 7th, 2002, 11:07pm » |
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Good luck Cat....yer purdy cool.....b-cool if ya got rid'a dem CH's.......luck to ya....supporter cootie >^..^<
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Charlie
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Re: May have to leave Clusterville
« Reply #24 on: Nov 8th, 2002, 12:28am » |
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Gonna miss you for awhile. No matter what, you have to come back so we can force you to take a beating from us. We'll do our best to keep it lively.
You'll do okay and let us know WTF is going on.
Mean old Charlie 
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