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   Author  Topic: Off the wall, but hey...  (Read 935 times)
catlind
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Off the wall, but hey...
« on: Sep 21st, 2002, 11:31am »
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it's worth a try I guess.  They are doing the clinical trials of capsaicin in nasal spray for cluster headaches.  I saw in the drugstore an arthritis pain reliever that has that as it's main ingredient.  
 
I'm not getting anywhere with the medical community, so I figure what the hell, I'm gonna try using the capsaicin analgesic cream on my head when a headache hits.  I know it's off the wall and far fetched and really reaching...but one never knows until one tries!
 
Cat
 
(feel free to send the men in white coats)
 
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Re: Off the wall, but hey...
« Reply #1 on: Sep 21st, 2002, 11:34am »
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HOLY SHIT THAT BURNS.  Well that got my attention...geeez that shit burns on the skin!
 
Here's hoping it works LOL
 
Says you have to use it for 3-4 times daily for 1-2 weeks before you will get relief from arthritis pain, so we'll see how badly I've fried my temple in a week LOL
 
Cat
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Re: Off the wall, but hey...
« Reply #2 on: Sep 21st, 2002, 11:44am »
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Hey Cat. There's 2 different strengths for the the arthritis cream. It's the stronger of the two you should be using. That burning will decrease each day and hopefully the CHs will too. Good luck.
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catlind
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Re: Off the wall, but hey...
« Reply #3 on: Sep 21st, 2002, 12:03pm »
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Ted, the one I have is 0.075% is that the stronger of them?  That was the only strength I saw.  
 
I take it this has been tried before? hehe.
 
Guess I should search the archives before I try something crazy LOL Wink
 
Cat
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Re: Off the wall, but hey...
« Reply #4 on: Sep 21st, 2002, 12:05pm »
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I am not gonna look this up, I am just gonna ask! LOL
 
Can you put that cream in your nose?  Or does it say not to?
 
Sherry
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Re: Off the wall, but hey...
« Reply #5 on: Sep 21st, 2002, 12:43pm »
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I say don't read the directions, don't do a query on the old archives ... just snort the stuff and see if it works !!!!!!!!  Relief might be right around the corner !!!!!!   Good luck Cat !!!!!
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Re: Off the wall, but hey...
« Reply #6 on: Sep 21st, 2002, 12:46pm »
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lol!  I used to put mineral ice on my head.  It felt good, took my attention off of my head.  Good luck!  
 
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Re: Off the wall, but hey...
« Reply #7 on: Sep 21st, 2002, 12:49pm »
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Sherry it says for external use only it burned like hell on my temple so I don't know if I'd wanna put it up my nose! LOL
 
It says do not use: on wounds, damaged, broken or irritated skin; with a heating pad (may cause blisters);
 
When using this product:  avoide contact with the eyes; do not bandage tightly; avoid inhaling dried residue material from the application site which may cause sneezing, nasal irritation or tearing.
 
So there ya have it...if yer usin it for arthritis those are the do's and don'ts.
 
I figure I'm going to throw caution to the wind and try anything I can think of within the realm of rational treatments for CH.  I don't want to be on narcotics and pain meds for the rest of my life, and if this works, hell, it's cheap and easy Wink
 
Cat
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Re: Off the wall, but hey...
« Reply #8 on: Sep 21st, 2002, 1:05pm »
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Put that in your nasal cavaty and you just compounded your pain as well as being on the way to burning the tissues in your nasal and sinus cavaties.
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Re: Off the wall, but hey...
« Reply #9 on: Sep 21st, 2002, 1:08pm »
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Have you tried that Don?  (I'm not being sarcastic, I haven't waded through all the hits I got on my search yet).  It burns like a mother on the skin that much I know.  It's still burning nearly 2 hours later.  Of course the headache I was getting is gone, but I know it isn't from the cream as my noontime witching hour is generally a short lived low kip CH.  If nothing else, the burning pain will distract the same way the ice does LOL
 
Cat
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Re: Off the wall, but hey...
« Reply #10 on: Sep 21st, 2002, 1:38pm »
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Hey, I have put Tabasco up my nose, and will continue to do it until I find something better.  The burning is a good distraction if nothing else, and it did abort a few of my ch's.
 
I tell ya Cat, I'm gonna get some.  If nothing else, maybe it will help my neck and my knees.
 
Please tell me it doesn't smell like wintergreen!
 
Sherry
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Re: Off the wall, but hey...
« Reply #11 on: Sep 21st, 2002, 2:33pm »
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LOL Sherry, no it doesn't have any smell at all which is a definite bonus.  
 
I bought the generic Rite Aid brand, but the name brand one is called Capzacin I think.
 
Just find a drugstore and find the arthritis creams and look for one with the capsaicin in it.  I sure got my attention.  
 
And just for Slammy's entertainment...if you put it on your temple....don't rub your temple then pick your nose Wink ROFL
 
Cat
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Re: Off the wall, but hey...
« Reply #12 on: Sep 21st, 2002, 4:11pm »
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Tried the cream (Zostrix) last year for about eight weeks. I persisted that long in the hopes that relief would eventually come. It didn't. Quit using it as it didn't do a thing for me. Hope you can get some relief from it.
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Re: Off the wall, but hey...
« Reply #13 on: Sep 21st, 2002, 4:20pm »
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Where's the good old days, before being diagnosed, when we sniffed bakingsoda or salt?!
 
