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Topic: It may not be forever (Read 526 times) |
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Jon Smith
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This is just a message of sympathy and perhaps a glimmer of hope for all of you suffering. I had my first cluster at the age of 19 and appalling bouts thereafter every few months until I was 42. Nothing worked (I was up to the eyeballs in belladonna at one stage, not a good idea I've discovered since but in those days nobody really took this very seriously). You could see the holes in the walls where I'd banged my head during a 3am I-cant-stand-this-any-longer attack. Then... one worst-ever bout lasting two months, and they stopped. For good (my fingers are crossed still). I'm now 56 and daily grateful for it being over. The cessation coincided with a massive stress period of my life (my wife died suddenly) which may have had something to do with it (I dont recommend anything so drastic). The only residue is that I now regularly get what seem to be the first warnings of an attack - dazzle vision, faint nausea - but this wears off after around 20 minutes.
So it may not be forever, folks. I hope you're one day as lucky as I've been and don't think nobody knows what you're going through. We do.
Excellent site, wish it had been around 37 years ago.
Jon
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jonny
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Re: It may not be forever
« Reply #1 on: Sep 28th, 2002, 8:04am » |
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Good for you, Jon!!
Sorry about your wife but im glad the beast has let up on you.
................................jonny(jon)
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ShariRae
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Re: It may not be forever
« Reply #2 on: Sep 28th, 2002, 8:31am » |
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Jon,
I am sorry about your wife, but am glad for you that you are pain free. I the the hope that the beast will one day leave forever is what keeps us going. Thank You for sharing your story with us & continued PFDAN..
Huggsss
Shari
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Only two defining forces have ever offered to die for you,
Jesus Christ and the American Soldier.
One died for your soul, the other for your freedom.
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Charlie
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Re: It may not be forever
« Reply #3 on: Sep 28th, 2002, 9:32pm » |
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Well Jon:
I'm 56 too and I haven't been hit in 11 years. Oddly they disappeared during the most stressful time of my life. What's going on here? Interesting and I hope your 11 plus years is beginning.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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echo
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Chronic and still alive --- I Win!
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Re: It may not be forever
« Reply #4 on: Sep 30th, 2002, 9:32am » |
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Jon,
Sorry to read about the lose of your wife. Nice to hear that you are PF. Hope this remains this way for a very long time. Agree -- this is a great place.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Melissa
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Re: It may not be forever
« Reply #5 on: Sep 30th, 2002, 9:43am » |
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Jon,
My condolences about your wife, and I am very happy for you that you're PF. I am going on 2+ years of PF time myself. I too, had a traumatic time in my life last year, when my Mom passed away. I'm not sure if that has anything to do with why I haven't had a cycle or not, but I'm thinking it just might...
Take care,
 Mel
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Marc
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Re: It may not be forever
« Reply #6 on: Sep 30th, 2002, 10:21am » |
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Jon,
Are you saying that your last Cluster was back when you were 42? If I'm reading that right, that's really great to have 14 years behind you!
The stress connection has always interested me, because I get hit more when I'm relaxed. I was totally pain free for 6 months after my house burned to the ground a few years ago - but they came back with a vengeance.
Good luck!
Marc
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BobG
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Re: It may not be forever
« Reply #7 on: Sep 30th, 2002, 11:12am » |
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Jon,
Very sorry to learn about your wife.
I've been a believer in the stress= less headaches.
Stay stressed. Never relax. Never sleep, ever.
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Stay stressed. Never relax. Never sleep. Ever.
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