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Topic: Meds vs. Pain (Read 296 times) |
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nutty2chat
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Tonight I am feeling very whiny. I am so tired of meds. I am on alot right now. I am still having CH, but not as extreme, although intensity seems seems to climb daily. Right now I am taking: 720 mg of verapamil 100 to 150 mg of elavil 75 mg of indocin belergal 2x daily ( helping with hot flashes from elavil) Lortab as needed for pain (not taking too often because make me feel YUCK) Prednisone taper started at 8 tabs per day (just finished and gained soo much wait that I can't wear any of my clothes) My problem is that I am having a hard time with my eye sight because of the elavil and my concetration is out the window. I am really screwing up on my job and I know that it is because of all the meds. I fell down this morning getting out of my van and skinned up my elbows. That was the start of my bad day. I would be happy I would assume if I was pain free, but I am not. One hour after work (could almost set the clock by it) I get hit. None at night right now, which is probably due to the elavil, but I can't take that much meds during the day, I would sleep all day long. I have to work, but I am afraid that I am going to loose my job. I am a secretary with a privately owned business. My boss is super sweet, but I feel really bad that I am doing such a bad job for her. I am seeing no end in sight, the meds keep going up and I only get temporary relief. I am just worn out and depressed (which is strange since elavil is used as an anti-depressant). I am a Christian and believe strongly that God allows things for a purpose (I don't believe that he causes pain-but he has control over all things) and I don't understand why we are allowed this totally useless pain. Isn't pain meant to be an indicator that there is something wrong with your body? Why do we have pain when there is nothing wrong with us otherwise? I feel hopeless. There is no end in sight. My CH are getting worse with every passing year. What am I going to be like when I am 80 and having 10s around the clock. It will make the dance a little harder to keep in step. Oh well, hope I didn't put anyone to sleep with my whining. I will try to be more positive in my next post. BTW, what is up with the chat room. I never see anyone there anymore.
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Jim R
New Board Hall of Famer
Always question authority....
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Re: Meds vs. Pain
« Reply #1 on: Sep 4th, 2002, 8:08pm » |
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my God nutty - you sound like a chemical soup. Maybe you're on too much. I know your issue of being on meds and not being able to work, drive, hell - function period and you;re on so many! I am amazed you even sleep, let alone go to work. The blessing it seems is as we age the arteries harden and usually the CH get better so maybe your old age will be PF or certainly better than now, but certainly you deserve to be PF now...maybe you could talk to you doc about eliminating some of the drugs, one by one, seeing which ones are working and which ones eliminated have no appreciable negative effect? I'm sure others will have suggestions too, but I sure do feel for you and wish you all the best and PFDAN's - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?! Proud member of OUCH Episodic Clusterhead since 1978
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NancyMcFree
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Well, I can honestly say that after reading some of the posts today I am gonna say a thank you prayer when I go to bed tonight. O2 is my first line of defense followed by Imitrex if that doesn't work and I have been blessed that they both work for me. I have Verapamil which I haven't even started taking cause they told me it would take a month to kick in and by the time they gave it to me I had already been having the headaches for 2 months so I figured it couldn't go on much longer. Ha ha on me. Anyway, sure wish you guys could find something that works without all the side effects and without having to take so many meds and without having to worry whether you'll end up addicted. Good luck don't know what to tell you (perhaps go back and see your doc .... have you tried the O2 and imitrex/verapamil???) I am adding a category to my prayer list ....... those that haven't found something that works.
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Slammy
CH.com Alumnus New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
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Re: Meds vs. Pain
« Reply #4 on: Sep 5th, 2002, 11:28am » |
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Hey Nutty! Make sure you share with your boss what you just shared with us.... If she is super sweet, chances are she's also super understanding and compassionate. I would never fire, or even discipline someone that suffers such debilitating pain as we do. Good Luck! Slammy
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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