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Jim R
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Maybe Premature, but
« on: Sep 23rd, 2002, 8:10am » |
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I'm happy to report that I haven't had a major CH for a week on the Catapres/verapamil combo!!   Minor shadows, yes, but NOTHING more - no middle of the night agonies. I can even hoist a few brews without effects!   ;D I'm really, really hopeful that this is THE right combo for me for prevention. Could be wrong yet, but it's wonderfully encouraging!! PFDAN's to everyone - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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echo
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Re: Maybe Premature, but
« Reply #1 on: Sep 23rd, 2002, 8:17am » |
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That is fantastic news Jim. It's a wonderful feeling when you find that combo platter that does the trick.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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Marshall_D
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That's Great, Jim , Personally, I'm a little jealous, but enjoy it while you have it. For me, if I can go a week without over-night eye-burners, I know I've made it to remission. But, we all know things can change quick. Enjoy!!!
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Cin
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Good for you Jim, hope this continues. Sunshine days ahead, take care Smiles, Cin
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catlind
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Re: Maybe Premature, but
« Reply #4 on: Sep 23rd, 2002, 9:24am » |
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That's wonderful news Jim!! You deserve the break I'm very happy for you and I'll keep my fingers and toes crossed that you remain pain free Cat
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kaptex
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Re: Maybe Premature, but
« Reply #5 on: Sep 23rd, 2002, 9:44am » |
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Glad to hear the good news Jim! I'll keep my eyes crossed for ya'!!!!   Wishing everyone PFDAN, Kimberly
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nancyc
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Re: Maybe Premature, but
« Reply #6 on: Sep 23rd, 2002, 9:52am » |
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Whee! Dont it feel good when the pain leaves? I am happy for you, bro.. ;Dnancyc
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2late
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Re: Maybe Premature, but
« Reply #7 on: Sep 23rd, 2002, 10:59am » |
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Jim you were due i'm real happy for ya, keep it up!!...oops no pun intended, hope the other prob is better also ;D ............2late
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Jim R
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Re: Maybe Premature, but
« Reply #8 on: Sep 23rd, 2002, 11:10am » |
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2late The other problem is now intermittent, which is better than it was! Seems like I am slowly but surely getting over the side effects of the catapres/verap combo. PFDANS's to you bro. - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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Jim R
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Re: Maybe Premature, but
« Reply #9 on: Sep 23rd, 2002, 11:12am » |
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Whoops, I meant to thank you all for your good wishes! I hit that enter button too fast. Thank you!!   - JIm R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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2late
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Re: Maybe Premature, but
« Reply #10 on: Sep 23rd, 2002, 11:14am » |
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glad to hear it's intermittent, that is an improvement! a little is MUCH better than none at all!! good luck to ya!!! ............2late
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SteveY
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Re: Maybe Premature, but
« Reply #11 on: Sep 23rd, 2002, 11:42am » |
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Excellent news Jim ;D Ready for a trip across the pond yet? Steve
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Drk^Angel
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Re: Maybe Premature, but
« Reply #12 on: Sep 23rd, 2002, 11:45am » |
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Great news Jim! I hope you stay painfree for a long long time. PFDAN............................... Drk^Angel
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NancyMcFree
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Re: Maybe Premature, but
« Reply #13 on: Sep 23rd, 2002, 2:59pm » |
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The is great news !!!! Hope the pain stays away and the other keeps "up". Really happy for you !!!!
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Jim R
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Re: Maybe Premature, but
« Reply #14 on: Sep 23rd, 2002, 4:24pm » |
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Steve - not yet - gotta save the BIG $! LOl And that won't be happening for a while - just got back from the dentist's. Had 2 ceramic/porcelain onlays (likecrowns but better supposedly) and a composite filling. My upper teeth and gums are ACHING - like a CH, but I know it's the work they did and all the novacaine - 9 shots (and it's wearing off! OH NO) - three for each tooth BECAUSE she was scared with the CH on that side, I would be REALLY sensitive, but with all this novacaine - just a few little twinges was all... Nancy McFree - YES! UP is GOOOOOOOD.   smiles Nancy (love ya sis) - thanks, as always. Drk - you too bro. And echo, my bud - yup it sure feel better! Thanks EVERYONE! - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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ShariRae
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Re: Maybe Premature, but
« Reply #15 on: Sep 23rd, 2002, 7:32pm » |
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awwww Jim, That is great news...enjoy every moment..it is mych deserved! Huggzzz Shari
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Jim R
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ppreciated.Re: Maybe Premature, but
« Reply #16 on: Sep 23rd, 2002, 8:28pm » |
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Thanks Shari. A
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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Jim R
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ppreciated.Re: Maybe Premature, but
« Reply #17 on: Sep 23rd, 2002, 8:28pm » |
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Thanks Shari. A
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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Jim R
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Re: Maybe Premature, but
« Reply #18 on: Sep 23rd, 2002, 8:31pm » |
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Thanks Shari. Appreciated! My dental work today started feeling too reminiscent of the Beast though, so I have taken a couple of percocets to ease/mask the pain - I know it will be gone tomorrow but it was beginning to bore into the same areas.... and I need to stop it to sleep. PFDAN's to ALL - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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NancyMcFree
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Re: Maybe Premature, but
« Reply #19 on: Sep 24th, 2002, 11:21am » |
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I am putting this back to the top so all can see .... there is hope !!!!! Jim, you go guy .....you are one tough cookie putting up with the stuff you have !!!!! I admire you .... not giving up and finally finding some relief.
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Jim R
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Re: Maybe Premature, but
« Reply #20 on: Sep 24th, 2002, 12:48pm » |
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Thank you Nancy. Yes, there is hope - my last major was a week ago this past Sunday - that's a loooong time for me without one and I can only credit the verap/catapres combo because I haven't been doing anything else different. Yes, hope springs eternal... Just wish the tooth/jaw pain from the dental work yesterday would stop aching (I know, it's always SOMETHING! LOL) - it's getting really ANNOYING! Best to all and PFDAN's - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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echo
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Re: Maybe Premature, but
« Reply #21 on: Sep 24th, 2002, 1:54pm » |
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Hey jim, If you put your hangies within the jaws of a tightened visegrip you will not notice your jaw hurting. Worth a try ;D
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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NancyMcFree
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Re: Maybe Premature, but
« Reply #22 on: Sep 24th, 2002, 2:06pm » |
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There you go Jim .... an idea to get rid of your pain. LOL. You can say to the old wifey .... yea, it was working for awhile but ......shit, the meds they gave me for the jaw pain affected it once again !!!! But hey, I have never tried it .... don't have much to work with.... give it a try ... may make the sporadic problem dissapear as well as the jaw pain !!! Let us know if you took Dr. Echo's sure cure pill !!!
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echo
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Re: Maybe Premature, but
« Reply #23 on: Sep 24th, 2002, 2:15pm » |
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WOW , Dr. Echo , can't wait to tell my mom, she'll be so proud!! Dr. Echo's TCPTT - Testecular Compression Pain Transferance Treatment.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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Jasmyn
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Re: Maybe Premature, but
« Reply #24 on: Sep 24th, 2002, 4:14pm » |
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Jim, glad to hear you are PF in the Ch department. Now we only hope Dr. Echo's TCPTT sure cure does the trick! LOL ;D
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Jazz
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