Author |
Topic: Have your cycles gotten bettter, worse, same? (Read 1222 times) |
|
iukid
New Board Junior
I love YaBB 1G - SP1!
Gender: 
Posts: 65
|
 |
Have your cycles gotten bettter, worse, same?
« on: Aug 25th, 2002, 2:15pm » |
 Quote  Modify
|
Have your cycles gotten bettter, worse, or the same since they started or a little of everything?
|
|
 IP Logged |
|
|
|
2late
New Board Hall of Famer
Ride Free..Pain Free
Gender:
Posts: 1190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #1 on: Aug 25th, 2002, 2:46pm » |
Quote Modify
|
my last cycle was the worst in 5 yrs. hope they don't get any worse,missed alot of work. ................2late
|
|
IP Logged |
|
|
|
mustang
New Board Veteran
I love YaBB 1G - SP1!
 
Gender: 
Posts: 190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #2 on: Aug 25th, 2002, 2:58pm » |
Quote Modify
|
My ch seem to have gotten worse
This last cycle lasting 10 years.
Have had maybe 100 pfdn in this period.
I quess you call this a cycle or am I to accept the fact this is how I live the rest of my life. No sleep and walking in a daze, with this numb feeling all the time.
Did I mention my ch's hit during the days too.
|
|
IP Logged |
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #3 on: Aug 25th, 2002, 5:20pm » |
Quote Modify
|
It's a cycle, Mustang. Never accept this is how it'll be for the rest of your life. If you do that then the terrorists have won. Or something like that.
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #4 on: Aug 25th, 2002, 5:24pm » |
Quote Modify
 Remove
|
26 years of CH and my last cycle was the worst I have ever had.
|
|
IP Logged |
|
|
|
mustang
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #5 on: Aug 25th, 2002, 5:25pm » |
Quote Modify
|
Oh I'll never let it win, it's just one hell of a long one.
|
|
IP Logged |
|
|
|
Drk^Angel
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #6 on: Aug 25th, 2002, 6:12pm » |
Quote Modify
Remove
|
Worse.... Definately.
PFDAN...................... Drk^Angel
|
|
IP Logged |
|
|
|
Melissa
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #7 on: Aug 25th, 2002, 6:46pm » |
Quote Modify
Remove
|
worse, and last longer day wise.
|
|
IP Logged |
|
|
|
oringkid
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #8 on: Aug 26th, 2002, 9:33am » |
Quote Modify
Remove
|
My last one was not too bad. Shorter and less intense than previous ones. I think the worst cycle I went through is the one where I tried the imitrex nasal.
I do no meds now, went without meds for longer than I used them. My opinion and body only, but I think the meds make it worse.
Sherry
|
|
IP Logged |
|
|
|
nancyc
New Board Old Timer
Friends don't let friends post drunk on mbs......
Gender:
Posts: 384
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #9 on: Aug 26th, 2002, 9:44am » |
Quote Modify
|
was episodic then cycles kept getting longer and worse..i am now chronic...  nancyc
|
|
IP Logged |
|
|
|
kelly_dawn
New Board Newbie
what doesnt kill you makes you stronger
Gender:
Posts: 25
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #10 on: Aug 26th, 2002, 5:05pm » |
Quote Modify
|
i am episodic but i am mgetting more and more these days, they are starting during the day especially when i am over tired (usually due to the beast) when they hit and i am at work i want to cry so bad its unreal, i have had them for 8 years and i have so many years with the beast to look forward to.
|
|
IP Logged |
Go placidly, amid the noise and haste and remember what peace there may be in silence..... Desiderata
|
|
|
Jim R
New Board Hall of Famer
Always question authority....
Gender:
Posts: 603
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #11 on: Aug 26th, 2002, 5:24pm » |
Quote Modify
|
This is definitely the worst - pure agony - ever in 24 years and I have long, e.g. 6 month cycles. Jim R
|
|
IP Logged |
"Hammer of the Gods..." (pounding on my head...) and isn't Bowie great?!
Proud member of OUCH
Episodic Clusterhead since 1978
|
|
|
Opus
New Board Hall of Famer
(Insert witty comment here)
 
Gender:
Posts: 2509
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #12 on: Aug 26th, 2002, 5:33pm » |
Quote Modify
|
Worse, had cycles for 3 to 4 months with a peak at 7, This cycle 9's and 10's for two months. Must be something in the air.
|
|
IP Logged |
Zed-Zed-nine plural-Zed alpha,
There is no place like home.
|
|
|
Linda T
New Board Old Timer
Gender:
Posts: 440
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #13 on: Aug 26th, 2002, 6:16pm » |
Quote Modify
|
This being my fourth cycle is definately, by far, worse.
Used to only get 1 maybe 2 hits a day. This cycle as many as 8.
Linda T
|
|
IP Logged |
What a long, strange trip it's been!
|
|
|
4290
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #14 on: Aug 28th, 2002, 6:51pm » |
Quote Modify
Remove
|
They get worse, last longer in duration, and happen in daylight hours now. They just suck.
|
|
IP Logged |
|
|
|
mustang
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #15 on: Aug 29th, 2002, 3:56pm » |
Quote Modify
|
I'm with everyone else here they are getting worse, longer, and into my daylight hours, I am getting more of them too.
|
|
IP Logged |
|
|
|
Slammy
CH.com Alumnus
New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
Gender:
Posts: 1418
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #16 on: Aug 29th, 2002, 4:02pm » |
Quote Modify
|
I usually forget about the cycles when they end, so I can't remember whether they are better or worse from the last cycle. I can say this cycle affected my sleep more than the past. I had at least one kip 8 or better everynight between midnight and 3 am! hard to abort one when it goes full throttle before it awakes you! 
Slammy 
|
|
IP Logged |
That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
|
|
|
echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
Gender:
Posts: 4214
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #17 on: Aug 29th, 2002, 4:04pm » |
Quote Modify
|
Had a breather for a while. Weather is changing - now preparing for the usual run. I toggle from chronic to episodic. Is that possible?
(I figure if I go two weeks without one I move to the episodic side, longer than 3 months without a 14 day or longer break I become chronic). ???
Feel free to correct me if I have my head up my ass.  Hey it happens.
|
| « Last Edit: Aug 29th, 2002, 4:10pm by echo » |
IP Logged |
"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
|
|
|
mustang
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #18 on: Aug 29th, 2002, 4:08pm » |
Quote Modify
|
Your right Slammy about getting hit with the hard ones at night. Now that mine are taking over my daylight hours too, everyone one thinks I am really crazy when they see me run like a bat out of hell for my 02.
Well better crazy than in pain,right?
|
|
IP Logged |
|
|
|
Slammy
CH.com Alumnus
New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
Gender:
Posts: 1418
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #19 on: Aug 29th, 2002, 4:23pm » |
Quote Modify
|
Mustang,
you got that right, but I am fortunate that when I feel a CH coming on during the daytime, the cafergot I take works well to abort it before I would need to turn to O2.
I usually only have to use O2 when I get the lil fuckers that awake me in the middle of the night. The o2 aborts a full bore cluster faster than the cafergot, while the cafergot aborts the cluster more effectively when I get the tightness feeling prior to it starting.... kinda like a warning sign: Warning! Cluster Headache ahead!
Slammy
|
|
IP Logged |
That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #20 on: Aug 29th, 2002, 4:35pm » |
Quote Modify
|
Better.
First 20 years they were pretty much the same. 6 week cluster every 8-9 months, 2-3 ha/day.
Last 12 years the remission gets longer each time, the attacks more predictable and also more treatable.
Last cluster was bad probably because I was trying so many new things and fighting with insurance and a new neurologist. Tried all the triptans, topomax, shrooms. Felt compelled to try it all for the sake of experimentation. Wound up back with cafergot and O2. Cluster lasted 15 weeks as comapred to 5 weeks the previous one.
Next time I'm going straight to the O2 cafergot combo and not worry about the rest.
May try Elavil as a preventative since verap doesn't work for me.
|
| « Last Edit: Aug 29th, 2002, 4:54pm by Bob P » |
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
mustang
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 190
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #21 on: Aug 29th, 2002, 4:47pm » |
Quote Modify
|
My doctor gave me cafergot once they really helped.
Like you when I felt them coming I would take it and it would not come, then he decided topamax was the drug for me to take. I could not take them they made my ch's feel like 15 on the kip scale[ I know it doesm't go that high, but it felt that much worse]. He decided that he would not treat me any more, referred me to someone else[ that was in May] my appt. with new doc is Sept3. I have been in real trouble for the last two months or more, have lost track of some time cause of lack of sleep,and pain in head, tried to call old doc for help and have heard nothing. [have called him about 6 or 7 times]. For the first time in my life I am looking forword to seeing a doctor, kinda like waiting for
Christmas when we were kids. Just hope I am not dissappointed.
|
|
IP Logged |
|
|
|
Elaine
Guest
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #22 on: Aug 29th, 2002, 9:01pm » |
Quote Modify
Remove
|
Mine are better much better. The last two years are the first time in over 20 years I went more than a week pain fre. I had months off as many as three. The pain is less and the attcts come less.
I did not find any relieve till I came to this web site. A lot of studying and listening to what people who had clusters said.
Mine are 75% better!!!!
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #23 on: Aug 29th, 2002, 10:40pm » |
Quote Modify
|
Mine were always the same. They only changed when they became scarce about 13 years ago. Two years later they were gone.
That's the kind of change I want everyone to experience
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
paul_b
New Board Old Timer
I love YaBB 1G - SP1!
Posts: 371
|
|
Re: Have your cycles gotten bettter, worse, same?
« Reply #24 on: Aug 29th, 2002, 11:12pm » |
Quote Modify
|
Current cycle started in May/June and appears to be winding down. Was difinitely manageable at pain level having 1-4 nightly wake up calls but always woke before Beast roared to a 10. This cycle started after being in remission for 4yrs. There were 20+ previous yrs of no goodness. Ugh. Hope the addage that "older is better" applies to CH as well. Never had the advantage of this site until current cycle and I know it has been a positive in my life.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss