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Topic: OUCH door is Open (Read 386 times) |
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don
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Due to the terrific work of all past and present OUCH officers and members, the door to our future is wide open.
So when we walk through it, what direction do we go and what do we carry with us? Lets hear from the membership.
Suggestions
Wish List
Ideas
email me at Bgull2@hotmail.com
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| « Last Edit: Oct 28th, 2002, 3:05pm by don » |
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
  
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Re: OUCH door is Open
« Reply #1 on: Oct 28th, 2002, 5:16pm » |
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Dear Mr. President (select)
Under the category of wish list:
A cure 
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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don
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Well i'd like a 24' Graddy White with a cuddy cabin and twin engine Mercs, but now that OUCH membership is free I'll never be able to embezzle enough to get it like Bob P did. How is the old cabin cruiser runnin Bob?
Did I say
OUCH MEMBERSHIP
IS FREE ?
Have YOU joined OUCH ?
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| « Last Edit: Oct 28th, 2002, 9:19pm by don » |
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Not4Hire
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: OUCH door is Open
« Reply #3 on: Oct 28th, 2002, 9:27pm » |
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on Oct 28th, 2002, 5:16pm, catlind wrote:Dear Mr. President (select)
Under the category of wish list:
A cure
Cat |
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.....I'd go for that...meanwhile, just keep on puttin' our case in front of the rest of the world.....like Slammy talkin' to Dr Kudrow.....like CH being mentioned in Time magazine ....like having people like Ueli keeping us on our toes ....like DJ making this place for us to rant and rave ....well, like yer already doin'.......
Thanks ;D
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Lori
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THERE WAS AN ARTICLE ON CH IN TIME?
« Reply #4 on: Oct 29th, 2002, 3:49am » |
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COULD SOMEONE PLEASE TELL ME WHAT ISSUE IT WAS IN? I'D LOVE TO READ IT.
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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Not4Hire
CH.com Alumnus
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: THERE WAS AN ARTICLE ON CH IN TIME?
« Reply #5 on: Oct 29th, 2002, 8:35am » |
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on Oct 29th, 2002, 3:49am, Lori wrote:| COULD SOMEONE PLEASE TELL ME WHAT ISSUE IT WAS IN? I'D LOVE TO READ IT. |
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I think it was about the October 7 issue....no idea what YEAR because I read it at my son's orthodontist office....... ;D
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Bob P
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Shut up Bob!
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Re: OUCH door is Open
« Reply #6 on: Oct 29th, 2002, 8:46am » |
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About the most often mentioned thing I see on the MB is getting insurance to cover the required meds.
Not quite sure how to go about this though.
The insurance guys are in it for a profit and I'm not sure just educating them about the needs of clusterheads vs meegrainers would make them change their policies.
Don't know whether to approach them through the doctors or the politicians or both.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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don
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Why not approach them directly?
Show them the numbers, show them the profits they are losing.
Speak their language.
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ave
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Am I mistaken, or was Ted working the Insurance boys already?
But before you have a go at them, you might want to get a fixed protocol for treating clusters.
We have one in my country.
It lists the best treatments (Vera, then try Lithium, etc.) (plus try Imitrex and Pred and always O2). Doctors have to follow the list and if they don't prescribe from it, insurers sure as sure want to know why!
This isn't to say you can't get a script for anything else, if the stuff does not help, of course...
Another thing a patient's org might do, is try and get the docs off their collective butts and organise a standard sending on of patients' files to the next treating doc, when the patient moves elsewhere.
In the same vein, if the old doc recommends a certain course of treatment, and it has worked for the patient, "somebody" should stomp on the new doc if he insists on reinventing a well running wheel!
I cannot help you there, as things are organised differently in my country and I would not know where to start. But maybe somebody local at OUCH will know how to find the way?
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BarbaraD
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Hugs to ya
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Re: OUCH door is Open
« Reply #9 on: Oct 31st, 2002, 7:24am » |
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I think one of the problems in the US is that each state has an "Insurance Board" - that right there brigs about "red tape" problems. Each state has their own rules on how to do things and rules on how to screw the peoples who have the insurance. We need to start at the top and get a ONE STOP policy with some teeth.
Oh well - it's a thought - But that's the problem. The problems are easy - it's the solutions that are tough.
Hugs BD
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What don't kill ya, Makes ya stonger!
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catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
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Re: OUCH door is Open
« Reply #10 on: Oct 31st, 2002, 8:03am » |
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on Oct 29th, 2002, 8:46am, Bob P wrote:About the most often mentioned thing I see on the MB is getting insurance to cover the required meds.
Not quite sure how to go about this though.
The insurance guys are in it for a profit and I'm not sure just educating them about the needs of clusterheads vs meegrainers would make them change their policies.
Don't know whether to approach them through the doctors or the politicians or both. |
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What about approaching both and NORD and NINDs??
Just my thought. Perhaps they can help to educate the Docs/Insurance co. to understand that CH'ers require much MORE in quantities than do Migraine sufferers....of course that means more money for them, but at least if they change the approval through the medical, institutional and political arena the HMO's will follow instructions?
Did that make sense? Somedays I wonder about me.... LOL
Cat
(See Slammy...Cat is back  )
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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