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jimmers
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Sorry I asked!
« on: Aug 21st, 2002, 6:06pm »
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After reading all the responses to the question I asked about head trauma I have come to one conclusion. 95% of the people on this site can GO FUCK THEMSELVES!  
 
There have been lots of other posts from very innocent sufferers, and tons of times there questions have been answered with sarcasm. (Check the previous posts, Hit this under search, hit that under search BLAH BLAH BLAH! Geeze, I'm sorry! I'm sorry that I don't know everything about this site! And I'm also sorry that I don't fit the criteria of the classic CH sufferer according to some people (You know who you are!)
 
I apologize for all NEWBIES for not knowing how the site operates or all of the questions that are in the archives under the REASEARCH button and how to research them! And thats what they are as the word says, NEWBIES!  But you know what? You CH Nazis can have your little personal web site and all of the stupid bullshit topics that you want to talk about. I do not want to be a part of it anymore.  
 
There are many good people on this site, unfortunately the CLUSTER NAZI not a very nice personS seem to outnumber the compasionate patient people who actually belong here!
 
I want to thank all of the people who have helped me in the past or have answered questions for me.
 
I would also like to thank all of the non-caring not a very nice persons who just like to bitch about a question that seems dumb to them, because hey, THEY KNOW IT ALL. (Just ask them!) Remember, If you think a question is dumb, Then don't answer it! Unless of course you have no life and just like to listen to yourself bitch about things, which I'm guessing is the case in most instances! Actually its not a guess, I'm sure its the truth!
 
Enjoy your little club.
 
 
Goodbye for good
 
Jimbo (I can't take it anymore)
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Re: Sorry I asked!
« Reply #1 on: Aug 21st, 2002, 6:14pm »
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Jimbo, I am sure all of us have been insulted at one time or another .... stick with us newbies ....cause you just gotta share your mistakes with me so I don't get crucified !!!!  There are lots of good people here ... I know, I have met them.  Take the smart comments with a grain of salt ... sometimes someone is just trying to be funny and we don't take it the right way.  Hope you stick around .... our group isn't all that big !!!!
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Re: Sorry I asked!
« Reply #2 on: Aug 21st, 2002, 6:23pm »
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Jimbo,
 
I am real sorry you feel that way.  There is more to this place than the words written here.  The common bond of suffering with clusters, is a strong one.  Please try not to take what myself, and others write, personally.  I am still here if you need any questions answered, or someone to talk to.
 
 SmileyMel
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Re: Sorry I asked!
« Reply #3 on: Aug 21st, 2002, 6:31pm »
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jimbo,
 
take it from one who has been SO in your shoes. Smiley  Step back, take a deep breath, let it out, and  get back to bizness.  
 
When I first came here I blabbered on WAY worse than you ;D  And I had my day of feeling exactly like you.  It is difficult to find your way sometimes.  I'm STILL learning.  I got so upset one day about something now that look back on with regret, but hope that it will in time work itself out.  In order to do that, STAMINA and KEEP THE FAITH.  Wink
 
Now, here's some advice from a new oldie ;D: When you are feeling good, sign on and start clicking those buttons over on the left ova there.  At the ouch website look for the library and start clicking again.  Also, visit the post archives and check some out each day.  You will FLIP! Cheesy
 
Don't give up!  Things work out. Smiley
 
Well wishes.  Kim
 
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Re: Sorry I asked!
« Reply #4 on: Aug 21st, 2002, 7:05pm »
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sometimes it's tough love around here but stick around,where else u gonna go, i felt the same way before, shake it off & stay, tons of good people here.                                        ..................2late
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Meg
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Re: Sorry I asked!
« Reply #5 on: Aug 21st, 2002, 7:13pm »
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Jimbo,
 
Please don't go.....don't leave another newbie (a supporter newbie) alone in the lion den (just kidding vets).   Seriously, I know what you mean.  You feel like you'd better look up every darn thing before you mention it, or someone's going to go into a tizzy about it.   Just keeping up with the posts each day is really time consuming and then if you miss something and then ask about it...whoa, are you going to get pummeled?  What are the rules?  If it has been talked about before, it can't be discussed again unless it's accompanied by groveling about how sorry you are that you may be repeating information??  That's the impression that's being given. So, I know how you feel, however, I don't know this group of people yet, but I do get the feeling that the majority are really caring people who have been dealing with this CH problem and all its pain and related frustrations.   There's alot of knowledge here and alot of comfort.   I'm here because my husband has CH and I want to find out everything I can so that I can help him.   I'm also hoping that he'll join the group one of these days.  I also want the comraderie of relating to people who understand CH.  I'm willing to test the waters here, join in the banter (cuz that's fun and ya need to laugh once in awhile!) and see how it goes.  I'm just going to learn as much as i can from the archives and the infamous "buttons" because that's my responsibility and then,if I happen to repeat something, oh well, too bad!  There's enough understanding, kind people that will help out and I'll ignore the others.  Why don't you hang out for awhile longer and see if you might just change your mind.
Meg
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Re: Sorry I asked!
« Reply #6 on: Aug 21st, 2002, 8:18pm »
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Jimbo,
 
Heres my take, STFU and deal with the a-s-s-h-o-le-s even if I am one of them.
 
