Author |
Topic: Hey-oh... new guy here... (Read 651 times) |
|
Big Dan
CH.com Alumnus
New Board Hall of Famer
SMASH BRAIN!
  
Gender: 
Posts: 1513
|
 |
Hey-oh... new guy here...
« on: Sep 26th, 2002, 10:02am » |
 Quote  Modify
|
Just want to say hello to everyone, and give some thanks to the creators of this site. I'd been wondering if anyone else out there suffered the same way I do. I'm glad to know I'm alone, and at the same time, am not.
I've never had one below a 10 on the kip... I'm 22 now and can remember having migranes as a child, and wish I could have them back instead. Their always on the left side, and always at the temple. I'd describe it as a rusty dagger being drivin into my scull with a sledge hammer, and someone occasionally comming along and tapping it in farther, just for a little extra spice.
Living alone doesn't help either. I usually have to call someone to rush me to the ER, where all the staff is walking around with their thumbs up their a**es, wondering why someone came to the ER for a little headache. I'd been given morphine IVs on several occasions, 3 doses one night, and still didn't get it under a 10....
|
|
 IP Logged |
Not going anywhere for a while?...
... Grab a Snickers, Fatass.
|
|
|
StanTheMan
New Board Veteran
"I can do all things through Christ..."
Gender:
Posts: 165
|
|
Re: Hey-oh... new guy here...
« Reply #1 on: Sep 26th, 2002, 10:51am » |
Quote Modify
|
Hi Dan!
Sorry you're suffering, but glad you found us. Lots of good information on this site.
Since you've dealt with "the Beast" for some time, I assume you've been seen by a specialist (neurologist).
There are a number of medications that DO work, and a specialist can certainly help you with that.
Again, welcome...hang in there, and God bless.
StanTheMan 
|
|
IP Logged |
"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
|
|
|
Big Dan
CH.com Alumnus
New Board Hall of Famer
SMASH BRAIN!
Gender:
Posts: 1513
|
|
Re: Hey-oh... new guy here...
« Reply #2 on: Sep 26th, 2002, 10:58am » |
Quote Modify
|
Actually, I was given some migranol spray... it helps.. but only if it's within reach..
I tend to get them seasonally, but I skipped a year in 2000. I thought that I'd never get anymore, but it struck again in '01. Now I'm just sitting and waiting to see if I get some more this year.
Mine never really go away when I'm having a cluster. I can tell that I've got one, it's just so faint that it doesn't really hurt... it just kinda hangs out and whispers to me to let me know it's gunna sucker punch me when I'm not looking.
Come to think of it... I'm getting a pressure in my temple now... wonder if it's gunna hit me...
|
|
IP Logged |
Not going anywhere for a while?...
... Grab a Snickers, Fatass.
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Hey-oh... new guy here...
« Reply #3 on: Sep 26th, 2002, 11:11am » |
Quote Modify
|
Sorry to hear you're getting hit so hard. Hope the cycle is a short one. Welcome to the board.
|
|
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
2late
New Board Hall of Famer
Ride Free..Pain Free
Gender:
Posts: 1190
|
|
Re: Hey-oh... new guy here...
« Reply #4 on: Sep 26th, 2002, 12:01pm » |
Quote Modify
|
welcome to the board Dan! a good neuro & med program is key in dealin' with this shit. good luck! .............2late
|
|
IP Logged |
|
|
|
cbolony
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
|
|
Re: Hey-oh... new guy here...
« Reply #5 on: Sep 26th, 2002, 3:54pm » |
Quote Modify
|
Dan try getting imitrex injection from your doctor.
When i get ch i use the imitrex injection and 10 min.
later the ch is gone.I carry them on me all the time.
|
|
IP Logged |
|
|
|
Big Dan
CH.com Alumnus
New Board Hall of Famer
SMASH BRAIN!
Gender:
Posts: 1513
|
|
Re: Hey-oh... new guy here...
« Reply #6 on: Sep 26th, 2002, 4:00pm » |
Quote Modify
|
Yeah.. I tried the Imitrex... it didn't even phase it.
The Migranol works wonders for me... but I'm in construction, and being on the road alot, I can't always have it with me if I get a CH. Plus you have to keep it at a steady temperature, so keeping some in the glove box is a "no-no"....
I'm just hoping that I have more "off" years than "on" years...
I couldn't even imagine what it must be like for some of you that have to deal with these things year in and year out... hopefully I won't have to worry about that. Hopefully.
|
|
IP Logged |
Not going anywhere for a while?...
... Grab a Snickers, Fatass.
|
|
|
Drk^Angel
Guest
|
|
Re: Hey-oh... new guy here...
« Reply #7 on: Sep 26th, 2002, 6:32pm » |
Quote Modify
 Remove
|
Welcome to the board! Sorry that the beast is slicin' your cranium open with a rusty, white hot butter knife, and fillin' the wounds with a mixture of salt and gasoline. Welcome to the family!
PFDAN...................... Drk^Angel
|
|
IP Logged |
|
|
|
Jabeen
New Board Veteran
What doesn't kill you, makes you stronger.
Gender: 
Posts: 208
|
|
Re: Hey-oh... new guy here...
« Reply #8 on: Sep 26th, 2002, 7:06pm » |
Quote Modify
|
Hi! I'm pretty new myself-it really helps to have people that understand to commiserate with. I agree with the others- a good neuro is a big help and keep trying meds until you hopefully get lucky-
Jabeen
|
|
IP Logged |
OUCH member since 9/5/02
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: Hey-oh... new guy here...
« Reply #9 on: Sep 27th, 2002, 3:30am » |
Quote Modify
|
Welcome to the asylum. Sorry this horror has you in its grip. If you continue reading this site, you will likely find things here that will help you in some fashion.
Stick around and let us know how you're doing. We need the new blood.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
NancyMcFree
Guest
|
|
Re: Hey-oh... new guy here...
« Reply #10 on: Sep 27th, 2002, 7:25am » |
Quote Modify
Remove
|
Welcome to the board. Lots of good info here and lots of people to support you.
|
|
IP Logged |
|
|
|
chris_weav
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
|
|
Re: Hey-oh... new guy here...
« Reply #11 on: Sep 27th, 2002, 11:42am » |
Quote Modify
|
hi
im new here too. Ive read the info on the boards but I never interacted before. I think maybe I need a little support from someone who knows what I go through.Last group of headaches was so bad. My neuro made me worse by pushing Topamax on me, saying he didnt understand why it wasnt working and upping the dose. I think it made me worse. Ive never had such long lasting pain before. 7-8 hour headaches, that never went away completly. I said my goodbyes to my children, and husband and swallowed about 10 percocets that my husband had for his back , I ran in and made myself throw them up, and wound up in the hospital for three days after I told my neuro what happened. I have never sunk so low. all I could think about was killing myself, I am telling all clusterheads to watch out for Topamax, I think that drug made my head feel worse and it made me even more depressed than I normally am when I am having headaches. Now I am on a light steroid, and light dose of Lithium. I dont care about the side affects. I feel better for the time being, but I feeel they are not far away.
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
Gender:
Posts: 14968
|
|
Re: Hey-oh... new guy here...
« Reply #12 on: Sep 27th, 2002, 10:13pm » |
Quote Modify
|
Glad you decided to come here. We all know what this thing does to ones outlook. You made the right choice and your family needs you. It's a good idea to live for all those pain free days as well.
Topamax is an anti-epilepsy drug that can be very effective. It's a little tricky for some but it won't hurt you. This drug takes a little time to reach a therapeutic level and also should be tapered off slowly should it not be helpful.
Keep in touch and let us know how we can help. There are good ideas here. How are you doing?
As it says below my post: When you come to the end of your rope, tie a knot in it and hang on.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss