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Topic: I hate my painfree days (Read 422 times) |
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LTBullitt
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No attacks at yesterday and I managed to sleep for the first time in about 7-8 weeks. It's only a curse, a sham, a false hope.
Rather I had never had the day nor the sleep. It only weakness my defences as it did today. Just bring the #!@# pain!
The worst part really is now I'm angry with Charlie here and it's through no fault of his own, quite unjustified I will admit.
This said I'm still cursing him.
I cannot do the KIP scale, I just don't understand it b/c my headaches all seem for the most part the same in pain levels.
That said, it was gd brutal and the pain was as insane as always.
So I be a pacing, a slamming, a punching, ect ect,ect *Yul* in the King And I again.
And my mind, this mind, this messed up head of mine has to fixate on something during every attack. Often as mundane as a scene from a move, a lyric, over and over the whole attack.
But today Charlie from the board leaps into my head and sort of in a literal fashion as I am picturing him doing jumping jacks. As I've told him I liked his name b/c it reminds me of Chaolin. So what I am seeing is "The Little Tramp" with a CH doing these blasted jumping jacks.
Then it happens, I laugh, out loud no less! And KIP or no KIP I find a new level of pain b/c of this.
Now maybe you shake your legs whick is good. Thrashing around, good, punching good. Laughter, NOT good. If you haven't done this I don't suggest it.
And what kind of deranged person laughs during a CH attack anyways? What the hell is wrong with me??????
If I was laughing at Charlie being in pain then I guess I deserved it.
I thought I had point to this post but if you have read any of mine you will no I never do and I have proven it once again.
Except maybe laughter is NOT the best medicine, at least not in this case.
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Karla
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Re: I hate my painfree days
« Reply #1 on: Sep 22nd, 2002, 10:35am » |
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I hate my pain free days also. I find them only to tease, taunt, and remind me of what I am missing in life. I think painfree days are a cruel joke. Yet at the same time I also treasure them. I hope you get some peace soon.
Karla
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Karla
suffer chronic ch
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Jasmyn
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Re: I hate my painfree days
« Reply #2 on: Sep 22nd, 2002, 2:08pm » |
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LT, real funny imagery of Charlie. I will also laugh through an attack if my mind could conjure it up at that stage! ;D
But thanx for the warning, I'll put THAT image out of my mind with the next episode, I don't want to hurt more!!!
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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jonny
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Re: I hate my painfree days
« Reply #3 on: Sep 22nd, 2002, 2:35pm » |
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Charlie hasent had a HA in over a decade so keep laughing.
........................jonny
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Night_Owl
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Re: I hate my painfree days
« Reply #4 on: Sep 22nd, 2002, 2:38pm » |
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Haven't had a pain free day in a couple years, but when I have a kip 1 or 2 people tend to think I am on drugs or have won the lottery! I don't know, I guess because my personality is so different when I am not in pain that when I am in pain people assume that is how I always am. When I hit certain pain levels I tend to get very creative, that is the time that my sketch pad opens up. I wake up and look at it in the morining, and can't believe that I could draw that well under that kind of intense pain. Just make use of your pain free days. If not, can I have em? lol.
Night_Owl
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"You cannot find peace by avoiding life."
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LTBullitt
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Re: I hate my painfree days
« Reply #5 on: Sep 22nd, 2002, 3:37pm » |
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yea, I read that about the dude
all my hopes and faith are tied in with Charlie beating this thing
screw the MDs and reseach, I see hope when I think of him
Whoever wants my painfree days can take them but they wont add up to much 
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2late
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Re: I hate my painfree days
« Reply #6 on: Sep 22nd, 2002, 5:48pm » |
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I love every PF minuite!!! tease me with it, i don't care, i'll take it. if you hate it send it my way!!!! ;D ...........2late
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Charlie
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Re: I hate my painfree days
« Reply #7 on: Sep 22nd, 2002, 8:38pm » |
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Always skun my fingers on the ceiling doing Jumping Jacks in the house. Too fucking dumb to go outside or in the gym. Had a pogo stick in the kitchen, that hurt too, and I had to stay away from the cellar stairs.
I was so bandaged up as a kid, I looked like Lon Chaney.
I wish I knew why I'm so lucky with CH. It's a puzzlement.
Hope you all get some shuteye
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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echo
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Re: I hate my painfree days
« Reply #8 on: Sep 23rd, 2002, 8:43am » |
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Love the PF times, but in the back of my mind I always wonder when the SOB will drop in for a visit.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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nancyc
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Re: I hate my painfree days
« Reply #9 on: Sep 23rd, 2002, 10:00am » |
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I love the pain free days..gives me time to reorganize my attack against the beast...let's me get alitle sleep...anything to restore my strength... ;Dnancyc
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Virginia
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Re: I hate my painfree days
« Reply #10 on: Sep 23rd, 2002, 11:39am » |
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I love the painfree times!! Although, it rarely happens and when it does sometimes it takes me a few hours to realize I"m NOT having a headache because I'm so use to ALWAYS being in pain (everyday since Feb, 2001). A couple of months ago I had 15 hours painfree! Woohoo!! And last week on Tuesday, I had the whole afternoon painfree. My department must have thought I had lost my mind. I came out of my office all loud and smiley saying "I am currently not having any pain so watch out because the old Virginia is back in action!". I just get goofy & loud & laugh A LOT!!  ;D Doesn't last for long, so I have to cherish it!
Miserable when they come back again, of course!
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Slammy
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Re: I hate my painfree days
« Reply #11 on: Sep 23rd, 2002, 11:47am » |
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Hmmmm...... I still can't imagine how chronics manage.. 
As for my pain-free days... I would imagine they are like non-CH peoples....I don't hink of the beast at all....except in here..
I don't ever know when he is going to return... he just does... I never know when he is going to leave.... he just does...... and I don't think about my pain free days.... they just are....
Slammy 
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That's it! Everyone out of the pool!
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oringkid
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Re: I hate my painfree days
« Reply #12 on: Sep 24th, 2002, 12:20pm » |
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I am the same way Slammy.
Sherry
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