Post your post and fuck the rest, its how I do but people ussally are saying fuck you to me.......LOL, think I give a fuck?.......NOT!!!!
 
Wanna go?.....Go, just dont whine about it.
 
............................jonny
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Margi
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Re: Sorry I asked!
« Reply #7 on: Aug 21st, 2002, 8:21pm »
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Cluster Nazi's huh?
 
hmmm.  that's a thinker....
 
I've recently taken a vow to not get into this recurring whine-fest between the different coloured sneetches here - i.e. newbies vs. oldtimers.  But this really takes the cake.
 
Yeah, I've been here 4 years.  Yeah, i wrote a couple of the buttons at the left.  That makes me a Nazi now, huh?  Hmm.  
 
Well, so be it then.  I do have to make a point, however.  Maybe I'm different, but I sure wouldn't come into a room full of people that have been in this room already for a long time - folks who have put pictures up on the walls, done some repainting, etc. and start barking orders as to how meetings are to be conducted.  Nor would I ask if they knew where I could find a certain painting, when it's already sitting on the wall in front of my face.  I think i'd be more comfy just sitting in on a few meetings and trying to learn a little first.    But that's just me.
 
Don't cut off your noses to spite your faces, newbies....us Nazis actually DO have some valuable info on the walls here and if you take the time to get to know us for a little while before you start snapping orders, you'd be surprised the lengths we will go to find relief for your pain.  
 
Just my Nazi way of thinking I guess.    
 
Sad
 
 
 
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« Reply #8 on: Aug 21st, 2002, 8:57pm »
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On message boards dedicated to computers and other technical stuff some questions get only one answer:
 
R T F M

 
Maybe we should use an analog abbreviation:
 
H T F S B

 
 Grin  Ueli
(Who never would use the term Nazi loosely, I had them as neighbours for my first 8 years)
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Re: Sorry I asked!
« Reply #9 on: Aug 21st, 2002, 9:09pm »
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Jimbo, I hope you realize that any headache with the intensity of clusters have a negative effect on our personalities. The pain seems to change me in ways I don't like and I have to fight to stay myself. I have looked back at some of my posts and say "What was I thinking when I wrote that", I wasn't thinking, I was in pain.  Some of us come off rather rough at times but in the end most of us have something helpful to say. I was put off by the posting of a member but I kept reading ther posts and then they go and say something that really helps me. Hope this helps
« Last Edit: Aug 21st, 2002, 9:10pm by Opus » IP Logged

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Re: Sorry I asked!
« Reply #10 on: Aug 21st, 2002, 9:10pm »
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And Ladies and Gentlemen, those initials mean (quick Ueli, help me)___________________________________________
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Margi
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Re: Sorry I asked!
« Reply #11 on: Aug 21st, 2002, 9:13pm »
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oh good, i'm glad i'm not the only one.   Embarassed
 
got the first one - sumthin about readin a manual...
 
 
but...other one's got me stumped too.
 
Throw us a bone, Ueli?
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Re: Sorry I asked!
« Reply #12 on: Aug 21st, 2002, 9:17pm »
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Thanks for a push in the right direction Margi......I'll guess it goes something like Hit the freakin ___button
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135447360 135447360   mondocharlie   mondocharlie
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Re: Sorry I asked!
« Reply #13 on: Aug 21st, 2002, 10:24pm »
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Did we give you a hard time? I can't remember. I'll take a look.  We can be a little goofy at times but goofy is the operative word. On the other hand, we're not boring. Too many boards are.  
 
You'll notice you can modify or eliminate posts here. Maybe that's an option. I hope you stay. You'd be surprised how you will be welcomed.  
 
Charlie
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Re: Sorry I asked!
« Reply #14 on: Aug 21st, 2002, 10:30pm »
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Thank you MEG, don't know how long you've been here and don't rightly care.  Newbie, oldie, vet, junior.......who cares.........what's in your message is more important.
 
Purty smart words and gotta give you a pat on the back....think you really got the point of us being here!
 
 
EDNA
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jimmers
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Re: Sorry I asked!
« Reply #15 on: Aug 21st, 2002, 11:16pm »
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I can't believe I'm here!  MARGI and UELI, you have proven my point by your responses!!!! Thanks for the help!  "You just don't get it, do you?" Nuff said.
 
Nancy, Melissa, Kim,2late, Meg, Thank you or your responses! You guys are some of the caring people that I'm referring to.
 
