Author |
Topic: Dan Rather: Topomax on the news tonight (Read 371 times) |
|
Not4Hire
CH.com Alumnus
New Board Hall of Famer
...WAS PF since Oct.'02, but ...oh my...(CBusters)
Gender: 
Posts: 1190
|
 |
Dan Rather: Topomax on the news tonight
« on: Sep 23rd, 2002, 7:49pm » |
 Quote  Modify
|
Did y'all see the Topomax report on CBS?NBC?ABC?...one o' them......said a new therapy for meegrainers...30 million of 'em......is the use of an anti-seizure drug..... pore ol' gal said she was gettin' up to 8 (count 'em ...eight) migraines a MONTH......and now she hasn't had any. I'm sooooo fuckin' glad our brethren are getting this kind of exposure on PrimeTime......not even a mention of clusters......
.....wonder how many of us *in cycle* have kept count how many headaches we had since Thursday.......
|
|
 IP Logged |
Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #1 on: Sep 23rd, 2002, 8:05pm » |
Quote Modify
|
Even not being mentioned is better than no mention at all.
Seems like it would be a good time to e-mail Dan R. and say thanks. After all, our meds come from migrainers.
And a little hint about cluster headaches in his next headache report would be nice.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #2 on: Sep 23rd, 2002, 10:16pm » |
Quote Modify
|
Nice.
Topamax has had mixed reviews here. If I could take it for my seizures, I would. It was the only drug that completely wiped them out. It made me nuts though. What a deal knowing there is a drug that works 100% for me and I can't use it 
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
NancyMcFree
Guest
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #3 on: Sep 24th, 2002, 11:17am » |
Quote Modify
 Remove
|
Didn't see it Not4Hire but appreciate the fact that you are looking out for us clusterheads every time the "meegrainers" make it to the news !!!!!!! Should we all send our emails to Dan ?????
|
|
IP Logged |
|
|
|
Marshall_D
Guest
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #4 on: Sep 24th, 2002, 11:52am » |
Quote Modify
Remove
|
You hit the nail on the head, for me...Charlie. The side effects were not worth the limited success I had with Topamax. At some points, I thought I was dying with that med. But glad to here that poor person who suffers with 8 H/A's per month has relief. She should try 90 to 300 per month. Yeah, their shorter. But they definitely make up in pain what they lack in time...
|
|
IP Logged |
|
|
|
catlind
CH.com Alumnus
New Board Hall of Famer
Taz taught me the cluster dance
Gender: 
Posts: 3433
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #5 on: Sep 24th, 2002, 3:52pm » |
Quote Modify
|
Clusters may be shorter, but man everytime I hit the O2 and watch the clock I swear every single minute of the first 15min. worth of O2 is an hour...it feels like 15 hours just to get through that first 15 min. when a kip 8+ hits.
They just don't get that 3-10 headaches a day at extreme pain levels is harder to deal with and they refuse to believe us when we try to educate the medical community I'm getting so sick of the whole thing....Drug Seeking/Migraines/Hormones, yadda yadda yadda, I wish they'd suffer one, just one and then tell me all that shit
Okay I'm done ranting for the moment hehe
Thanks for the update Not4 
Cat
|
|
IP Logged |
A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Dan Rather: Topomax on the news tonight
« Reply #6 on: Sep 24th, 2002, 4:15pm » |
Quote Modify
|
Rant away catlind. Must agree with what everyone has said. I have a migrain daughter that often attempts to "Out Pain" me. If she's at the house and a good one starts to hit -- she leaves -- can't handle being wrong. What irritates me is when she has one of hers she wants quite, dark, compresses, ass kissing, and compassion. Hey -- go the hell home!! At the age she's at I'm no longer responsible.
wow -- where the hell did that come from? Somehow I'm sure I'm going to pay.
Echo - S'ing TFU now!
|
| « Last Edit: Sep 24th, 2002, 4:18pm by echo » |
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss