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Topic: Leaving things in good hands! (Read 403 times) |
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Elaine
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I will try not to make this a long post. I won't be able to be on line hardly any for the next few moths.
Most all of you know I fight more than clusters. My cancer has spread I now have bone cancer. I will be going through about six months of chemo and some radations. Its a chemo I have done before very little side effects to this one. I have high hopes and a lot of faith that this chemo will help. I will never give up on finding the right answer for my treatment with cancer, as I never gave up on finding the right treatment for clusters. A few of you ask if I am going to die. I am going to tell you what I tell my kids. Don't give up on me have faith I can beat it. As long as I plan for tomorrow I feel they will be a tomorrow for me. I use laughter as one of the best meds to beat everything that is thrown my way. I will do what I can to stay with my family and friends. I will also be ready to go if this is not in Gods plan. I would like to take this time to thank the people that have stood by me in this, you know who you are.
I also have just bought a new home and will be moving. That in its self is hard work.
My Mother and Father both are in very bad health so I will also be back and forth to their house. My dad won't be with us very much longer we figure a moth or two more.
Right now I am not having to deal with cluters I have not had a attack sence the one I had at the convention. I don't miss them either. I think I am going eposidic. In the last two years I have had as many as three months being PF I am happy about that 
Thank you all that have helped me in this fight.
I will still visit and have time for email and to read a post or two in the morning, when having my coffee.
DJ and Michelle will be watching over HSG for me. If my time should come then DJ said he would keep the site going for me. Michelle has said she would work it. Maybe between the two of them they can make that site work, I always wanted the two sites to work together. They have my permission to do what ever to make it that way.
I leave nothing but good wishes for you ALL! There are over 2000 people on this site and I have only met maybe 150 of you. I only know maybe 500. I wish I knew you all. There are certain people who are so very close to me I can't name you all but you know who you are I love ya and care. I wish you would each get to know each other better. The only tip I can give any of you is the only way to win with clusters is study and take control of your treatments. Don't leave it to the doctors, or your friends, or your family. Help your self and DJ has provided enough information here to do just that. Fill your PF times with laughter, and smile at everyone and they will smile back. Laughter and smiles are contagous. If you know someone full of sadness then let them empty a bit and listen then try to replace there sadness with a little joy a bit at a time. If you find yourself being pulled down by their sadness then maybe turn them over to someone else for help. Everyone can't be helped. Do your best that is all you can do. The internet can be additive and it can be fun. Please don't let it lead ya from your familys, they need ya too. Use the internet and be you, use it for good things, not bad things. Try to laugh more and cry less. Life is to short and we don't have but one. Be happy all, live love and laugh !!!! Your all in my prayers !
Love ya my Friends!
Elaine
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sueellen83
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Re: Leaving things in good hands!
« Reply #1 on: Oct 21st, 2002, 10:44am » |
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Elaine,
I am new to the site but, feel like I have known you for a long time.
Wishing you the best and you are in my prayers.
Take care and keep us posted when you can.
Sue Ellen
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Ted
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Re: Leaving things in good hands!
« Reply #2 on: Oct 21st, 2002, 11:05am » |
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"What's possible exceeds what's impossible. Think about it. Do all you can do that is possible today, and in your tomorrow, what was impossible will be possible."
-Mark Victor Hansen
Keep up the good fight, Elaine.
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| « Last Edit: Oct 21st, 2002, 11:13am by Ted » |
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Drk^Angel
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Re: Leaving things in good hands!
« Reply #3 on: Oct 21st, 2002, 11:44am » |
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You're a Hell of a lot stronger than I'll ever be. You are in my thoughts and wishes. Good luck.
PFDAN............................... Drk^Angel
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Charlie
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Re: Leaving things in good hands!
« Reply #5 on: Oct 21st, 2002, 7:23pm » |
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You're something else, Elaine.
I'll be in your corner if you let yourself get cornered, that is.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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2late
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Re: Leaving things in good hands!
« Reply #6 on: Oct 21st, 2002, 7:29pm » |
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E, you are a very strong women, you WILL get thru this! now give 'em hell & get back here ASAP! best of luck babe!! ...........2late
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Jim R
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Re: Leaving things in good hands!
« Reply #7 on: Oct 21st, 2002, 7:54pm » |
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Lady Elaine,
So sorry to hear of your cancer spreading. My dad had kidney cancer and the docs gave him 6 months - he lived for 4 years and it was nothing to do with what the docs were doing for him, becasue they were doing nothing at all. He used psychopictography, which is basically visualizing his killer T cells attacking cancer cells - religiously done every day in a meditation period. He also used color therapy - his favorite colors - looking at the for periods of time and imagining them for equal periods of time. He used humor and laughter becasue they strengthen the immune system...basically a "positive mental attitude, becasue negative emotions can take such a toll of the body when it's stressed already.
His cancer, too, had spread to his bones and liver, but he got himself off dilaudid - a powerful narcotic, simply because he didn't want to be addicted to it ! All this as his cancer was inflicting incredible pain...he was quite a guy ,as I believe you are quite a lady - and a fighter. Do your best Elaine, as I know you will, and KNOW there are people who are rooting for you to the nth degree.
Elaine, every possible positive thought in my body and soul are directed towards you for use in fighting this.
My best,
Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
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Episodic Clusterhead since 1978
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jonny
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Re: Leaving things in good hands!
« Reply #8 on: Oct 21st, 2002, 8:14pm » |
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E,
Do you have the balls to tell me your going somewhere?
I didnt think so.
Ya hear me?.........I hear me!!!!
..............................jonny
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Jackie
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Re: Leaving things in good hands!
« Reply #9 on: Oct 21st, 2002, 8:28pm » |
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Elaine,
"You Got Mail"
But you probably don't even need to open it. We know each other pretty well by now and you already know what it says...
I love you my friend,
Jackie
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Edna
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Re: Leaving things in good hands!
« Reply #10 on: Oct 21st, 2002, 11:44pm » |
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All my best already headed you way Elaine. Check your mail dear.
Luv ya,
EDNA
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The mad viking
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Re: Leaving things in good hands!
« Reply #11 on: Oct 22nd, 2002, 1:03am » |
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All my best already headed you way Elaine.
Love you my friend
Svenn
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Always Look on The Bright Side of Life
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Riccardo
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Re: Leaving things in good hands!
« Reply #12 on: Oct 22nd, 2002, 2:13am » |
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I love you, My Lady..... and I think YOU will hear my "I love you!" for ages.....
You are a great fighter, and you'll continue to be for all the time (and I think that's huge!) God will leave you here with us.
Ciao, My Lady
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Riccardo OUCH-Italia
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nancyc
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Re: Leaving things in good hands!
« Reply #13 on: Oct 22nd, 2002, 11:48am » |
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E, you are in my thoughts and prayers...keep up the good fight and know God is in control...smiles, nancyc ps i may be coming to Atlanta soon to see my grandson...would love to have coffee with you so I can give you a big hug...
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Ree
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Re: Leaving things in good hands!
« Reply #14 on: Oct 22nd, 2002, 4:43pm » |
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I usually dont have a hard time posting... the words usually flow and I feel confindent that I have maybe helped with my words in some small way... to you Elaine I am at a loss for words... You will be missed...
You have so much strength I am so envious of you at times. With everything you go through you take the time to make others feel so special... and help your daughter bring up her son when you should be taking care of yourself alone. You are an inspiration and a hero to so many here... I Love you Lanie... if you need me Im here... I'll be waiting when ya get back... count on it...~~~ Ree
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StanTheMan
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Re: Leaving things in good hands!
« Reply #15 on: Oct 23rd, 2002, 12:03pm » |
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Elaine,
Hugs and prayers ...
Although I don't really know you or have met you, I truly admire your courage, your straight-forward manner of tackling various topics here, and your kindness.
Come back and visit if you can.
Blessings to you and your family!
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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NotH20
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Re: Leaving things in good hands!
« Reply #16 on: Oct 23rd, 2002, 3:03pm » |
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Elaine - I'm just getting back to the MB after being gone for a little bit and you're leaving ???
When you feel up to it - drop me a note. I'm game for another good ole BBQ dinner.  Any time - you name it - I'll even come by and pick you up.
Keep your chin up lady - you are such a fighter....
Love, Mia
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Lori
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Re: Leaving things in good hands!
« Reply #17 on: Oct 23rd, 2002, 11:46pm » |
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Elaine, you'll be in my prayers. God Bless You and your family and may the Lord cover you all with His peace.
Blessings,
Lori
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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BobG
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Re: Leaving things in good hands!
« Reply #18 on: Oct 24th, 2002, 12:21am » |
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Lady Elaine,
From our home to yours,
well wishes and prayers for you.
Please keep in touch.
Robert, Renon and Zachery
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Stay stressed. Never relax. Never sleep. Ever.
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Elaine
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I just wanted to say hi!!!
« Reply #19 on: Oct 24th, 2002, 2:27am » |
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Thanks for all the good wishes. I told ya'll I would be around just not as much. I can't stand it without my CH friends. I started my chemo Monday going good so far. I still don't have my times yet for Radation on this leg .
Its about to drive me nuts. The pain in my leg keeps me from sleeping good.
I miss ya guys hugs
E
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Riccardo
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Re: Leaving things in good hands!
« Reply #20 on: Oct 24th, 2002, 2:32am » |
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I'm sorry for the pain, My Lady.
Very few people knows that chemo is painful (over the other problems...) I, for myself learnt this from Piera, before I didn't know.
Love and kisses and hugs (not so "hard"..... otherwise they're painful....)
Ciao My Lady
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Riccardo OUCH-Italia
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Elaine
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Re: Leaving things in good hands!
« Reply #21 on: Oct 24th, 2002, 2:54am » |
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Thank you I am not having the same kind as Piera, The last chemo was but this one is a pill. I took it before. It worked at least I think it did it stopped the growth. Its not FDA approved yet. Its a clinical trail. I had to really fight to get it again. But my doctors fought for me. The only real side effect to this is being tired. They keep taking blood to check blood cells. I am doing ok. I think when they do the radiations the pain in my leg will stop I hope anyway.
Hey BTW would you send me Pieras email address Deveny was on my computer and some how she wiped out my email address. I been wanting to write her. Piera is the person that gave me a reason to seek more help. Talking to her and being with her at the convention did me good.
Love ya and I miss the Itilian crew !
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| « Last Edit: Oct 24th, 2002, 2:56am by Elaine » |
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