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Topic: Newbie - I am so glad I found other sufferers!!! (Read 1409 times) |
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Fine0626
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Newbie - I am so glad I found other sufferers!!!
« on: Sep 7th, 2002, 6:48am » |
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Hi Everyone, I have been suffering with these headaches for 20 yrs and just found out that I am not crazy! It's a wonderful feeling thank you. I have been to a neurologist several times before and they said I had cluster headaches, but never really explained it to me, other than groups of headaches that last a certain amount of time. I was on Esgic Plus, Fioranol, mostly I would take whatever kind of codiene I could get just so that I could lay down and not sit up to rest, never sleep. The doctor never explain the face pain to me, I knew it was not sinus problems, thought it was TMJ from when I broke my jaw at 19, also thought it was because some of my teeth were bad, so a year and a half ago I had all of my teeth removed, praying it would stop that god awful pain. I was pain free for a year, but this beast has come back full force 12 days ago, everynight at 2am the pain begins, Imitrex and 10mg ambien have given me some minor relief. I am just grateful to this site for finally giving me someone else who truly understands the pain I have been going through. Thank You, Thank You, Thank You!
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Jim R
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Re: Newbie - I am so glad I found other sufferers!
« Reply #1 on: Sep 7th, 2002, 6:52am » |
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Welcome Fine - yup, you've got the feeling a lot of us had when we found this board - wow- I'm NOT alone! Sorry the Beast has taken up residence again. I think you'll find a lot of good information here, and a lot of good, caring and helpful people... Again, welcome. Jim R
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catlind
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Re: Newbie - I am so glad I found other sufferers!
« Reply #2 on: Sep 7th, 2002, 8:42am » |
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Welcome to Clusterville Fine, sorry you have reason to be here, but glad you have found us. This place is a great support and a wonderful family. Watch out for certain monkey's here though, they are likely to getcha for anything LOL. 
Cat
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Jabeen
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Re: Newbie - I am so glad I found other sufferers!
« Reply #3 on: Sep 7th, 2002, 8:55am » |
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Hi! I am new as well-when this started for me 5-6 years ago, this site did not exist. I was PF for years and it returned to my chagrin. Bit when I read the horror stories here-I know I am "lucky" by comparison. Theres a lot of great information and support here...seems like 24 hours a day. Good luck-
Jabeen 
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NancyMcFree
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Re: Newbie - I am so glad I found other sufferers!
« Reply #4 on: Sep 7th, 2002, 3:27pm » |
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Welcome to the board ... sorry you had to suffer alone for so long. I think alot of us here have been to the eye doctor, the dentist, the ear nose throat specialists only to find out it is cluster headaches. I still in my mind can't get over that they call this a headache cause I never in my life had a headache like this !!!!!! But, hey, you have now found a place to calll home. You'll find lots of good info here and lots of support. Welcome.
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Charlie
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Re: Newbie - I am so glad I found other sufferers!
« Reply #5 on: Sep 7th, 2002, 6:14pm » |
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I'm glad you found us. I know how you feel. Even though it's been a long time for me without them, I was still a wreck after reading the guestbook and finding this board. I never knew there were so many with them and several variations on this horror.
By the way, if you keep looking, you will most likely find something to help in some fashion. It happens all the time.
Stick around and let us know how you're doing.
Charlie
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2late
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Re: Newbie - I am so glad I found other sufferers!
« Reply #6 on: Sep 7th, 2002, 8:37pm » |
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welcome 0626! thought i died & went to heaven when i found this site. my wife still think's i'm crazy, that's beside the point! ;D
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Opus
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Re: Newbie - I am so glad I found other sufferers!
« Reply #7 on: Sep 7th, 2002, 8:43pm » |
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Hi Fine, You wrote"I have been suffering with these headaches for 20 yrs and just found out that I am not crazy! " Strange becouse I know I am crazy from these headaches. Welcome aboard, sorry you have to be here. We love and hate each other, Don't understand then just read awhile.
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paul_b
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Re: Newbie - I am so glad I found other sufferers!
« Reply #8 on: Sep 7th, 2002, 10:08pm » |
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Here to help and listen. It seems there is always someone here who knows just how to make things right when all seems unmanageable.
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Drk^Angel
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Re: Newbie - I am so glad I found other sufferers!
« Reply #9 on: Sep 7th, 2002, 10:13pm » |
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Welcome to the board! Sorry that the beast is slamming your cranium into a solid titanium wall to see how many dents he can put in the wall before your head completely falls apart. Welcome to the family!
PFDAN....................... Drk^Angel
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clusterfok
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Re: Newbie - I am so glad I found other sufferers!
« Reply #10 on: Sep 7th, 2002, 10:35pm » |
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anyone on? I have found some new relief for my clusters from my chiropractor.
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paul_b
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Re: Newbie - I am so glad I found other sufferers!
« Reply #11 on: Sep 7th, 2002, 10:41pm » |
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Well, what is it?
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clusterfok
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Re: Newbie - I am so glad I found other sufferers!
« Reply #12 on: Sep 7th, 2002, 10:55pm » |
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Well let me start with a little history, I am 29 had these bastard headaches for 6 long years, done the prescrips, dental, eye doctor, neuro, catscans, mri, etc. just like everyone else. My headaches hit 2 times daily 12 hrs. apart. Got some info to go see a chiro. so I went, did xrays, come to find out my top vertebrae is curled over. So I think big deal right? Well let me tell you this cat has made more sense than any other jack ass I've seen. He claims that top vertebrae controls over 90 percent of the nerves for all your organs in your body. Since its out of line, its hitting nerves it shouldn't causing the headaches. Your body works on a 12 hr. time schedule and thats why I'm getting them 12 hrs. apart. He has been treating me with a pro adjuster, it is and electronic machine (computerized) no manual adjustments. You watch the computer screen as he goes down your head and back and this this senses the pulse time on every vetebrae. If its out of whack, he adjusts it with this tool. Totally pain free, and man does it work for me and maybe others. It is called the pro adjuster. Look it up on a web browser for a chiro. nearest you. This is the very most latest thing for clusters and migranes. Very few chiros have it, but if you can find one it is worth the cash. I am going 21 times and is costing me 1600.00. Not bad compared to what I've spent in the past.
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Slammy
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Re: Newbie - I am so glad I found other sufferers!
« Reply #13 on: Sep 8th, 2002, 3:25am » |
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too bad...... and I really dug your name too....... ;D
Slammy 
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| « Last Edit: Sep 8th, 2002, 3:26am by Slammy » |
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oringkid
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Re: Newbie - I am so glad I found other sufferers!
« Reply #14 on: Sep 9th, 2002, 6:21pm » |
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Luckily, clusters don't cause stupidity.
bye now.
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clusterfok
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Re: Newbie - I am so glad I found other sufferers!
« Reply #15 on: Sep 9th, 2002, 6:40pm » |
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whats that supposed to mean?
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Margi
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Re: Newbie - I am so glad I found other sufferers!
« Reply #16 on: Sep 9th, 2002, 8:14pm » |
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before everyone jumps on this guy....take a breath.
this guy has found relief for HIS pain. he's not trying to sell anything. so can we avoid just one fight once, maybe? just in honor of the approaching date, if nothing else?
I repeat: he (or she, sorry) has found relief for his/her pain, guys. We all know that there IS no universal cure for clusters.
Clusterfok? the issue of chiropractic has been brought up here a lot in the past...not too many people have found much success with it. And we've had some chiropractors (but never our resident chiropractor, Dr. Doug Wright, who happens to also be a clusterhead!) actually coming here trying to sell their services. It's a sensistive issue here. just so you know.
but I'm really glad you HAVE found some pain relief. I hope it continues to help you.
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clusterfok
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Re: Newbie - I am so glad I found other sufferers!
« Reply #17 on: Sep 9th, 2002, 9:38pm » |
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Thank you! No I'm not trying to sell anything. Nor am I a doctor. I was just hoping to reach maybe one person out there who is suffering with us, that hasn't had any luck with the drugs and their side effects, may want to try to find something new. I'm not promising anything at all for anyone, BUT it may help. This is a really neat piece of equiptment, there is no manual b.s. involved it is designed specifically for vascular headache sufferers. My doctor is treating one other cluster sufferer (who recommended me to him, and has also had a significant change in his headache patterns and intensity). I really hope this may help someone out there. I'm not stupid or crazy all the time, just wanting relief from this shit.
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oringkid
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Re: Newbie - I am so glad I found other sufferers!
« Reply #18 on: Sep 10th, 2002, 9:44am » |
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Ok. I apologize for dismissing this out of hand. Clusterfok, tell how this has worked for you. Are you pain free now? How long have you been pain free from this treatment if so? From what you described, how does an electronic device uncurl your vertebrae? Or is that what it does? If the vertebrae were out of alignment and the nerve bundles rubbing against it, I would think you would have pain in a lot more places. I would also think that the pain would be based on movement as opposed to a circadien rhythm in that case. If our vertebrae are out of alignment and that causes the pain, then why does it peak (mine peak with up to 8 CH attacks a day) and then go away? Does the vertebrae become unaligned and the realign itself on its own?
