Author |
Topic: Another Cluster Period (Read 138 times) |
|
ANZAC
Guest
|
Here I go again, Another year, another cluster period.
This is the 9th year I have had to deal with cluster haedaches and it was only last year that I was diagnosed correctly. Up till then I was told I had stress headaches even though I wasn't stressed. The only things that I have found to ease my agony are Imigran (a migrain medication) and 100% oxygen. The pain is excrusiating and trying to fight off the pain without aome form of medication seems impossible. I have many sleepless nights and the occasional lost day of work because of them. The medication prescribed for me only comes in a pack of 2 with a maximum dose of 3 in 24hrs which at times becomes a major problem as hospitalisation then follows. Once I have my first cluster for the day I begin to worry that I wont have enough medication to see me through to the next day. even worse on a weekend as I only have 2 tablets and repeats will not be issued at the same time so those 2 tablets have to last from Friday night to Monday morning at a minimum. If anyone has any other remedys they have tried and work please let me know for not only my sake but for my familys sake also... ???
|
|
 IP Logged |
|
|
|
OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
|
 |
Re: Another Cluster Period
« Reply #1 on: Nov 3rd, 2002, 6:26am » |
 Quote  Modify
|
Welcome to the board. Sorry ya have to be here though. Look through the posts ... there is lots of info on better ways to use the O2 (like chilled). Make sure you are using a non-rebreather mask, etc. Use the search function to find other posts dealing with O2. Check out the buttons on your left. Also, there is lots of info on how to get the insurance to up the number of Imitrex you receive. Look on the OUCH website (link on the left to get there) for that info.
Hope that helps and welcome, welcome, welcome.
|
|
IP Logged |
One cannot step twice in the same river, for fresh waters are forever flowing around us.
|
|
|
ChristineL
Guest
|
|
Re: Another Cluster Period
« Reply #2 on: Nov 3rd, 2002, 6:36am » |
Quote Modify
 Remove
|
Anzac,
Read all the information on the buttons on the left. Many of us are are Imitrex and O2. Try the Imitrex injections which work much faster than the pills. You can break the dosage down as many of us don't need the full 6 ml. Check out the Imitrex tip on the left. I use Insulin syringes and break the two doses into 12. I find 2 ml works great for me and aborts a CH in as little as 5 minutes. Also has your Dr. given you anything to try and break the cycle? I did the Prednisone bit which lowered the severity and occurances but didn't break the cycle so I switched to Verapamil which has been working very well. A lot of us on this MB have had success with it.
Read and print out all the information on this site to give to your Dr. There is lots of different things you can try.
Chris L
|
|
IP Logged |
|
|
|
domm
New Board Old Timer
I love YaBB 1G - SP1!
Gender: 
Posts: 474
|
|
Re: Another Cluster Period
« Reply #3 on: Nov 3rd, 2002, 9:57am » |
Quote Modify
|
ANZAC - welcome to the board. Verapamil works for me as a preventattive, although it takes a week of so to "build up" in your system. I started taking it about a month into my cycle and then spent the rest of my cycle pain free. Dosage will depend on you and your doc.
good luck finding the right set of meds that work for you
domm
|
|
IP Logged |
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
   
Gender:
Posts: 1786
|
|
Re: Another Cluster Period
« Reply #4 on: Nov 3rd, 2002, 9:23pm » |
Quote Modify
|
Welcome to the board! Sorry that the beast is repeatedly slamming your cranium into a hot grill covered in broken glass and rusty razor blades. Good luck!
PFDAN........................... Drk^Angel
|
|
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
Gender:
Posts: 2660
|
|
Re: Another Cluster Period
« Reply #5 on: Nov 3rd, 2002, 9:55pm » |
Quote Modify
|
Not much I can add other than educate yourself as much as possible. The links here and on the OUCH are a tremendous resource for CH information. Fire up your printer and take the info to your Dr., Educate them as well as yourself.
Sorry about the head, but glad you're here.
Mark
|
|
IP Logged |
Click The Flag
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
 
Gender:
Posts: 14968
|
|
Re: Another Cluster Period
« Reply #6 on: Nov 3rd, 2002, 9:57pm » |
Quote Modify
|
Welcome aboard and although I don't have info on meds, I just want to say hello and encourage you to look over everything you can. You'll likely find something on this site that will help in some way.
Stick around.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss