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Topic: Things getting brighter (I think) (Read 509 times) |
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StanTheMan
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"I can do all things through Christ..."
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Things getting brighter (I think)
« on: Sep 25th, 2002, 1:04pm » |
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Maybe I should say this too loudly, but I *think* remission is nearing for me. (After 5 weeks). Went 2 days without an attack and only a couple of shadows. The beast visited me late last night--took my Maxalt -- about 5min. after it started. The pain only went to about a Kipp 3 or 4 and lasted about 20 min.
So hopefully I'm moving in the right direction.
Went to the neuro last week. At this point he's going to keep me on the same meds when I have my cycles. I expressed an interest in O2 next 'go round and he's willing. He mentioned that he personally hasn't seen a lot of sucess with O2, but certainly isn't opposed to giving it a try.
Also had a MRI and an MRA done -- will get the results when I see the neuro tomorrow...
Regards and wishes for PFDAN to all.
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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echo
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Chronic and still alive --- I Win!
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Re: Things getting brighter (I think)
« Reply #1 on: Sep 25th, 2002, 1:08pm » |
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Reads like the dr is willing to work with you. Whenever they are "Willing to give it a try" your already heading in the right direction. Hope you are truly heading towards the end of the dance.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Jim R
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Always question authority....
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Re: Things getting brighter (I think)
« Reply #2 on: Sep 25th, 2002, 3:57pm » |
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Stan,
GREAT for you! I really hope so - I'm having a good spell to and it's fantastic. I usually have 5+ month long cycles and I'm only 2 into this and with my current meds. combo, I'm having luck. Your neuro at least doesn't sound close-minded and arrogant, as so many are. Sounds like you have the elements for success! BEST wishes, bro. Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
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Episodic Clusterhead since 1978
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2late
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Ride Free..Pain Free
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Re: Things getting brighter (I think)
« Reply #3 on: Sep 25th, 2002, 5:57pm » |
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it really make's a difference when you have a good neuro. I had a shitty one so i know. immitrex, 02, verap & neurontin work for me, you'll find what work's for. good luck!! ..........2late
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StanTheMan
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"I can do all things through Christ..."
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Re: Things getting brighter (I think)
« Reply #4 on: Sep 26th, 2002, 9:46am » |
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GREAT NEWS! The neuro looked over my MRI report and saw NOTHING ABNORMAL  !!
(Hey, at least I don't have to worry about my brain exploding or anything wierd like that, right?)
Seriously though, I'm encouraged that he's keeping an open mind about treatment. He suggested possibly looking at Predisone or something like that for the next go round.
Even though I think I'm nearing the end of my cycle, I'm glad he gave me some more Maxalt samples to cover me while I'm out of town next week. Thankful I have a decent doc.
Regards and PFDAN folks!
StanTheMan
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"All the days of the afflicted are bad, but the cheerful heart has a continual feast." - - - - - Proverbs 15:15
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oringkid
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Re: Things getting brighter (I think)
« Reply #5 on: Sep 27th, 2002, 4:55pm » |
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If you are nearing the end, the prednisone could end it early for you. Pred can end a cycle, especially if you are near the end. Pred is good at getting rid of the pain. If you are in the start or middle, it's not so great, but near the end it could really help. Make sure it is a high to low, short duration deal. I don't think that the constant pred is good but when they give you a week to week and a half "high to taper" it really can break the cycle.
Check with your doc and see. It worked for me at the end. If nothing else, it will give you a "holiday" from the pain.
Sherry
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