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Topic: New at site / Board (Read 299 times) |
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mojoe
New Board Newbie
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New at site / Board
« on: Nov 1st, 2002, 8:11pm » |
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Hello all,
It was nice to come across this site. (good info)
I'm 34 male, been suffering since I was 22. My first CH happened while drinking a Miller Highlife beer. Thought I got a bad beer. Will never forget that day. My last cycle was 1.5 years ago. Thought I was done with them. Guess what? They came back last July. My normal cycle is 1-2 weeks twice a month. 1 to 6 per day.
Often every two hours starting around 11:30 pm. Usally a couple during daylight hours. VERY SEVERE!!
Imitrex Injections work great. Same probs as everyone else. - cost, availability, etc. O2 helps a lot also. These last three months have been the worst in my CH career.
Thanks for listening - ttyl - 
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mojoe
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
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Re: New at site / Board
« Reply #1 on: Nov 1st, 2002, 8:20pm » |
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Mojoe, welcome to the board. Lots of good people here to listen and offer advice.
Check your post ... did you mean 1-2 weeks twice a month? If you mis-typed this you can modify it.
Anyway, welcome, welcome, welcome. Sounds like you have been reading some posts around here !!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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mojoe
New Board Newbie
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Re: New at site / Board
« Reply #2 on: Nov 1st, 2002, 8:26pm » |
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Thanks for the welcome OneEyeBlind. To clarify, My cycles in the past ran for 7 to 14 days then remission for 7 to 14 days. (on average).
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mojoe
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
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Re: New at site / Board
« Reply #3 on: Nov 1st, 2002, 8:30pm » |
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Oh, now I am feeling lucky Mojoe !!!!!! Two weeks on .. two weeks off. The jury is still out on whether my cycle has ended (it was my first) ..... lasted four months ... but I am hoping for a 10 year reprieve !!!!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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StanTheMan
New Board Veteran
"I can do all things through Christ..."
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Re: New at site / Board
« Reply #4 on: Nov 1st, 2002, 10:02pm » |
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Welcome Moejoe!
Glad you found us, but sorry the beast had to drive you here!
Best wishes and prayers for pain free days!
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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domm
New Board Old Timer
I love YaBB 1G - SP1!
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Re: New at site / Board
« Reply #5 on: Nov 1st, 2002, 10:06pm » |
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mojoe - welcome to the board. Sorry you felt compelled to do so. I hope you're finding the right set of meds. Are you on any preventatives? Verapamil worked for me and is usually the first choice.
Hope the beast loses your address
PFDANs
domm
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Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
   
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Re: New at site / Board
« Reply #6 on: Nov 1st, 2002, 10:39pm » |
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Welcome to the board! Sorry that the beast is dropping you on your head, from 500 ft in the air, to the bottom of a active volcano with plenty of jagged rocks to crash your cranium into before breaking through the thin crust on the molten lava, and frying your cranium into a crispy critter. Good luck!
PFDAN........................ Drk^Angel
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"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
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Charlie
CH.com Alumnus
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Happy to be here
 
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Re: New at site / Board
« Reply #7 on: Nov 1st, 2002, 10:50pm » |
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Glad you found us and welcome. If you stick around and keep in touch, you will find some help here. There are lots of ideas here and ways to handle meds. The others can help you there.
This thing is a horror but you'll find help here.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Mark C
CH.com Alumnus
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Onward through the fog.
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Re: New at site / Board
« Reply #8 on: Nov 1st, 2002, 11:47pm » |
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Click The Flag
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: New at site / Board
« Reply #9 on: Nov 2nd, 2002, 1:15pm » |
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welcome to the board mojoe! DRk........LMAO! ...........2late
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iamdying
New Board Newbie
I love YaBB 1G - SP1!
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Re: New at site / Board
« Reply #10 on: Nov 4th, 2002, 10:50am » |
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This is my first time here too. Have not had what they considered "a migraine" in over 12 years. Have had 2-8 of these a day for 3 1/2 weeks. Have tried Imitrex Nasal (no luck) Injections (fairly good luck) and another pill called (i think) Vomax or something like that. It did NOT work. Now, we are trying Skelaxin Muscle Relaxer w/Imitrex Injections. Not total relief but MUCH better. At least I can work. I take this on top of the meds I take for Neuopathy, Myoclunus and hormones. I am confused about ALL of this headache stuff. If you could help me with any info on this I would appreciate it.. 
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The mad viking
CH.com Alumnus
New Board Hall of Famer
Always Look on The Bright Side of Life
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Re: New at site / Board
« Reply #11 on: Nov 4th, 2002, 10:55am » |
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Welcome to Clusterville.
so sad you have to ,but you have definatly found the right place,and are among the best friends in the world here.
just ask and you will get all the info in the world.
Svenn
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Always Look on The Bright Side of Life
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echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
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Re: New at site / Board
« Reply #12 on: Nov 4th, 2002, 10:59am » |
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Welcome to the MB Mojoe. Hope you go PF very soon.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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