I would be very interested to know what reasons or answers your chiropracter would give to these questions.
I AM glad that you have found relief. And I REALLY am interested in how your chiro would answer the above questions. It would be great if next time you are there you could ask these things and let us know.
You have to forgive me, as I have a very analytical mind and what he told you (according to what you posted) just doesn't make sense to me. I am perhaps missing something?
Welcome aboard, forgive my earlier rudeness, and please let us know if you find out more about how this works.
Sherry
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TomM
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Re: Newbie - I am so glad I found other sufferers!
« Reply #19 on: Sep 10th, 2002, 9:59am » |
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Back to our oringal broadcast....
Welcome, Fine. You can call this home as we all have known the lonliness you experienced until we found this site.
Sorry you have the beast but glad to have you around.
--TomM--
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Drk^Angel
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Re: Newbie - I am so glad I found other sufferers!
« Reply #20 on: Sep 10th, 2002, 11:08am » |
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If your headaches are caused by a misalignment in your spinal column, then you don't have a vascular headache, so realigning your back will not cure a true vascular headache. Perhaps your chiro isn't aware of the mechanics behind a vascular headache, and that is why he claims it as a treatment for them.
PFDAN............................. Drk^Angel
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Linda T
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Re: Newbie - I am so glad I found other sufferers!
« Reply #21 on: Sep 10th, 2002, 2:54pm » |
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Back to Fine.......Welcome. As you can see some of these threads tend to go all over the place.
Sorry you're having a rough time. You are in the right place. You will find the help, support and relief you need right here. Keep looking around.
Good luck. Wishing you all PFDAN always, Linda T.
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What a long, strange trip it's been!
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Charlie
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Re: Newbie - I am so glad I found other sufferers!
« Reply #22 on: Sep 10th, 2002, 9:45pm » |
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Glad someone feels better but I hope people understand that so far we have little luck with gizmos. I'd rather spend money with a neurologist. Chiropractic and the like.........well...it's your money.
If this has has helped in some ethereal way....I'm happy for you though.
That skeptical old Charlie
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clusterfok
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Re: Newbie - I am so glad I found other sufferers!
« Reply #23 on: Sep 10th, 2002, 9:51pm » |
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This is to Sherry and others who are more interested in my writings about my visits to my chiro. and the treatments. No I am not pain free yet, I have my hopes set high that maybe some day I will be, but my chiro. claims when I am through with my treatments, the only pain I should have from the nerves that once triggered the clusters is, possibly a stiff neck, which I would take any day over these headaches. This is not an overnight treatment, mine will stretch out for a period of 4 months, possibly more depending how fast my neck settles with the new adjustments. I really dont understand exactly how all this works, but the way I'm gathering it is, from my top vertebrae being out of place, its causing nerves to collide with one another sending the pain to my head. Why the headaches go away for awhile and come back are beyond me, I'll be sure to ask Monday when I go back. I do know when I started my treatments over 2 months ago, I was having from 2-5 a day during my cluster. Now I have had no more than 2 a day, usually 1, sometimes I go a day or 2 with none. What really made me think this was working, besides the significant pain reduction was I have been noticing the last week, when I have a headache, the pain has moved to my temple throbbing like hell, and my teeth hurt alot worse, and my ear hurts worse than any ear infection I've ever had. I inquired on this yesterday when I went in for a treatment, he said the reason is, the more my neck gets back in line, the nerves that were getting the signals before to cause the headaches are not getting the signal as far. Also the nerves that are being affected were also damaged from the misaligned neck and vertebrae, are starting to heal causing the pain to work its way around to the back of my neck. This is why he claims when I'm back to norm in the neck area, the only pressure I'll have is the stiff neck. Wether or not this all makes sense or not to anybody, it really is helping myself and another cluster sufferer in my area. He is experiencing the same feelings in his ear etc. as I am. You can go to www.pro-adjuster.com to see how this piece of equiptment works, and email one of the doctors on that website and ask their opinion about using this for cluster headaches. I'll get my chiros web site for you Mon. and you can even email him about it even if your not in our area, since he has had first hand using this with cluster patients. One last thing, Friday morning I was hit with the demon, my wife drove me in to the chiro, I was having one when he started, as soon as he was done with the treatment, it let up immediatly, so that also gives me hope he's on the right track.
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TomM
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Re: Newbie - I am so glad I found other sufferers!
« Reply #24 on: Sep 12th, 2002, 8:13am » |
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Clusterfok--You seem a little bitter. If it works for you, fine. But, I must admit, the more you write, the more obvious it becomes that Oringkid was correct on her first post....
--TomM--
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