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workinattheY
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exercise?
« on: Oct 14th, 2002, 4:48pm »
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Has anyone else found that regular exercise helps keep the cycles from returning? I have suffered from CHs for over twenty years. I went through all the different docs and treatments, glasses, prednisone, cafergot etc... When I began working out a few years ago the intensity and duration of the cycles began to shorten. I also found a great Dr. who has worked with me but he believes as I do that exercise really helps. So, has anyone else heard of this?
 
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echo
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Re: exercise?
« Reply #1 on: Oct 14th, 2002, 4:51pm »
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I have heard of this before.  Seems that an increase in oxgenated blood caused by exercise and subsequent hard breathing can help ease the pain.  This is probably the reason that O2 tanks help many of the CH sufferers.
I personally only run to the store for cigarettes.
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Re: exercise?
« Reply #2 on: Oct 14th, 2002, 5:20pm »
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It's all guess work right? So thats the best I can do.
 Cadio I think falls into the plus dept overall in that it keeps the blood flowing nice and even like.
 Weight training I've got mixed reviews b/c when I'm out of a cycle all seems fine and any kind of exercise helps in my opinion.
 But, I find with the weights if I am training during a cycle I get hit HARD everytime I finish and almost always within minutes.
 And it seems the heavier the weights, the more intense the training session the harder the beast strikes.
 It's as if intensity feeds off intensity.
 Just my experience for what it's worth.
...Andrew
 
 PS    I do find the better physical shape I'm in the better to fight the beast, esp mentally.
 
 
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2late
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Re: exercise?
« Reply #3 on: Oct 14th, 2002, 6:03pm »
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i work out  3 times a week but only out of cycle, it's almost a trigger for me, weight training only, i can't speak for other exercises, i can't get into any other exercise except for the 12 ounce curl ;D                     ..........2late
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Ueli
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Re: exercise?
« Reply #4 on: Oct 14th, 2002, 8:10pm »
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Oh my goodness,
It looks like nobody is reading the post they reply too.
 
The question from workinattheY was about the influence of regular exercise on the cycle. For those that didn't do their homework: the cycle is that period of time, measured in weeks, months or years, iWhere the cluster attacks occur on a daily basis. The time between cycles, when for months or years there are no cluster attacks is called remission (I wish I knew the feeling of this Sad).
 
It's a tricky question what does influence the length (and intensity) of a cycle or the duration of remission and what does not. There is no way to check what otherwise would have been. One can only make an educated guess, by comparing to preceding cycles. But keep in mind that clusters are changing over time, getting worse at first and easing up with age (considering this, I still must be young ;D).
 
What echo is talking about is, that some people, but by no means all, can quickly abort a starting attack by vigorous exercise.  
 
What LTBullitt mentions has to do with relaxing. Many say that coming down from a heavy stress (exercise by example) can trigger an attack.
 
The brain is our most important organ, it takes top priority on all resources. So, as long someone is still kicking his brain gets the required amount of oxygen. Physical state has probably not much influence. Therefore, I tend to discount workinattheY's theory, otherwise I had to take up sports ;D.
 
PFNADs
Ueli
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Charlie
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135447360 135447360   mondocharlie   mondocharlie
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Re: exercise?
« Reply #5 on: Oct 14th, 2002, 11:00pm »
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We really hate you Ueli  Smiley Wink Cheesy ;D Shocked Cool
 
(gotta wait for the smilies)
 
Charlie  Cool
« Last Edit: Oct 14th, 2002, 11:02pm by Charlie » IP Logged

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Re: exercise?
« Reply #6 on: Oct 15th, 2002, 10:48am »
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I'm sending U some really sexy gym shorts ;D ;D ;D
 
Don't mind me LOL, I'M IN REMISSION!  LOL Bahahaha! ;D
 
 Kiss
 
The Stinka Cheesy
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Mark C
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Re: exercise?
« Reply #7 on: Oct 15th, 2002, 11:29am »
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Natural History
 
 
"There is a paucity of literature on the long-term prognosis of CH, but the available evidence suggests it is a lifelong disorder in most patients. In one study, about one-tenth of patients with ECH evolved into CCH, whereas one-third of patients with CCH transformed into ECH. An encouraging piece of information for CH sufferers is that a substantial proportion of them can expect to develop longer remission periods as they age."
 
I copied this from the OUCH site. I am sure regular exercise has a positive effect not only on Clusterheads but Earthlings as well, however, as we age, according to the good Doctors work attached, we may expect to see some relief from the frequency of CH as well as possible changes in the style of attacks.
Later,
Mark  
 
 
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LTBullitt
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Re: exercise?
« Reply #8 on: Oct 15th, 2002, 3:59pm »
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on Oct 14th, 2002, 8:10pm, Ueli wrote:
Oh my goodness,
It looks like nobody is reading the post they reply too.
 
The question from workinattheY was about the influence of regular exercise on the cycle. For those that didn't do their homework: the cycle is that period of time, measured in weeks, months or years, iWhere the cluster attacks occur on a daily basis. The time between cycles, when for months or years there are no cluster attacks is called remission (I wish I knew the feeling of this Sad).
 
It's a tricky question what does influence the length (and intensity) of a cycle or the duration of remission and what does not. There is no way to check what otherwise would have been. One can only make an educated guess, by comparing to preceding cycles. But keep in mind that clusters are changing over time, getting worse at first and easing up with age (considering this, I still must be young ;D).
 
What echo is talking about is, that some people, but by no means all, can quickly abort a starting attack by vigorous exercise.  
 
What LTBullitt mentions has to do with relaxing. Many say that coming down from a heavy stress (exercise by example) can trigger an attack.
 
The brain is our most important organ, it takes top priority on all resources. So, as long someone is still kicking his brain gets the required amount of oxygen. Physical state has probably not much influence. Therefore, I tend to discount workinattheY's theory, otherwise I had to take up sports ;D.
 
PFNADs
Ueli

 Hey, I never once claimed here or anywhere else that I could read.
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Re: exercise?
« Reply #9 on: Oct 15th, 2002, 8:12pm »
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Exercise is one of the best treatments there is for depression, so my take would be that if you can do it without it triggering attacks, go for it, at least the cardio-type stuff.
Some people are able to hump iron, some aren't. I tried it a few years ago and popped a vessel in my back (subdural hematoma). Tongue  Took eight months to recover and was the ONLY thing I've ever experienced more painful than CH.
 
Mike
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Re: exercise?
« Reply #10 on: Oct 15th, 2002, 9:25pm »
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I am a newcomer to this website and I am sad to see so many others suffering this nightmare.  I have had headaches off and on for many years and always tried to bury them in painkillers.  It was not until recently, at the beckoning of my wife, that I went to see a doctor.  The visit to the emergeny room and a shot of demerol opened my eyes to the fact that I may have a medical condition beyond a normal headache.  I have been weight training for about 15 years and always prided myself on the ability to take a great amount of pain.  This 'cluster headache' is beyond anything I have ever experienced in the gym.  Just so that this response does not seem completey disconnected from the original post, I do think that a regular workout routine can do nothing by help your overall healh.  I look forward to participating on this board.  
« Last Edit: Oct 15th, 2002, 9:27pm by Mighty_Rooster » IP Logged
Qigong
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Re: exercise? It works for me
« Reply #11 on: Oct 15th, 2002, 11:56pm »
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for me I have to get up and do a slow jog for about 5 minutes when the beast calls me from my sleep. I've gotten cluster headache attacks when I was training for marathons, or playing international rugby...so for me being in top physical shape did not keep the beast away....but some people are different
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chris_the_chemist
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Re: exercise?
« Reply #12 on: Oct 16th, 2002, 1:51am »
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Can't say that regular excercise prevents a cluster from appearing, but I do find that slamming through push-ups when I've got a head-ripper helps quite a bit.  It's also in line with several other abortive therapies which seek to decrease effective vascularization, or bolster blood pressure.
 
~ Chris
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Re: exercise?
« Reply #13 on: Oct 16th, 2002, 10:03am »
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This is what I think, based on ...not much, but what seems like common sense to me:
 
I think that our "dance" is the body's way of telling us what it needs.  When we exercise moderately,  something happens or is released  that allows our brains to absorb more oxygen, which seems to be what is needed to stop the pain (in most cases I think)  But, when we do extremely strenuous exercise,  the vascular dialation is increased and the rather sudden decrease when we stop the exercise contributes to the nerve irritation.
 
I know, that last part is iffy, but it seems to me that part of our pain is due to inflammation of the nerves and dialation of the vessels around the nerves which press on or further irritate the nerves.
 
I may be WAY off base here, but with my limited knowledge of the various structures of the human brain, it's the best I can do.  LOL  But it just SEEMS right.  
 