Relieving one pain with another!! LOL
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Re: Off the wall, but hey...
« Reply #14 on: Sep 21st, 2002, 4:26pm »
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Joyce, how many times a day did you put it on?
 
Blah...here I was hoping hard that it would work.
 
Think we can use the placebo affect and not get anymore CH's? hehe
 
Cat
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Re: Off the wall, but hey...
« Reply #15 on: Sep 21st, 2002, 5:14pm »
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Cat, you obviously didn't do a full search of the old board plugging in the words "someone piss up my nostril, this burns!" Wink  
 I don't remember the strength of it now. It was a few years ago I used it. And yup, right in the nostril. Also tried it on all areas where it usually hurts (other than the eye, of course). One of those ways helped for a couple of weeks and the other way didn't do anything. How's that for help?
« Last Edit: Sep 21st, 2002, 5:15pm by Ted » IP Logged
don
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Re: Off the wall, but hey...
« Reply #16 on: Sep 21st, 2002, 5:15pm »
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I've put a lot of stuff of my nose Cat but hot pepper isn't one of them.
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Re: Off the wall, but hey...
« Reply #17 on: Sep 21st, 2002, 5:37pm »
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LOL Ted and Don
 
Well, it seems the verdict is likely to be that it isn't effective.  Ah well, I can try Smiley  And I'm willing to try just about anything I can that won't give me a heart attack or make me loopy...I'm loopy enough Wink
 
I did find a few things on the search.  One was an article done at a university, and I think the gist of it was that is dangerous because it will cause neuron damage.  Not sure, I need a neurobiologist to interpret it to Challenged/Confused Cat language hehe
 
Cat
 
p.s. If you try this and have pets don't let them lick your head....the puppy is still outside going nuts LOL
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Re: Off the wall, but hey...
« Reply #18 on: Sep 21st, 2002, 10:13pm »
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It burns?
 
Don't do dat den
 
Charlie
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Re: Off the wall, but hey...
« Reply #19 on: Sep 22nd, 2002, 9:11am »
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LOL Charlie
 
Yes it burns....great distraction for the beast, but alas no benefit based on searches and input.
 
Doctor it hurts when I do this....Don't do that.
 
LOL
 
I'll take your advice I think Wink
 
Cat
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Re: Off the wall, but hey...
« Reply #20 on: Sep 22nd, 2002, 12:02pm »
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Okay since I'm already off the wall, I might as well go out on a limb Wink
 
It was suggested to me that if I used the cream on my feet rather than my head, it might be more effective.  So I did some searching on the net and found the reflexology sites and the big toe is the site for pituitary, head and such.  I also search the board and OUCH, and only got 2 hits so I don't know if it's been addressed or not.  
 
Anyway, I rubbed the cream over both my big toes.  Can't say it is helping the headaches yet, but it doesn't burn as much on the toes as on the temple LOL.  The only thing I can say is that all I can smell is hot peppers.
 
Dunno if that means it's effective on the toes based on reflexology or not.  Has anyone looked into the reflexology part of things?
 
Cat
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Re: Off the wall, but hey...
« Reply #21 on: Sep 22nd, 2002, 12:13pm »
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Yeah. reflexology has a lot of merit to it, actually. I use it sometimes for shadows with so-so results. It's not very helpful during a full-fledged attack for me though. If you give a hard massage to the same corresponding spot between your thumb and index finger it'll have the same results. This works better for regular headaches than CHs though.
 Capsaicin works because of the release of Substance P in the region it's applied to. My guess, which is all this is, is that using it on your feet won't do much good unless you also have sore feet.
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Re: Off the wall, but hey...
« Reply #22 on: Sep 22nd, 2002, 1:08pm »
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Ted thanks for the info.  I dunno if the capsaicin can be transmitted via the reflexology route or not.  I do know reflexology has merit because I had a friend that does it give me a foot massage when I was pregnant, she showed me the spot on the ankle where the uterus is affected.  To prove to me she was on the level she gently massaged and I almost immediately started having contractions.  
 
Ted, I must admit that I don't know how to search the old board.  I search the new one and OUCH but don't know how to get to the old board.  I'm sure there's instructions somewhere that I didn't remember in my initial reading of this site, but if you would tell me how to get to the old board I'd very much appreciate it Smiley
 
Cat
 
p.s. I tend to agree with you about it not being effective for clusters, but I don't think it can hurt, and it's worth a try if it helps even a little - that will mean less pain meds that don't do anything other than take the edge off.
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Re: Off the wall, but hey...
« Reply #23 on: Sep 22nd, 2002, 1:30pm »
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Yeah. I worked in an ashram for a few years and had it done a number of times. Never had it relate to pregnancy though. That's another form of touching. Smiley
 To search the old board you have to go to the archives and hit any date before February 2002 when the new board started. This'll take you to the old board and you can use the search from there.  
 I hope the capsaicin and/or reflexology works well for you, even if just to take the edge off.
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Re: Off the wall, but hey...
« Reply #24 on: Sep 22nd, 2002, 2:42pm »
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Can we damage anymore brain cells?
 
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