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Topic: New Member (Read 221 times) |
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Nihil
New Board Newbie
Omnes vulnerant, ultima necit...
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Posts: 10
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Hello friends, I've been here many times before to check for and to try possible remedies, but only now have I registered.
I'm a severe chronical case and have tried a whole load of orthodox medication and alternative treatments. So far nothing has been able to ease the pain. To add to the difficulty of treatment, I am allergic to a large number of chemicals.
I try to get by through meditation, but that doesn't work for the bad attacks.
They way things are going, I will never be able to graduate or get a decent job. I've had a particularly bad week in which I lost 16 lbs. I'm not even desperate anymore, it just ke someone has already pulled the plug...
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There is a twisted kind of sickening comfort to these moments, in which the dull, numbing light makes it seem so self-evident that all is not -and will not be- well.
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Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
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Posts: 3757
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Re: New Member
« Reply #1 on: Nov 5th, 2002, 10:53am » |
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Hi Nihil...
have you tried oxygen? little or no side effects.
hope you find relief soon.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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StanTheMan
New Board Veteran
"I can do all things through Christ..."
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Posts: 165
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Re: New Member
« Reply #2 on: Nov 5th, 2002, 10:59am » |
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Hi Nilhil!
Sorry you're suffering so much. My heart always goes out to you chronic folks.
Welcome. Hope you find some assistance through us / OUCH.
Hang in there -- don't lose hope!
Prayers.
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
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Re: New Member
« Reply #3 on: Nov 5th, 2002, 11:05am » |
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Welcome Nihil,
Sorry you are getting you head mashed.
The O2 suggestion is a good one, very little side effects and effective for a large number of Clusterheads.
Don't give up on the meds, it was many years before I finally something that worked at all. Keep trying.
I hope you able to find some relief soon. Let us know how you do.
Thanks,
Mark
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Click The Flag
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Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
   
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Posts: 1786
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Re: New Member
« Reply #4 on: Nov 5th, 2002, 12:18pm » |
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Welcome to the board! Sorry that the beast is pumpin' battery acid into your cranium. Good luck!
PFDAN................................... Drk^Angel
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"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
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Re: New Member
« Reply #5 on: Nov 5th, 2002, 3:14pm » |
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Welcome to the board. Read around .. look at some of the stuff people have tried here ... perhaps you haven't tried some of the things that people here have found relief with !!!!
Hang tough .. and read, read, read.
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
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Posts: 4214
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Re: New Member
« Reply #6 on: Nov 5th, 2002, 4:21pm » |
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Welcome to the MB Nihil. Sorry to read the SOB is slapping you around so much. I'm confident that you will be able to glean information from the archives that will assit you in your preventative/abortize treatment.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
 
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Re: New Member
« Reply #7 on: Nov 5th, 2002, 5:32pm » |
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Welcome aboard and I guess you know the drill. I'm not good on meds but stick around. There is a ton of good info here along with our nonsense.
"Nihil"  You're gonna fit right in 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: New Member
« Reply #8 on: Nov 5th, 2002, 6:50pm » |
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welcome to the board nihil! glad you found us ........2late Charlie, there has to be some sort of benign technique out there, can you help? ;D
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Jabeen
New Board Veteran
What doesn't kill you, makes you stronger.
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Re: New Member
« Reply #9 on: Nov 5th, 2002, 8:09pm » |
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Hi! Gotta believe that something on this site can offer you some hope. I am "under control" but if I had come here a few years ago-it would've been a God sent. So much information and support. Welcome???
Jabeen 
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OUCH member since 9/5/02
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
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Posts: 14968
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Re: New Member
« Reply #10 on: Nov 6th, 2002, 12:24am » |
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Sorry I took so long getting here. Anyway, here is the technique and I'll post it as well:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Nihil
New Board Newbie
Omnes vulnerant, ultima necit...
Gender:
Posts: 10
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Re: New Member
« Reply #11 on: Nov 6th, 2002, 4:18am » |
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It is actually a similar technique that keeps me from losing my mind completely. As far as the Oxygen goes, I have tried it and it doesn't seem to make much difference, although it indeed seems to help some other people I know.
I have been browsing through the archives here for a while now and have tried many of the possible remedies. If nothing else, it gives me hope and that is something none of us should be without. In a few weeks I will be undergoing treament in a specialized "pain clinic", hopefully that will help somehow.
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There is a twisted kind of sickening comfort to these moments, in which the dull, numbing light makes it seem so self-evident that all is not -and will not be- well.
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suzy617
CH.com Alumnus
New Board Hall of Famer
Love is friendship set on fire
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Posts: 1902
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Re: New Member
« Reply #12 on: Nov 6th, 2002, 6:26am » |
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Keep going back to your neuro armed with all your info. Don't ever give up till you have tried everything. Thanks to all these great folks here, I have learned alot and am armed with my amunition when I finally see my neuro. Good luck to you.
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When God measures men, He puts the tape around the heart, not the head.
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