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Re: exercise?
« Reply #14 on: Oct 16th, 2002, 12:42pm »
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Hey Sherry,
 
  I think you may be right about the nerve irritation part.  
I've noticed as the cycle progresses it seems like the CH's are more intense.... as if the nerve is so irritated it can't handle any more abuse.  Wink
    
 
   Don't know what this has to do with exercise but, ..... oh well. Smiley
« Last Edit: Oct 16th, 2002, 12:44pm by sueellen83 » IP Logged
LTBullitt
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Re: exercise?
« Reply #15 on: Oct 16th, 2002, 1:44pm »
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I have to work out tonight and I am in a cycle and it will trigger a cluster.
 So when I come whinning on here afterwards looking for sympathy, be sure to give me the big "FUCK YOU!!!!"
   Smiley
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Re: exercise?
« Reply #16 on: Oct 16th, 2002, 2:15pm »
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Da Beast don't care whether you exercise or not. When he wants to blast ya, he will. I have a healthy bod, a slim, trim, arthritically flexible mean machine with a hyperthalamus that has the demon. Phooey.
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Re: exercise?
« Reply #17 on: Oct 16th, 2002, 9:28pm »
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Lots of good stuff here. Over the life of this board there have been many posts that strenuous, even violent exercise, will help shorten our attacks. It is not a preventative.  I like to think that excercise  reinforces my belief in a vascular remedy.  
 
Still, I don't care if you paint youself blue and worship an effigy of Lawrence Welk, so long as it helps.......well that would be wierd.....Guy Lombardo then?  Roll Eyes
 
Weird old Charlie
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Re: exercise?
« Reply #18 on: Oct 18th, 2002, 8:29am »
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During my last cycle, I noticed that exercise during the initial onset of an attack seemed to help lessen the severity of it -- not always, but most of the time.
 
Since it's already well established that exercise is good for your heart and your body as a whole, I say that CH'er should be encouraged to exercise regularly.  
Let's face it: since we must deal with a rather debilitating disorder, we need to give our bodies all the help we can.  Proper diet, exercise, quitting smoking, etc.  is all part of the equation.  
 
That's my 2 cents!  PFDAN to all...
 
StanTheMan  Grin
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Re: exercise?
« Reply #19 on: Oct 18th, 2002, 11:05am »
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From Dr. Goadsby in the OUCH Library:
 
"Alcohol, nitroglycerine, exercise and elevated environmental temperature are recognised precipitants of acute cluster attacks."
 
 
Note that he is saying that exercise, while in cycle, may trigger an attack.  It has also been noted that, for a number of people, a couple of minutes of streneous exercise when they feel an attack starting has aborted the attack.  How does this work?  Don't know but could guess that blood is directed to the muscles doing the exercise and thereby reduces the dialation of the cranial vessels.  Also the deep breathing accompaning exercise may oxygenate the blood enough to cause some constriction.
 
I'm guessing it's the later as I remember a post from a guy who could abort a building attack by hyperventillating, almost to the point of passing out.
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Re: exercise?
« Reply #20 on: Oct 18th, 2002, 11:11am »
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Stan... Why should I help my body?  What has it ever done for me?  Tongue
 
PFDAN................................... Drk^Angel
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Re: exercise?
« Reply #21 on: Oct 18th, 2002, 1:23pm »
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Hi Drk!
 
I simply believe in doing what I can (within reason, of course) to help this "old" body of mine deal with CH's.  
If there's something I can do that can potentially lessen the severity of a beast visitation, I'm gonna do it, or at least give it a try!
Sorry if I touched on a nerve there Drk.  I hate having to deal with the beast just as much as the next guy, but I'm trying to be positive about it, not bitter.
 
Kind regards to you and everyone.  PFDAN.
 
StanTheMan  
 
 Smiley
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Re: exercise?
« Reply #22 on: Oct 18th, 2002, 2:42pm »
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'twas a joke Stan... That was the reason for the Tongue... LOL   ;D
 
PFDAN............................. Drk^Angel
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Re: exercise?
« Reply #23 on: Oct 18th, 2002, 2:56pm »
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Okee dokey!  Thanks!  
 I thought maybe my comment about quitting smoking might have stepped on some toes . . .
or 'sumptin like dat!   ;D
 
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Re: exercise?
« Reply #24 on: Oct 18th, 2002, 3:02pm »
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Nah... I stopped smoking 3 weeks ago.  Although now you'll prolly get Charlie preachin' again... LOL   ;D
 
PFDAN................................. Drk^Angel
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