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Topic: Sleep? (Read 623 times) |
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Mark C
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As I understand most of us tend to have sleep problems probably relating to the Hypothalamus. I have not slept well in years (3-4 hours a night) and thought it to be mainly because of the work I have done, ie long haul truck driver. I stopped driving several years back because my Son was born, but I still am having sleep problems. To make it worse I now work in a factory and do shift work so I still dont get much sleep. I am on the last night of 14 nights in a row, due to others vacations here at work. My regular shift is split anyway so sleep may continue to be a problem as long as I am here. Doc has prescribed a few Ambien, which help, but she is reluctant to do this long term, and so am I. I am trying to get to a normal shift, but for the last three years this is it. If it wasn't such a good job (insurance!) I would move on.
What other methods do you Clusterbuds use to sleep?
Thanks,
Mark
http://www.clusterheadaches.org/library/hypothalamus/index.htm
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| « Last Edit: Nov 4th, 2002, 7:10am by Mark C » |
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paul_b
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Re: Sleep?
« Reply #1 on: Nov 3rd, 2002, 10:53pm » |
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Who sleeps? I call it nightly naps. Would not know what to do if I ever slept 6 hrs of uninterupted zzzz's ; now that I am older, I also require pee breaks ;D ;D ;D. But seriously, the amt. of sleep each of us requires to function effectively differs. The only sure thing I am aware of is to go to bed tired and the rest takes care of itself. Usually, this is when my brain starts thinking about all sorts of things. I don't have a shut off switch like some. Hope you find your answer.
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cootie
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Re: Sleep?
« Reply #2 on: Nov 3rd, 2002, 10:54pm » |
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Hi...I'm a CH support'r but read your post about Ambien....I don't know if this will be of 'any' help to you or if it is recommended for CH suffer's but I myself have been takeing it for about 2 years every nite and it's worked for me pretty good other wise I'd be a mess cuz I can rarely fall asleep on my own. I don't feel groggy in the mornings which is why I prefer it verses other options and I get decent amount of good quality sleep useing it. Not sure if it's rite for you but thought I'd add my two cents. I think for CH's tho that messing with your BIO clock like the shift changes and odd working hours are bad or can trigger them....I'm no expert by a longshot.....(we've delt with them for about 15 years).....but "I" noticed when hubby changes his eating habits cuz of vacation and sleep schedule and work ect or stress level 'all roled into one' chages he starts them back. He had a stressful vacation and overloaded work schedule before and after he left to deal with this year and sure enuff he got them back with a vengence after a long break !! Good luck to you......cootie
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Linda_Howell
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Re: Sleep?
« Reply #3 on: Nov 4th, 2002, 12:12am » |
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Sleep??? WTF is that???
If you do any research of the posts on this board I'll bet you almost anything, that if you'll look at the time they posted at the top, most of them posted in the wee hours.
zzzzzzzz eyes wide awake...heading for the 02 zzzzzzz
Linda Howell
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captdshea
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Re: Sleep?
« Reply #4 on: Nov 4th, 2002, 12:23am » |
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Mark C,
I deal alot with jet lag, and have to work a 6hr, on and '
6hr.off shift at Sea.
I use melatonin and sometimes excedrin Pm.
By the way thanks for all your input here, very helpful post.
I think I remember reading you are PF for now, Right?
David
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Jarvis
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Re: Sleep?
« Reply #5 on: Nov 4th, 2002, 12:26am » |
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sleep?.... I took a nap today. woke up on the edge of hell............I'm never gonna sleep again!!!!!!!!!!.....wish I could help...mj
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| « Last Edit: Nov 4th, 2002, 12:31am by Jarvis » |
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Mark C
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Re: Sleep?
« Reply #6 on: Nov 4th, 2002, 1:13am » |
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Thanks David,
Havent had a blaster in about 3 weeks now. Went from the first of Aug. till just recently. Bad, 1-4 killers daily for about 40 days, whew. I am going out on a limb and say this cycle is over, even the heavy shadows have lightened up over the last week or so, not gone, but liveable. I have used Melatonin with some success in the past, think I will go get some more. I dont want to become too dependant on any narcotic, my experience has been if used for a long period I suffer more and get relief less. I guess its a balancing act.
