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Topic: Cluster Mimicking (Read 1057 times) |
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Margi
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Cluster Mimicking
« on: Oct 23rd, 2002, 1:54pm » |
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No, this isn't another flame post.
This is just proof that there ARE other conditions out there that mimic cluster headaches and some of them are dang dangerous!! A newbie mailed this to me, in hopes that I would post it to warn people of the danger of this particular affliction, called Carotid Artery Dissection.
Here's what she said about it:
"There is a condition called carotid artery dissection that produces horner's syndrome, unilateral headache and pulsatile tinnitus (hearing your own pulse rate all the time). The article says this condition can look like cluster headache. This condition can cause stroke, (and my doctor obviously didn't know about it) so I think that it's important that this information gets out in case other people are misdiagnosed.
Here is the link (look under vascular dissection)
http://www.neurologyreviews.com/nov00/nr_nov00_headache.html
and folks wonder why we 'know-it-alls' are cautious in making sure that people who are being diagnosed and treated for cluster really HAVE cluster? 
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kathy copelin, ch.com 8/8/06
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hub
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Re: Cluster Mimicking
« Reply #1 on: Oct 23rd, 2002, 2:21pm » |
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That's not it at all Margi. We do it because we are unique and so special and it's our disease. It's kind of like a junkie going into an AA meeting. Or a Jew going into a catholic church... Or Bob P going to the health club...
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Bob P
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Re: Cluster Mimicking
« Reply #2 on: Oct 23rd, 2002, 2:51pm » |
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They forgot one. In hub's case it's just gas.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Margi
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Re: Cluster Mimicking
« Reply #3 on: Oct 23rd, 2002, 2:52pm » |
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well, hub - you do have a couple of points (but we won't talk about your ears  ).
what scares me is if the folks that are suffering from this Carotid Artery thing are being treated as clusterheads and given imitrex, it's only going to accellerate the possibility of stroke.
this gal really did her homework and her OWN research. her doctor was WRONG.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Ueli
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Another disease that can have symptoms similar to CH is temporal arteritis (described on the same page Margi gave).
The 'know-it-alls' would recommend a neuro and a MRI scan. The 'welcome-all-to-this-site' would cuddle the guy with TA, until he turned blind.
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Bob P
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Re: Cluster Mimicking
« Reply #5 on: Oct 23rd, 2002, 3:00pm » |
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I've got an article at home about Spontaneous Carotid artery Disection mimicking meegraine, or something to that extent. I'll send it to ya or post it or put it in the OUCH library or use it for TP or something.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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jonny
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I could go for being cuddled with T&A ;D
But im not that lucky, oh well, back to the vasaline ;D
.......................jonny
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Slammy
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Re: Cluster Mimicking
« Reply #7 on: Oct 23rd, 2002, 3:14pm » |
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That 'll turn ya blind too, Jonny ;D
Slammy 
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Bob P
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Re: Cluster Mimicking
« Reply #8 on: Oct 23rd, 2002, 3:39pm » |
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I'm tellin' ya, it's the women that do all this touchy feely crappola. Well, hub does a little too.
And women don't even get clsuters. What the heck are they hangin' around for??
If anyone tries to touchy feely me while I'm clusterin', I'm gonna smack 'em around like I used to my mom (and still do my wife).
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Jim R
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Re: Cluster Mimicking
« Reply #9 on: Oct 23rd, 2002, 3:46pm » |
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Not only blind Slammy...hairy palms! LOL!
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
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Episodic Clusterhead since 1978
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Charlie
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Re: Cluster Mimicking
« Reply #10 on: Oct 23rd, 2002, 3:55pm » |
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No. It causes CH. 
What a bunch of jerk-offs. 
Charlie---Celibate and sober for 11 years. 
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Jim R
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Re: Cluster Mimicking
« Reply #11 on: Oct 23rd, 2002, 3:59pm » |
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Charlie - I thought it RELIEVED them?! LOL! Oh yeah - only women can manage that!!
Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
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Episodic Clusterhead since 1978
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DougL
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Re: Cluster Mimicking
« Reply #12 on: Oct 23rd, 2002, 4:40pm » |
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Jonny,
No one uses vasaline any more.
Don’t you know you’re supposed to use
Water based, sperm aside lubricant.
I also heard if you rubbed that stuff on your head
It would make you feel “OH” so much better. 
DouglasL
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| « Last Edit: Oct 23rd, 2002, 5:11pm by DougL » |
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Drk^Angel
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Margi,
I have no problem recommending anyone, who has not had the proper tests to rule out other underlying problems, to visit a neuro, and have an MRI and/or any other test that will rule out other causes for the pain. I have no problem recommending someone who may not be sure about their diagnosis to get a second opinion. I also have no problems with recommending anyone who has not yet seen a proper neuro to do so as soon as possible. I have never said that I have a problem with that, and have done so myself. I do have a problem with ppl telling others that there is no way they can have clusters, and they don't belong here. I also have a problem with ppl ridiculing sufferers that may not have the exact same symptoms, level of pain, or reaction to the pain as they do.
