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Topic: New to the CHMB (Read 614 times) |
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Slydog
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New to the CHMB
« on: Aug 28th, 2002, 6:32pm » |
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Hello Everyone!! I am new to the site and I am so glad I found it.....My Dr. is the one who turned me onto it. I have been a clusterhead for 5or6years now.Only got truly diagnosed about 2 years ago and have taken meds to help ward off the Demons. My CH bouts are usually somewhere between Aug. and Dec. and last about two months. I have had good results with Imitrex pills but not much luck with any preventatives. Just started Amitriptyline as a preventative, and Axert as an abortive2 days ago.....sofar 2 PFDAN!!!! I am so glad I found this sight and my heart goes out to all the cronics out there. Wishing you all PFDAN Slydog
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2late
New Board Hall of Famer
Ride Free..Pain Free
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Posts: 1190
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Re: New to the CHMB
« Reply #1 on: Aug 28th, 2002, 6:41pm » |
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welcome dog!!!! glad u found us!!!!! .............2late
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SFChris
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Welcome to the madness here - you will very soon have an interesting welcome from Drk_Angel, and you will be an official newbie.
Chris
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jonny2
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Slydog,
Do you know how your Doc knows about CHMB?
.................jonny2
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Kilo
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Welcome, Slydog! Nice to know we have another savvy puppy around here to liven things up.
Gotta echo Jonny's question. I wish I had an MD who knew what CH was, let alone CHMB! 
Hope those PFDAN continue!
Kilo
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Drk^Angel
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Welcome to the board! Sorry that the beast is pissin' up your nose, and throwing acid in your eyes. Welcome to the family!
PFDAN............................. Drk^Angel
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Slydog
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 47
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Re: New to the CHMB
« Reply #6 on: Aug 28th, 2002, 9:18pm » |
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Jonny2 and Kilo My doc actually seperated clusterheadaches from migraines when I first saw him.He did a search on clusters before I saw him monday and told me I should do the same. He briefly told me about the site. One thing that is way kewl is that he doesn't think I am just looking for meds...HE ACTUALLY BELIEVES ME Slydog
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paul_b
New Board Old Timer
I love YaBB 1G - SP1!
 
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Re: New to the CHMB
« Reply #7 on: Aug 28th, 2002, 11:32pm » |
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We believe and support. WELCOME Okay to vent if the need arises; keeping the BEAST at bay is a challenge.
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Charlie
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Happy to be here
   
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Re: New to the CHMB
« Reply #8 on: Aug 29th, 2002, 5:05am » |
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Welcome to our ward. Your doctor is one to hang on to. I wonder if his coming here has something to do with his attitude toward medicine? ???
Anyway, stick around and let us know how you're doing. Friesh blood is in short supply. 
There probably is thing or two here that will help you in one fashion or another. Keep looking around and keep plugging away 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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NancyMcFree
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Welcome to clusterville. You'll find lots of people here to share your pain with. Glad to hear your doc is on top of his/her game.
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Jim R
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Always question authority....
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Re: New to the CHMB
« Reply #10 on: Aug 29th, 2002, 6:21am » |
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Welcome Slydog. Hope you find help and family here. - Jim R
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"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
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echo
CH.com Alumnus
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Chronic and still alive --- I Win!
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Re: New to the CHMB
« Reply #11 on: Aug 29th, 2002, 8:54am » |
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Welcome to the family Slydog.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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nancyc
New Board Old Timer
Friends don't let friends post drunk on mbs......
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Re: New to the CHMB
« Reply #12 on: Aug 29th, 2002, 9:56am » |
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Hurray for your Doc...that kind is rare..hang on to him...or better yet, send him to SC  ...Welcome to the family Sly...hey, i like that name..slydog... ;Dnancyc
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gtar_man
New Board Junior
I love YaBB 1G - SP1!
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Re: New to the CHMB
« Reply #13 on: Aug 29th, 2002, 1:14pm » |
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Congrats on finding a doc "in the know" so early - I was in cycle #2 and neuro #3 before I heard the word "clusterheadache".
Welcome to our world of bozos, misfits, yahoos and just plain folks with headaches. We endure trials that would make those TV "survivors" pack up and go home crying to mama. Jump right in and hang; you're one of us now.
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I'm not a damn newbie! I just changed ISP's!
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daven
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Hi Slydog,
I just joined today, myself. I have been a CH sufferer for 3 years. Got treatment last Nov for the first time. Prednisone for 12 days with amtrip. Was clear of CH until June '02. Started Amtrip and Prednisone again. The Amtriptolene changes when the headaches hit. That meant the CH would come at 5PM instead of 2AM. Much better as at least I don't fear going to sleep. I also use O2 at 6ml for 10 -15 minutes on CH's below 5, Migranol for CH's to 7. Nothing I have tried helps CH's above a 7. When on prednisone above 20mg, I have no CH's.
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Linda T
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Re: New to the CHMB
« Reply #15 on: Aug 29th, 2002, 2:07pm » |
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Hi Slydog and welcome aboard. Sounds like you've got things covered so far.
Keep the doc. You're really lucky to have found him.
Wishing you all PFDAN always, Linda T
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What a long, strange trip it's been!
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oringkid
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Don't wanna be the one sour note here... I think it is FANDAMNTASTIC that your doc wants to KNOW.
But....amitriptyline? (elavil) that is a VERY old drug to attempt. It never did anything for me.
Heres hoping this doc will take the time to REALLY look at all the stuff on this site.
Doc, if you are looking, check out the buttons to the left.
MUCH better meds out there right now.
But, Slydog, you ARE lucky, at least your doc wants to help.
Good luck and stick around!
Sherry
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Kilo
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Daven: Have you tried O2 at a higher flow rate to knock out those 7+ headaches? Seems most of the clusterheads who have found success with oxygen use it at 10-12 liters per minute--some even as high as 15. I'm still awaiting delivery of my first O2 setup, and I insisted on a regulator that will deliver 12 lpm.
Nice to meet you, by the way! Welcome to the lunatic hut!
Kilo
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