...........jonny..........you da man! and you have allways answered everyones Q's with intelligence, but better than that, Humor!!!
 
I'm not looking for someone to blow sunshine up my ass when they answer a question but geeze, have a little compassion will ya?  
 
Charlie, you have never insulted me! as a Matter of fact you give some of the most helpful answers on the website. You are never sarcastic or insulting, only insightful. Its unfortunate that I cannot say that about some of the people on this website.
 
Really pissed old Jimbo..(I love that stuff!) HeHe ;D
 
And Meg, what you said pretty much sums it up. Thanx
 
Seeya,
 
Jimbo
PFDAN to everyone. And that means everyone!
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Re: Sorry I asked!
« Reply #16 on: Aug 21st, 2002, 11:30pm »
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A true artist must realize that his/her most prized work will only be realized "AFTER"...In that vein, I must say that I find it difficult to turn away from an opportunity to create some sort of bridge..........(The passion is what makes us DIFFICULT)  that's why both usually DIE OFF!  LOL. Cheesy
 
Look at a child.  Ask yourself this question:  When will I be "Big"
 
Forever Tiny. Wink
 
 
 
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Re: Sorry I asked!
« Reply #17 on: Aug 21st, 2002, 11:37pm »
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Welcome back Jimbo.
 
I ain't so nice. I have my share of people who would like to go a few rounds with me but they are snake oil salesmen from  many posts ago.  I've found that humor is foreign to them.  Three or four of us really go after them. Dannyboy is the current target and he deserves it.
Long story.
 
I notice I didn't reply to one of those threads.. Sorry.
 
Really wonderful old Charlie
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Re: Sorry I asked!
« Reply #18 on: Aug 21st, 2002, 11:44pm »
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Great to see you posted again Jimbo.  Hope you're here to stay.  Your reponses to me have always been welcomed.
 
PFDN to everyone.  And hair to those who can keep it.   I know I whinning too much. I'll STFU now.  
 
 
 
 
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Re: Sorry I asked!
« Reply #19 on: Aug 22nd, 2002, 4:12am »
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Welcome back Jimbo
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Re: Sorry I asked!
« Reply #20 on: Aug 22nd, 2002, 7:39am »
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Jimbo,
Hope your day is going better, I just wanted to let you know, hang in there.  Most are willing to answer questions.  I'm pretty new to the nasty clusters, but my brother has had them for over 5 years.  We both have had head injuries back when we were kids, but don't know if that added to our having clusters.  I've done lots of reading, but who knows for SURE.  
 
So hang in there, and hope you stay.  We need to support one another.  Take care, and wishing you pf days.
 
Smiles,
Cin
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Geeez
« Reply #21 on: Aug 22nd, 2002, 8:36am »
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How many times have we seen this movie?
 
Here's an idea.  Why don't we all go to one of the medical publication sites, like PubMed or Headache Journal.  Find a CH article.  Take the name of the doc who wrote it.  Search out his/her e-mail and send them a nice note telling them how much OUCH appreciates the research they're doing and offer our help in any future studies.
 
Just a thought.
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Re: Sorry I asked!
« Reply #22 on: Aug 22nd, 2002, 11:47am »
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This topic of leaving and not coming back has been discussed here many times before. Please do a search on this site and type in the words "Goodbye Forever," and you'll find your answers.
 OK. Well, I'm off to go fuck 95% of myself as requested.
 
  --Cluster Nazi
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Re: Sorry I asked!
« Reply #23 on: Aug 22nd, 2002, 1:35pm »
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You're right Ted, I know you're right dude, Boob knows ... God Damn, I mean anyone who's been here more than month or two knows the "Last-Post-Fandango"
 
But at That moment, when a Newbie writes that kind of stuff, they're feeling Really Fucked Up. Its just no time to humiliate them further by taunting them ... I can't tell you how happy I was to find the usual responses of "Cherri-ho" "Goodbye Jimbo" "Fuck off if you don't like it here" etc etc missing, and a whole new thing going
 
Really shouting my mouth off now young Danny
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I'm serious!
« Reply #24 on: Aug 22nd, 2002, 1:44pm »
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Why don't every one of you pick a different article and write the researcher a nice thankyou letter:
 
"I just finished reading your paper on ......  On behalf of OUCH, the world's only cluster headache support organization, I want to thank you for your fine research into cluster headaches.
 
OUCH has access to thousands of cluster sufferers and we would delighted to assist in any future research projects or surveys.
 
Once again, thank you for your reseach into our condition."
 
That should help the medical community recognize that OUCH is out here.
 
Report back to us on any responses you get from the doctors.
 
Now, I don't want to see any more on this message board until you have sent at least one e-mail, all of you!
« Last Edit: Aug 22nd, 2002, 1:46pm by Bob P » IP Logged

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