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Topic: BUMMED (Read 939 times) |
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Jim R
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Always question authority....
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After three days on my new drug regime of doubled dosage of verapamil (480 mgs/day) and Topamax (200 mgs/day) and three PF days, I get a CH tonight that is boring into my teeth, shooting down my throat, stabbing at my temple, and throbbing behind my eye. I can't seem to completely shake it - even with O2 . I am getting really discouraged. I was holding out a lot of hope for the increased verap. if not for the Topamax. Well, maybe the neuro will try something else when I go on the 3rd... PFDAN's to you all. Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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maria
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Jim,
Hang in there, fight the good fight, sorry to hear you are being hit so hard. Maria
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Kilo
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Sorry to hear the beast is still harassing you, Jim. I know it's discouraging, but hang on. When verapamil starts to kick in, it sometimes begins by decreasing the frequency of headaches. In other words, if you normally have them every day, they might change to every other day, then every third day, and so on, until they recede altogether. Glad to hear you had some PF days, and I hope you'll soon be free of the beast for the duration.
Kilo
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Drk^Angel
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It took a week after increasing my dose of verap before it started to work... Don't give up on it yet...
PFDAN........................ Drk^Angel
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Ree
New Board Hall of Famer
2008's my year to shine~SUN IS OUT!!!YAY
    
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Re: BUMMED
« Reply #4 on: Aug 29th, 2002, 10:20pm » |
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sorry Jim sounds like it could be over soon... hang in there your in my prayers... ree
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Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
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Re: BUMMED
« Reply #5 on: Aug 29th, 2002, 11:21pm » |
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Ah pooop  Keep up the good fight. There will be many battles in this war with the Beast. Although each of us fights alone, its comforting to know you have us for reenforcement. I'm aware this is your worst one, my came in 97. Strength and PFDAN
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NancyMcFree
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Hang in there Jim .... maybe it will still work. Crosses and fingers and toes for you buddy. And I'll throw in an extra prayer for you !!!
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ChristineL
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Jim,
Your in NH right? We are neighbors and this might mean nothing but I also had been having a couple of good days and then that front came through last night and BAM I got nailed also. I don't know if weather is a trigger for you or not but it sure is for me.
Just a thought
Chris L
In rainy, cloudy Maine
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: BUMMED
« Reply #8 on: Aug 30th, 2002, 9:41am » |
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Sorry to read you are getting slammed by the beast. Hopefully the meds will kick in soon. Hang in there, you will win the fight.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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Jim R
New Board Hall of Famer
Always question authority....
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Posts: 603
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Re: BUMMED
« Reply #9 on: Aug 30th, 2002, 3:44pm » |
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Thanks everyone. I had to work today (I have the type of job where I don't have to work out of the house every day) and I didn't have a CH! But this Topamax has some strange side effects - when I'm driving and passing a car - man, dizzy and a strange tunnel vision thing happens - probably dangerous...and I feel wiped out and old, but maybe that's from fighting the pain. I hope you're all doing well and are having PFDAN's Chin up everyone (me too!) Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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2late
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Ride Free..Pain Free
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Re: BUMMED
« Reply #10 on: Aug 30th, 2002, 4:05pm » |
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sorry 2 hear the beast is gettin' the best of ya,better day's are ahead my friend,have u tried immitrex injections? it's the only abortive that hasn't let me down. ..............2late
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Jim R
New Board Hall of Famer
Always question authority....
Gender:
Posts: 603
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Re: BUMMED
« Reply #11 on: Aug 30th, 2002, 4:57pm » |
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no can do the imitrex due to high blood pressue - doc won't let me use it, but do have Amerge, which apparently is a little less potent a vasoconstrictor. Thanks and PFDAN's to ya. Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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