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Topic: Hello (Read 523 times) |
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Hound_Dogg
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Hello, fellow sufferers,
My 1st post, so bear with me. I have been getting Cluster Headaches for over 15years, since I was 18 y/o. I am currently out of cycle, but doing my homework in case they arrive with the new season. They usually start in the spring but starting a cycle in the fall is not unusual for me. In cycle I normally get 3 to 5 per day and go through a storeload of kleenex with each day. Looking at the kip scale mine are almost always a kip 9 with occasional kip 10's. They are always on the right side, and last at the worst 1 hour.
Even though I'm not in cycle, I'll hang around awhile, get to know everyone, and offer any support I can.
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Slammy
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Lust Without Remorse! Love Without Regret!
 
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Re: Hello
« Reply #1 on: Oct 24th, 2002, 2:54pm » |
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on Oct 24th, 2002, 2:48pm, Hound_Dogg wrote: They usually start in the spring but starting a cycle in the fall is not unusual for me. In cycle I normally get 3 to 5 per day and go through a storeload of kleenex with each day. Looking at the kip scale mine are almost always a kip 9 with occasional kip 10's. They are always on the right side, and last at the worst 1 hour.
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Wait!.. No, It's a trap! 
Bahahaha, I crack myself up sometimes....... 
Just a little inside humour, Dogg! 
From one hound to another, Welcome! I hope you arm yourself with a ton of ammunition before the Beast returns for his annual visit! It's great that you want to hang during remission time, those that are in cycle, and the chronics can use our support!
Slammy 
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: Hello
« Reply #2 on: Oct 24th, 2002, 2:57pm » |
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welcome to the board Dogg! i see your an episodic, what meds have you tried? what works for ya? ...........2late
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NotH20
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Re: Hello
« Reply #3 on: Oct 24th, 2002, 3:01pm » |
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Welcome Dogg.......welcome!!!!!!
Stick around - it's a crazy group, but such a good one
NotH20
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Hound_Dogg
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In cycle Imitrex 6mg auto usually kills it. However, like everyone else, I'm limited on how much I can have. At first it was 8 2/packs per month. Doctor fought insurance and a was graciously given 12 2/packs per month. I don't know ??? I think they use funny math. I also use Veralan. With the occasional oxyir, in case. I haven't had any luck with O2, though. I copied the water method, I'll try that next time.
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Jim R
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Always question authority....
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Re: Hello
« Reply #5 on: Oct 24th, 2002, 3:09pm » |
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Welcome Dogg! Good place to be but can get feisty at times, but loads of good info and people, as you'll find out. -Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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jonny
Guest
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Dogg,
Check out the "Imitrex tip" on the left, you will be able to turn those 12/2 packs from 24 shots into 72 shots.
.......................jonny
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StanTheMan
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"I can do all things through Christ..."
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Re: Hello
« Reply #7 on: Oct 24th, 2002, 3:19pm » |
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Hi Dogg!
Sorry you had to find us, but welcome!!
Hope you find some good info here...I sure did!
Hope you meet some....uhh...*interesting* clusterheads here... I sure did! ;D
Hopefully, Drk Angel will be along soon to give you a rather unique greeting... Drk?
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Re: Hello
« Reply #8 on: Oct 24th, 2002, 3:23pm » |
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hope the trex tip works for you, i tried it & i need a full shot to kill it. ...........2late
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Hound_Dogg
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Jonny,
Thanks for the tip, I'll wait for the next trip before I decide if I'm gonna try that. Hate needles, man. At least with the auto-injector you don't see the needle.
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echo
CH.com Alumnus
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Re: Hello
« Reply #10 on: Oct 24th, 2002, 3:33pm » |
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Welcome to the ward Dogg. I understand the season impact you mention. Unless the SOB has changed his MO he'd going to stomp the back of my right eye this weekend. I'm soooo excited.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Charlie
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Happy to be here
  
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Re: Hello
« Reply #11 on: Oct 24th, 2002, 4:30pm » |
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Welcome to our madhouse. Actually, I'm the only sane one here of course.....
It's futile to expect they will return. Mine were episodic and other than the duration, they were similar. It's possible yours will never return. Mine have been gone for many years.
Tell us more and keep reading. Lots of good ideas here.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Opus
New Board Hall of Famer
(Insert witty comment here)
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Re: Hello
« Reply #12 on: Oct 24th, 2002, 4:55pm » |
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Stan, DRK's gone.
How's this.
Hound Dogg, Glad to hear that the beast's hammer is broken and it could not get a replacement for this falls slamfest on your skull. Glad to hear you are supporting to help those whom the beast is hitting with unbroken hammers. PJB
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| « Last Edit: Oct 24th, 2002, 4:56pm by Opus » |
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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Edna
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Re: Hello
« Reply #13 on: Oct 25th, 2002, 8:24am » |
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Hiya Hound Dogg, glad to know you're pain free right now........also glad you decided to join us. One thing to metion though, don't believe anything Charlie says (  )
"Even though I'm not in cycle, I'll hang around awhile, get to know everyone, and offer any support I can."
WOW.......think you've got the right idea already!
Welcome,
EDNA
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Hound_Dogg
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Thanks for the welcome, everyone!!! I've been lurking for about 2 weeks, so I got the joke from Slammy and everyone. To tell you about my Cluster's: They started in my late teen years. Doctor's didn't know what to make of them. Had every test in the book. I was finally given a name for my pain about 10 years ago.
Clusters are always heavy duty, I don't remember anything like "Shadows". Start in eye and and stay in the right facial area. Eye turns red, nose runs like there is no end to the kleenex. Pain is too intense. Last usually around 45 minutes, sometimes alittle less, if I'm lucky. Looking at the quiz I get everything except I don't notice the "Ganglion Lump" on my neck.
Again, thanks for the warm welcome. I hope to get to know everyone soon.
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Slammy
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Lust Without Remorse! Love Without Regret!
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Re: Hello
« Reply #15 on: Oct 25th, 2002, 11:49am » |
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on Oct 25th, 2002, 10:12am, Hound_Dogg wrote:| Thanks for the welcome, everyone!!! I've been lurking for about 2 weeks, so I got the joke from Slammy and everyone.... |
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At least someone got the joke! ;D
hey! at least I'm laughing at me... you get me? I get me!
Slammy
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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Hound_Dogg
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I gets ya...
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: Hello
« Reply #17 on: Oct 25th, 2002, 4:39pm » |
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Ya kill me slammy. Sooo witty sooo quick.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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jonny
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on Oct 25th, 2002, 11:49am, Slammy wrote:
you get me? I get me!
Slammy
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Dude,
You have got to get your own material ;D
.....................jonny
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Slammy
CH.com Alumnus
New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
Gender:
Posts: 1418
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Re: Hello
« Reply #19 on: Oct 25th, 2002, 5:25pm » |
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Bahahaha, jonny!
I thought you'd like that one.. ;D
Slammy
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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jonny
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Its a tough job being a mean bastard.....Sometimes I admire myself how effortlessly I do it.
Ya hear me?......I hear me!!
.....................jonny
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don
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Hey there Dogg
Sounds like you got the kill-a-beast method down pretty good. Have you tried the frozen bag of peas for pain management? What do you do for sleep?
Slammy and Jonny like to "get each other", if you know what I mean. Charlie is sane but he wears woman's cloths.
Me----I'm kind, compassionate, an all around super guy,and in desperate need of money. Got any ?
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| « Last Edit: Oct 25th, 2002, 9:05pm by don » |
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jonny
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Nah!, Don
Slammy's not my type, you on the other hand are my Imitrex sugar daddy ;D
..............jonny
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Lori
New Board Hall of Famer
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Posts: 526
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Re: Hello
« Reply #23 on: Oct 27th, 2002, 12:52am » |
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pjbgravely,
"How's this.
Hound Dogg, Glad to hear that the beast's hammer is broken and it could not get a replacement for this falls slamfest on your skull. Glad to hear you are supporting to help those whom the beast is hitting with unbroken hammers. "
LOL..Not quite the way Dark would come out with it. Good try though.
Welcome hound..glad you found this place..
PFDAN
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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Hound_Dogg
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Don,
Wow, me and Charlie have a lot in common. But let's just keep that our little secret. No reason to let everyone know ;D Money? Me? I'm down to the last 10million grandma left me. Other then that, I'm broke.
Seriously though...What's with the frozen bag of peas? Would you use that on the worst pain, i.e. right eye/facial area. My wife usually gets me a cold wash-cloth, that I wrap around the back of my neck. Not that it helps much, but at least she thinks she's helpin me.
Don't do much for sleep. Usually I'll get just one, about an hour or two after I fall asleep. When one wakes me up, I'll take a shot of imitrex and after it's gone, go back to bed. Hopefully, that would be it for the night.
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