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Topic: New Member Needs Advice (Read 286 times) |
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laney32
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[/color][color=Yellow]Hello Everyone!
I am new here and I do not know alot of the CH terminology that you guys use so bear with me.
Anyway, my husband suffers from CH. He started having them about five years ago and of course we did not know what they were. We saw several doctors and they said Sinus Infection. They came back last year and finally diagnosed with CH. He is in his 9th week now with no relief everyday and everynight like clockwork with those shadows in between. He uses oxygen and Zomig and pain pills but still he is in so much pain and going downhill fast. Any advice would be great. Thanks[color=Yellow][/color]
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Jim R
New Board Hall of Famer
Always question authority....
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Re: New Member Needs Advice
« Reply #1 on: Sep 4th, 2002, 1:36pm » |
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Verapamil...it gave me a seven year remission is is the first line defense (although I am having problems myself now). O2 is great but doesn't always work for me when the pain level gets up there. Have him get a referral to a neurologist. Sounds like he already has a lot of support. Pain free days and nights to him (PFDAN's) Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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Linda_Howell
CH.com Alumnus
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Hearing is one thing. Listening is another.
  
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Re: New Member Needs Advice
« Reply #2 on: Sep 4th, 2002, 1:48pm » |
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Laney,
Please forgive me, but everytime I hear someone say they are taking pain medication for clusters, I stand up on my soap-box. It would seem to make sense to take a pain med for pain right? Not in this case. Codeine, Darvocet, Lorcet, etc. are very addictive. They also do not help a cluster headache, & in fact will give a re-bound from hell. Save the pain-killers for tooth-aches, etc.
Verapamil, Imitrex and Amerge(besides 02) are the best we have available right now to fight this. Some have also had a lot of luck with other meds that are listed to the left in the links.
Tell your husband not to give up. There is more information on this site than anywhere else you may look. We welcome you and your husband, even though we wish we didn't have to. Linda Howell
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Drk^Angel
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Re: New Member Needs Advice
« Reply #3 on: Sep 4th, 2002, 3:22pm » |
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Welcome to the board! Sorry that the beast is slowly rippin' your husbands skull open, and diggin' around with a white hot icepick. The only thing that I've found to work for me is verapamil 240mg X 3/day and O2 on the breakthroughs. Welcome to the family! Good luck!
PFDAN...................... Drk^Angel
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oringkid
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Re: New Member Needs Advice
« Reply #4 on: Sep 4th, 2002, 4:19pm » |
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Welcome Laney and Husband! You will be amazed at the info and support here!
I have to agree with Linda, the pain pills are normally no good. Addictive and barely take the edge off. There are much better, non-addictive, meds out there for this.
Check out all the buttons on the left.
again, welcome!
Sherry
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jonny
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Re: New Member Needs Advice
« Reply #5 on: Sep 4th, 2002, 4:35pm » |
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Try Verapamil, if that dont work mix in some Lithium. Although it works great for alot of chronic's it will work for some episodic's.
..............jonny
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2late
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Ride Free..Pain Free
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Re: New Member Needs Advice
« Reply #6 on: Sep 4th, 2002, 4:47pm » |
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has he seen a neuroligist?if not that's the first step. .................2late
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Charlie
CH.com Alumnus
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Re: New Member Needs Advice
« Reply #7 on: Sep 4th, 2002, 5:12pm » |
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Welcome to our ward. Your husband isn't alone, and neither are you. You'll find lots of mostly sensible ideas here and believe it or not, you'll likely find something to mitigate his pain. It happens all the time.
Keep looking around and we'd like to hear more from you and how you're doing. Stick around.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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don
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Re: New Member Needs Advice
« Reply #8 on: Sep 4th, 2002, 5:55pm » |
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You might want to consider a prednisone taper in combination with verapimil
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The mad viking
CH.com Alumnus
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Always Look on The Bright Side of Life
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Re: New Member Needs Advice
« Reply #9 on: Sep 4th, 2002, 6:05pm » |
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First of all Welcome to Clusterville.
I just wont to add my medications for breaking out of cycle.But remember that i`m not a doc,just another clusterhead from Norway
Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily
Think the other friends has said it all here so the only thing that i can contribute with is this
Your friend in Norway Svenn
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Always Look on The Bright Side of Life
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