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Topic: Update on Hubby and me (Read 275 times) |
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NancyMcFree
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Well, thought I would give you guys an update on me and mine.
My hubby started treatment for the HepC three weeks ago Friday. He is having a pretty rough time of it; but they say if you can get past the first month it gets easier. I sure hope so. I have literally had to carry him to bed on a few occasions since he started treatment because he is too weak from the meds to get up the steps. It's really hard watching someone you love fight the way he has to fight. Lots of people decide not to do treatment because of the side effects ; too bad my hubby has no choice. He is only one step away from going on the liver transplant list. This has to work. The side affects my husband has had from these meds make my cluster headaches seem like a walk in the park. Sorry guys, but its true. Perhaps I only feel that way because I can't do anything to make my hubby feel better !!!!
I have to say that while I am faced with trying to keep him straight (one of the sides of the meds is brain fog), I have been very lucky in the cluster head category. I only get headaches on the nights where he finally sleeps. When he doesn't have the muscle spasms, insomnia, pukes, or the other side effect of the meds.
I forget who gave me the advice when I first came to the board ;stay stressed and don't sleep; but whoever said that, they were right !!!!!!! If you don't sleep you sure do get less headaches. I am still trying to put to an end this first cycle it' been 3 months now. With the Imitrex and O2 I have had great results. I can smash a headache to its knees. Not like before I had anything and was doing jumping jacks and hot copresses/showers to get rid of them. Praise be the person who invented Imitrex injections !!!!!!
I did finally get approved for intermitent leave due to the cluster headaches at work. It would have helped a lot on the job as I was having trouble getting up in the morning after battling the beast all night. Unfortunately, my company was sold last week, and I will not have a job once the merger is complete.
Life is funny ;. You are faced with many challenges along the way. I got the clusters, hubby got the HepC, and I lost my job. Ok, so what do I do with that ?
1. I thank God that I have Imitrex as I can now share it with hubby (cause yes, another side is headaches)
2. I thank God that I might have more time to take care of hubby since I won' have to go to work every day.
3. I thank God that I don't have to put poison in my body and worry about living until tomorrow cause there is a tomorrow with clusters.
4. And I thank DJ & God for this board, because without it I would be lost for sure.
If I have acted like an ass, it is because I am one. I have had no real nights sleep in more than three months. I am hanging by my own very thin thread .....just try and put up with me. For those of you that want to flame me .... do me a favor .... save it until I am feeling more "up" to it.
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| « Last Edit: Sep 30th, 2002, 11:43pm by NancyMcFree » |
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Ted
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I love YaBB 1G - SP1!
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Re: Update on Hubby and me
« Reply #1 on: Sep 30th, 2002, 11:46pm » |
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Nancy, please read the thread on self-pity. I do feel bad for you with all that you're dealing with because that's quite a heavy load. But read that thread anyway. It may be beneficial to you.
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Elaine
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Re: Update on Hubby and me
« Reply #2 on: Oct 1st, 2002, 12:53am » |
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My Good Lord Nancy, Give it a break! As Jonny would say STFU !
Get over yourself.
Your giving me a headache imitrex won't kill! Damn !
I know I have no heart ...I am uncaring and all!!! No one has to email me and tell me.
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Ted
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Re: Update on Hubby and me
« Reply #3 on: Oct 1st, 2002, 1:05am » |
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What she said! What she said!
God DAMN, that was good! I'll give you a brand new shiny quarter if I can email you what a couple of jerks we are.
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Elaine
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Re: Update on Hubby and me
« Reply #4 on: Oct 1st, 2002, 1:14am » |
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I need the money LOL 
Jerks thats a nicer word than what was in my email today. Would you believe I got one with Bitch as the subject ROTFLMAO!!!
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Riccardo
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Serial kisser... and Stetsons lover...
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Re: Update on Hubby and me
« Reply #5 on: Oct 1st, 2002, 1:17am » |
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Only 3 words, Nancy:
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Riccardo OUCH-Italia
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Charlie
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Re: Update on Hubby and me
« Reply #6 on: Oct 1st, 2002, 1:57am » |
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Self pity is fine with me. I do it all the time. I'm alone.
I'm glad you have a place to vent. I do it to my friends which is probably why they haven't emailed me in some time.
That's a lot of work and responsibility, Nancy and all I can say is: Keep doing whatever it is you're doing.
I'm here for you.
Charlie
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| « Last Edit: Oct 1st, 2002, 1:59am by Charlie » |
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There is nothing more satisfying than being shot at without result---Winston Churchill
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sailpappy
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Re: Update on Hubby and me
« Reply #7 on: Oct 1st, 2002, 9:35am » |
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;D ;D Nancy,
I know just wha your going through, at least your Hubby is doing the Peg and it's just 1 shot a week, I did a year at a shot every other day, we called it Malaria night, I lost #100 pounds of weight, all strength,but at least my hair didn't fall out like most that started the treatment in my group.
That phone call from you the other day was like a shot of adrenalen for my spirit! You have a long hard way to go yet with this, I will be here as long as I can hold on to hope, write if you need me or send me your number and i'LL CALL YOU!
I'm sorry I was so ill the day you called that I am not sure if I even thanked you! Blessing is what it was! Pappy
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maria
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Re: Update on Hubby and me
« Reply #8 on: Oct 1st, 2002, 9:39am » |
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Nancy, Hang in there! You know that old saying "when the going gets tough, the tough get going." Maria
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nancyc
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Re: Update on Hubby and me
« Reply #9 on: Oct 1st, 2002, 10:19am » |
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Nancy, sometimes all we can do is take one day at a time....my prayers go up for you.  nancyc
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Cathi
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Re: Update on Hubby and me
« Reply #10 on: Oct 1st, 2002, 10:33am » |
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Nancy-
Something must be going okay- look at all the people you've heard from......and you're able to post- now, SEE?
More good thoughts, more well-wishes...and I've still got my fingers crossed- keep giving us updates when you can- and I hope your husband has a good day today too.....take care of yourselves!
Cathi
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karen j
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Re: Update on Hubby and me
« Reply #11 on: Oct 1st, 2002, 10:57am » |
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Hang in there Nancy, you are a very strong person to deal with all that has been handed to you. I will keep you and your husband in my thoughts and prayers
Karen
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2late
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Re: Update on Hubby and me
« Reply #12 on: Oct 1st, 2002, 11:12am » |
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nanc, this is gonna workout for you & your husband. your an amazing women & obviously he's in the best possible hands, all the best to both of you!!!! ..........2late
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BobG
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Re: Update on Hubby and me
« Reply #13 on: Oct 1st, 2002, 1:56pm » |
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Nancy...............
Hang in there, you'll make it through.
I've said it at least a hundred times. Stay stressed. Never relax. Never sleep. Ever.
I remember talking to you in the middle of the night when you first came here. I probably said that to you.
Stay awake. Don't sleep for at least 2 more weeks then see how you feel.
You'll come back here and say "Thanks Bob. I did feel so much better 2 weeks ago".
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Stay stressed. Never relax. Never sleep. Ever.
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Jim R
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Re: Update on Hubby and me
« Reply #14 on: Oct 1st, 2002, 7:53pm » |
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Nancy,
Only good feelings and wishes being sent your way and prayers to above. Remember, God never gives us more than we can handle... Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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NancyMcFree
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Re: Update on Hubby and me
« Reply #15 on: Oct 1st, 2002, 8:06pm » |
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Thanks guys. Hanging in. The days just seem to get longer and longer. Guess if I would sleep more they would get shorter and shorter .......... mmmmmm, might have to try that !!!!!! NOT !!!!!!!!!
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Opus
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Re: Update on Hubby and me
« Reply #16 on: Oct 1st, 2002, 8:24pm » |
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Hang in there Nancy, Your post didn't sound like someone needing pity but of a survivor. If you can survive this group you can handle anything. God doesn't give us more than we can handle but it sure seems like it sometimes. Remember what Job went though, losing everything but his nagging wife. The trick is to limit sleep maybe 5 or 6 hr.s if you wake up with a CH, stress can really stop one too. I will be praying for you.
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