Can we now let it drop please?
Drk^Angel
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2late
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Re: Cluster Mimicking
« Reply #14 on: Oct 23rd, 2002, 5:05pm » |
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I dunno Doug L., vasalene is still the lube of choice, sometimes KY, your right, rubbin it on my "head" does make me feel better ;D ..........2late
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jonny
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I dont see where Margi mentioned your name, DRK.
Why dont YOU drop it?
........................jonny
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Drk^Angel
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Nevermind... If you can't see it, I'm not going to point it out for you, because you're obviously blind already.
Drk^Angel
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DougL
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Re: Cluster Mimicking
« Reply #17 on: Oct 23rd, 2002, 5:11pm » |
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Drk
Margi never memtioned your name in her post.
Why cant you drop it?
DougL
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Margi
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Re: Cluster Mimicking
« Reply #18 on: Oct 23rd, 2002, 5:48pm » |
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No, I'll never 'drop' a subject that could cause people to have strokes. This newbie sufferer sent this to me and asked me to post it to warn other people about the dangers of people being misdiagnosed by their doctors.
THAT's why it's so important to have a clear-cut definition of what clusters really are. Cluster meds given to a non-clusterhead can kill. That's it, that's all.
Oh great, now Doug and Jonny are fighting over the KY.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Charlie
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Re: Cluster Mimicking
« Reply #19 on: Oct 23rd, 2002, 5:58pm » |
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For those who don't know how to follow a thread:
Pull up a chair.
Stand on the chair.
Throw a rope over a beam and around your neck.
Quickly get off the chair.
Charlie
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Ted
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Re: Cluster Mimicking
« Reply #20 on: Oct 23rd, 2002, 5:58pm » |
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Man, Drk. This post was about a potentially life-threatening condition that mimics clusters and about the one woman who seemingly found out the hard way. It was posted as a means to educate people about it so they can make sure they don't die from a misdiagnosis. It was NOT about you. Not everything in the world is about you.
And thanks Margi and whoever sent you the mail.
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Slammy
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Re: Cluster Mimicking
« Reply #21 on: Oct 23rd, 2002, 6:04pm » |
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Wow!
Quote:| Can we now let it drop please? |
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This isn't about you! It has nothing to do with you! Jeezus! ya think the world revolves around you? Ya think we sit around all day and say " Hmmmm, what else can I post to get under Drk's skin" ?
Quote:| No, I'll never 'drop' a subject that could cause people to have strokes |
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Thatababy Margi! I told ya what that does to me when you "get going!"
Slammy
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| « Last Edit: Oct 23rd, 2002, 6:30pm by Slammy » |
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SFChris
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All,
Let's take this discussion back to Margi's original post because it is an important thread. I do believe alot of people are mis-diagnosed with clusters, and clearly there are alot of other conditions that could be more dangerous if not properly diagnosed! It is important that people get a second, or even third opinion from a qualified doctor.
When I first came to this board I had been "diagnosed" with CH by a doctor at the emergency room. I was told to take massive amounts of ibuprofin, and a beta-blocker as a preventative. I was also told to avoid red-wine, aged cheese and all the other "migraine causing" foods. I took this as gospel because he was a doctor, and even posted about how these foods were triggers for me (because he told me they were)... I eventually went to a neurologist who confirmed the cluster diagnosis (by an MRI and nitroglycerian test), and put me on Verapimil and Imitrix, and took me off the ibuprofin, and let me eat the "migraine foods". I eventually made it to Dr. Goldstein who also confirmed the CH diagnosis (additional MRI) and got me through the cycle.
My point is the original doctor got lucky with the diagnosis because he clearly didn't know how to treat me, indicating that he knew shit about clusters. I'm now sure most doctors really don't no shit about them...
So - as much as I don't like the "flaming" that can happen here, I do understand why folks push for a correct diagnosis. If doctors can't get it right, we sure as shit should!!
Chris
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Jim R
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Re: Cluster Mimicking
« Reply #23 on: Oct 23rd, 2002, 6:44pm » |
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Good post SF Chris! Despite the jokes, this is a very important subject, as Margi originally indicated. This is - or should be - nothin about anything but it's original purpose - mistaken diagnoses can be very dangerous (let alone frustrating)... JIm R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
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SFChris
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Thanks Jim - with all of the recent "fun" on the board, I don't want the actual intention of Margi's post to get lost. It is critical that the peeps here are properly diagnosed because there are worse things than CH. And the wrong meds can really fuck you up. 
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| « Last Edit: Oct 23rd, 2002, 6:50pm by SFChris » |
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