Jarvis, I know how you feel. Sleep is the enemy.
Coward of a disease, comes on at night.
I do worry about the other effects of sleep depravtion, depression, weight loss, reduced resisitance, etc taking my resources I may need to fight the beast, or even triggering the beast. I am just now recovering from this last cycle and want to get as much "road fat" as possible, for the next dance.
It will return, it always does.
PFDAN
Mark
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suzy617
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Re: Sleep?
« Reply #7 on: Nov 4th, 2002, 5:03am » |
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Sleep has never been a problem for me except of course when in cycle and woken up from the beast but after the attack I would fall back to sleep in exhaustion. During the week I wake at 3am, work 2 jobs so by 9pm I am so dead tired I just fall out. I make up for loss sleep on the weekends when I can sleep for 11 hours no problem. There was one period in my life when I was really stressed out and did use an over the counter sleeping pill when I needed it, worked good for me but wouldnt use it on a daily basis.
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don
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OTC Dramamine.
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Sweet_Landings
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Re: Sleep?
« Reply #9 on: Nov 4th, 2002, 7:49am » |
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I have forgotten what sleep is. Although I am pain free I am still not sleeping. I really miss my sleep. I have tried Ambien, tylenol PM, other OTC stuff, Melatonin, now taking Trazadone and still sleep aludes me. Trazadone worked real well until I switched over to the Topomax.
Oh well, back to the drawing board. I might try dramamine, good suggestion Don.
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sueellen83
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Re: Sleep?
« Reply #10 on: Nov 4th, 2002, 1:46pm » |
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Hey Mark,
Sorry to hear you are still having trouble sleeping. Schedule changes always mess my sleep up. Usually sleep pretty good except when I'm in CH cycle. I have found I can take 50mg of Benadryl and it helps me sleep.
I hope your schedule settles down some. Almost had to quit my job because they started talking about putting us on a rotating shifts. Hours changing every day. Told my boss I couldn't do that. Luckily she changed her mind.
Good luck!!! Hope this helps.
Sue Ellen
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BobG
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Re: Sleep?
« Reply #11 on: Nov 4th, 2002, 2:18pm » |
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Try sleeping with your head elevated.
During my cycles I spent many, many nights (and days, I've worked a rotating shift for 30+ years) sleeping in the Laz-E-Boy.
Doesn't stop the attacks but I would awaken at a lower kip number and could start the fight sooner.
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Virginia
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Re: Sleep?
« Reply #12 on: Nov 4th, 2002, 3:54pm » |
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SLEEP?? What's that? I think I remember something called sleep a few years ago...but that was before I became chronic.
Wish I could help you....I've tried a few OTC sleep aids but they haven't helped and they just make me even more groggy in the morning than I would've been without them. To sleep through the night...what a gift that would be! ???
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Chuffy
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Re: Sleep?
« Reply #13 on: Nov 11th, 2002, 5:15pm » |
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I'm glad I came across this post as during my latest Cluster I have noticed a definite sleep related pattern.
I am a musician who is normally used to late nights early mornings and generally don't sleep too good anyway. Before the onset of a cluster however I just can't get up in the mornings, then the cluster starts and I sleep like a log (mine don't seem to wake me at night anymore) and still can't get going in the morning.
Now this is the bit that I have noticed recently.
If I get up to go to work in the week my headaches tend to come on late afternoon till late evening. But, if I have a lie-in, a couple of hours after I get up, WALLOP, as did happen saturday when I had to teach guitar with a good KIP 7 at least ( self employed amazing what you do for money!!) which peaked for about 30 mins, shaky hands the lot, and left me with a dull head till I went to bed.
Now that was the worst one so far, most I can abort with Cafergot before thay get going, but this one even with 2 Cafergot and Tylex got me by the danglies and wouldn't let go!!
Mind you having read most peoples posts on here I think I get away pretty lightly.
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cootie
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Re: Sleep?
« Reply #14 on: Nov 11th, 2002, 6:00pm » |
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I'm a CH supporter but can add to the sleep conversation I suppose. Brad's Ch's started back up when he changed his sleep pattern and gets into his LONG nap sessions...he slept all day the one day before his last attack episode started...started takein longer naps after work too. WHAM BAM....he started the dam attacks back....was draggy all day also. His nero he first went to mentiond to him he has to wind down slowly and is a factor...thought that nite be interesting ? OK....OK....I modify'd my post and took the BS "crap" out....I should know better then join in when I'm sucha rookie here.....I'll sit back and 'read' now not type....
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| « Last Edit: Nov 11th, 2002, 6:29pm by cootie » |
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Jackie
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Re: Sleep?
« Reply #15 on: Nov 11th, 2002, 6:17pm » |
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Whew........what did she say.. ??? LOL
Jacks 
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jonny
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HUH??
Im still reading......LOL
..................jonny ;D
Modify, Modify, Modify......LOL 
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| « Last Edit: Nov 11th, 2002, 6:30pm by jonny » |
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cootie
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Re: Sleep?
« Reply #17 on: Nov 11th, 2002, 6:32pm » |
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Um I think I'll go back to the supporter's corner...I'm outa my league here and you'll all have me fer dinner if I stay......have a good'n......I'm outa here !!!!
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captdshea
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Re: Sleep?
« Reply #18 on: Nov 11th, 2002, 6:36pm » |
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Jacks, LOL ???
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Jackie
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Re: Sleep?
« Reply #19 on: Nov 11th, 2002, 6:39pm » |
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Hey Cootie....no problem 
I'm a supporter too. Just trying to track all that...
Hang around.... 
Jacks
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cootie
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Re: Sleep?
« Reply #20 on: Nov 11th, 2002, 6:40pm » |
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POOF....I'm not here remember !? 
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Sleep?
« Reply #21 on: Nov 11th, 2002, 6:45pm » |
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OK....lill touchy rite now I guess...I ain't had no sleep 'member.....kinda got to ramblin...sorry.....yer a tough bunch........  .......I like that.....keep up the good work !
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| « Last Edit: Nov 11th, 2002, 6:46pm by cootie » |
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suzy617
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Re: Sleep?
« Reply #22 on: Nov 11th, 2002, 6:45pm » |
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Hey Cootie,
Dont worry, they dont bite in here. They just nibble, chomp, gnaw on ya, spit ya back out but they really dont bite. ;D
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celtspirit
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Re: Sleep?
« Reply #23 on: Nov 11th, 2002, 6:52pm » |
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Mark,
Being a driver myself, I know how elusive sleep can be working odd hours. I run local anymore, with a few rare night runs within 200 miles, and that tends to throw me off when I do those.
Even working daytime hours, I can still get sleep habits all screwed up. Tried a lot of different OTC stuff. Dramamine works well to help you sleep, and it also interupts the REM cycle of sleep a little bit, which is the point in sleep where the Hypothalmus trigers CH attacks. Effectiveness wears off after a few weeks of continued use.
50 mg of Benadryl works OK too, but leaves you dried out when you wake up in the morning, especially during the winter months when the humidity is low.
My personal favorite is Valerian Root. Works quite well, doesn't leave you with after effects in the morning. and so far I haven't developed a tolerance to where I need to take more. The one drawback to it is this- the most effective form is whole herb capsules (extract in a soft gell cap doesnt work as well for me) and the smell is something that takes some getting used to. It also releases that smell on your breath just before you fall asleep, you can even taste the smell. Sarah says it reminds her of cat shit.
There's my 2 cents on the subject, hope it helps somebody get some sleep.
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Oh! I'm sorry! When we were first introduced, I forgot to mention that I am an arrogant, opinionated ass-hole, but I do thank you for noticing!!
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cootie
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Re: Sleep?
« Reply #24 on: Nov 11th, 2002, 6:55pm » |
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I'm a dumb blonde anyhow.....har-har-har....jus jokein (not really...it's the truth)....a real burnt out tired dumb blonde.....did that make sense ????  Every dog has it's day......ruff ruff.....yawn.............
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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