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Topic: Your OUCH homework assignment! (Read 1400 times) |
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Bob P
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Shut up Bob!
 
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Your OUCH homework assignment!
« on: Aug 22nd, 2002, 4:07pm » |
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This is this weeks work assignment for all of the OUCH Members. Visit one of the medical publication sites such as PubMed, Medscape or Headache Journal. Pick one of the CH research articles. Write the researcher a nice thankyou letter:
"I just finished reading your paper on ...... On behalf of OUCH, the world's only cluster headache support organization, I want to thank you for your fine research into cluster headaches.
OUCH has access to thousands of cluster sufferers and we would be delighted to assist in any future research projects or surveys.
Once again, thank you for your reseach into our condition.
Sincerely,
Joe Blow
Organization for Understanding Cluster Headaches www.clusterheadaches.org
That should help the medical community recognize that OUCH is out here.
Report back to us on any responses you get from the doctors.
This is for all of you who wondered what you could do for OUCH.
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| « Last Edit: Aug 22nd, 2002, 5:03pm by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Slammy
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Lust Without Remorse! Love Without Regret!
 
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Re: Your OUCH homeowrk assignement!
« Reply #1 on: Aug 22nd, 2002, 4:22pm » |
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Fantastic idea, Bob!
I'm all over it! ;D
Slammy 
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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Bob P
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Shut up Bob!
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Re: Your OUCH homeowrk assignement!
« Reply #2 on: Aug 22nd, 2002, 4:54pm » |
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Hey Slammer,
You're already working on Kudrow.
I'd really like to make him OUCH's mentor.
Tell us what we're doing right and wrong. What we could do better. What would make us more legitimate in the eyes of the medical world.
Tell us how we can get involved in the research going on.
Guess that should be enough to keep your conversation going during your next visit.
~~~~~~~~~~~~~~~
My home work report. I found on the AHS (American Headache Society) web site that Dr. Newman is giving a presentation on CH at their November Symposium.
I e-mailed him and thanked him for doing the presentation. Offered OUCH to help him in any way we could and asked him to remeber that we have a large resource of clusterheads to draw from for future research (do you realaize that the largest survey of clusterheads, ever, in the whole history of the world, is in the button to the left).
I haven't heard back form him yet. If I don't hear by the end of the week, I'll resend the e-mail.
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| « Last Edit: Aug 22nd, 2002, 5:04pm by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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maria
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Re: Your OUCH homework assignment!
« Reply #3 on: Aug 22nd, 2002, 6:25pm » |
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Hey BobP, do I get extra credit for an assignment turned in early? I emailed a thank you to Dr. Peres for an article he wrote in Cephalgia, reporting positive results in treating CH's with melatonin. Maria
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Not4Hire
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...WAS PF since Oct.'02, but ...oh my...(CBusters)
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Re: Your OUCH homework assignment!
« Reply #4 on: Aug 22nd, 2002, 6:34pm » |
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hey Bob/Slamguy:
now we're talkin' REAL effective motivation ...and I hope we CAN make a bit of difference.... this MOFO came back to me the other day...after a blessed 2 month respite... and the feeling that that *tap* on the shoulder filled me with was like the cold finger of Death ....... damn, clusterfolk, this may be the push to the frontier that gets us in the limelight of researchers who can help us ALL.... ya ain't got ONE hair on yer ass if ya don't take BobP's advice to heart..... take 15 minutes and DO IT !!!
thank you Slammy for your efforts with Dr. Kudrow..... we know you can charm 'im..... just pretend he's got .......those lips....those eyes....LOL ;D..... but DO NOT bend over .....them docs can see ya comin'..........
Really lookin' for some doctors to harangue ol' N4H.........
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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Drk^Angel
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Re: Your OUCH homework assignment!
« Reply #5 on: Aug 22nd, 2002, 6:46pm » |
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I've been doin' this all along anyways...
PFDAN..................... Drk^Angel
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Bob P
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Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #6 on: Aug 23rd, 2002, 8:28am » |
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OK. I'm not gonna let this one slip down the board.
Slammy, Maria and DA are on board. Good work gang.
Anyone else manage to find a researchers e-mail and send them a note in OUCH's name?
Step up and get your attaboy if ya did.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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dannyboy
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Docs didn't design the machine they're working on
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Re: Your OUCH homework assignment!
« Reply #8 on: Aug 23rd, 2002, 10:52am » |
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I ain't found his e-mail yet but Karl Ekbom is mine!
He was the first to do research into the effects of digital compression of extra-cranial arteries in cluster headaches
Then again, I guess no one else would mail Ekbom anyhow because he Obviously didn't know what a clusterheadache was ... dream on cretans
He's mine ... and so are all of you .... mwahahahaha
Nice one Boob, you're the bomb, rock on
Danny
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Bedside manner is no substitute for a correct diagnosis - Bill Gates
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Bob P
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Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #9 on: Aug 24th, 2002, 11:10am » |
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Antone else finished their homework yet?
I'm not letting this go! I'm gonna force all you people who want to do something to help OUCH into doing something to help OUCH!
Never mind the responses from the Doc's. Has anyone sent off an e-mail to a research doc yet?
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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catlind
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Re: Your OUCH homework assignment!
« Reply #10 on: Aug 24th, 2002, 11:14am » |
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I'll get right to it BobP, I subscribe to medscape and this last newsletter actually defined a new category of headaches. I'll prepare my letter on an article I liked and send it off ASAP.
I'm also taking in a full package from the OUCH and this site to my neuro when I go on the 30th of this month.
Cat
Come to think of it, as a military dependant, I will send a package and info off to the headache clinic at Walter Reed Army medical center and Wilford Hall AF Medical center.
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| « Last Edit: Aug 24th, 2002, 11:19am by catlind » |
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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Bob P
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Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #11 on: Aug 24th, 2002, 11:35am » |
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Now yer talkin' Cat!
Be sure to mention the OUCH name in your correspondence. Multiple times if possible. Our goal is to stick the OUCH under thier noses so many times that it automatically comes to their minds when anyone mentions CH.
I can see them all at the next IHS or AHS symposium asking each other, have you been geting all those e-mails from those OUCH people too? Who the heck are they?
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| « Last Edit: Aug 24th, 2002, 11:35am by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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NancyMcFree
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SilbersteinRe: Your OUCH homework assignment!
« Reply #12 on: Aug 24th, 2002, 1:09pm » |
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   Did mine ... sent the email to StephenSilberstein. ;D . Thanks BobP for getting pointing me in the right direction ... Damn my search button just never wants to work without a little help !!!!!
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NancyMcFree
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Re: Your OUCH homework assignment!
« Reply #13 on: Aug 24th, 2002, 1:11pm » |
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Oh an thanks Drummer for coming up with the idea ;D I was soooooo busy searching and reading I had no time to bitch !!!!!!!
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catlind
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Re: Your OUCH homework assignment!
« Reply #14 on: Aug 25th, 2002, 7:19am » |
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Hey, get this back to the top of the list....can't we sticky it or something hehe.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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gtar_man
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I love YaBB 1G - SP1!
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Re: Your OUCH homework assignment!
« Reply #15 on: Aug 25th, 2002, 12:46pm » |
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OK, BobP, so I decide to get off my dead arse and join OUCH; I clik on the website button; page comes up, says I need to download "java virtual machine"; I hit the download button and page comes up, says Windows XP won't let me do that. Sigh. Any 'puter wizards can help me out here?
I'm TRYIN', I'm TRYIN'...Gman
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I'm not a damn newbie! I just changed ISP's!
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Drk^Angel
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Re: Your OUCH homework assignment!
« Reply #16 on: Aug 25th, 2002, 6:20pm » |
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WinXP sucks... Use linux...
PFDAN....................... Drk^Angel
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maria
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Re: Your OUCH homework assignment!
« Reply #17 on: Aug 25th, 2002, 10:51pm » |
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BobP,
I have received a reply back and I will be forwarding you a copy. Didn't expect to see results. Maria
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Bob P
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Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #18 on: Aug 26th, 2002, 8:52am » |
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Gtar -
Microsoft and Sun had a little arguement about JAVA. Here is a link that explaines it:
http://www.microsoft.com/java/xp.htm
It should be available for XP shortly.
I'm running XP Pro at home and love it.
Maria - great work!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Bob P
New Board Hall of Famer
Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #19 on: Aug 26th, 2002, 9:19am » |
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Just a note on why I run the JAVA navigation applet on the OUCH site. The site continues to grow and change at a rapid pace. With the JAVA navigation, when I add/delete/change a page's location, I only need to make a change to a single text file and the nav bar is changed universally accross the site. With a regular navigation bar I would have to change each individual page and upload them all. So it's really just a matter of maintenance convenience for me.
You can get to the 'Join OUCH' page via thia link:
http://www.clusterheadaches.org/membership/membership1.htm
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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nancyc
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Friends don't let friends post drunk on mbs......
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Re: Your OUCH homework assignment!
« Reply #20 on: Aug 26th, 2002, 9:45am » |
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Homework assignment completed...but think i will read some more and send out more thankyous... nancyc
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Bob P
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Shut up Bob!
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Re: Your OUCH homework assignment!
« Reply #21 on: Aug 27th, 2002, 10:15am » |
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Good work Nancy.
Maria sent me a copy of Dr. Peres' response. He says that he would love to use the OUCH site to conduct surveys. He also reviewed the existing surveys there and asked if we were presenting the results at gaterings of headache organizations.
Maria, please post the docs e-mail reply here for everyone to see.
Now that's taking a giant step forward and all it took was a 5 sentence e-mail.
No excuses folks. Just find an article from the links in the post above. Copy and paste a doctor's name from an article to your search engine. See if you can find his e-mail address and send a note. That's all it takes.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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maria
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Re: Your OUCH homework assignment!
« Reply #22 on: Aug 27th, 2002, 5:15pm » |
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Bob P, Here is the reply I received back from Dr. Peres:
Dear Maria,
Thanks for your contact.
I have special interest in the study of cluster
headache patients.
We are presenting a new study at the migraine trust
(London), on the effect of occipital nerve blocks in
cluster headache. It is also accepted for publication.
There are other ongoing projects.
I would love to post a survey on your website. I
checked the ones you have now.
Are you presenting this data in headache meetings?
Any other previous ones?
Are you interested in a Brazilian OUCH branch?
I look forward to your reply
Sincerely
Mario Peres
Director
Sao Paulo Headache Center
Al Joaquim E de Lima, 881, cj 708/709
01403-001 Sao Paulo
Brazil
I received Dr. Peres' reply about two days after I emailed him. I did not feel I could answer all of his questions and emailed him back that I would be forwarding his email to Bob P, the president of OUCH. Thanks Bob P, this little homework assignment may end up resulting in more work for you, but hopefully a very positive outcome for OUCH.
Maria
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catlind
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Re: Your OUCH homework assignment!
« Reply #23 on: Aug 27th, 2002, 9:29pm » |
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My homework assignment is partially completely, sent off an email to Walter Reed Army Medical Center, and bringing info in and clock to Neuro appt on Friday. Still have to do Medscape and Wilford Hall.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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catlind
CH.com Alumnus
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Taz taught me the cluster dance
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Re: Your OUCH homework assignment!
« Reply #24 on: Aug 30th, 2002, 9:28am » |
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Okay, emailed to Walter Reed, gonna call and follow up, printed brochure (and created new one for my neuro) to take to Neuro appt today, and I emailed Oprah and told her about CH sufferers and added in that many of the folks here are military and that it's called a suicide headache, and could she imagine a soldier trying to defend our freedoms against terrorism while suffering with a kip 10 cluster - that he'd be as likely to shoot himself as the enemy. Hoping that will get her attention this close to 9/11 Anniversary and she will pick up the thread on us.
Not4Hire maybe you can email her with ideas on a new show link with what you've come up with regarding military members and CH's.
Cat
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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