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Topic: what the pain has taught me (Read 2382 times) |
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iukid
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what the pain has taught me
« on: Aug 14th, 2002, 11:05pm » |
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Before CH's I used to fear pain and feel sorry when people I knew had migraines, lost body parts, gotten burned bad, gotten shot, etc.... but now I feel no sympothy for them. THat stuff doesnt hurt as bad and it only happens once most of the time. It has mad me hard. I personally no longer fear any other types of pain that I may come across. I guess its made me stronger
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paul_b
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Re: what the pain has taught me
« Reply #1 on: Aug 14th, 2002, 11:16pm » |
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Stronger is good. Dealing with the anxiety of the onset of pain is tougher. I learned to have my soldiers at ready; meds, mind games, breathing exercises, showers (if possible), typing posts, supporting family and pets, coffee, and of course "you all". With an army like this, the Beast is just another enemy that must be battled.
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nancyc
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Re: what the pain has taught me
« Reply #2 on: Aug 14th, 2002, 11:49pm » |
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Going thru cluster pain has made me more sensitive of other folk's pain...cause i know that people dont understand my pain...and i know how that hurts me..Maybe that is why i am a nurse...who knows..smiles,nancyc
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Drk^Angel
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Re: what the pain has taught me
« Reply #3 on: Aug 14th, 2002, 11:53pm » |
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It's taught me not to expect other ppl that has never experienced a CH to understand what we go through.
PFDAN............................ Drk^Angel
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Charlie
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Re: what the pain has taught me
« Reply #4 on: Aug 15th, 2002, 12:39am » |
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This level of suffering by so many has done nothing but reinforce my current belief in......very little.
If God wanted to convince us of his presence, he would have done a better job.
Really cranky old Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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BobG
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Re: what the pain has taught me
« Reply #5 on: Aug 15th, 2002, 12:45am » |
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Hey really old Charlie,
God isn't trying to convince us of anything.
But Satan is. And he's doing a great job of it.
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Stay stressed. Never relax. Never sleep. Ever.
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Elaine
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Re: what the pain has taught me
« Reply #6 on: Aug 15th, 2002, 4:31am » |
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You have not learned very much then I am afraid iukid!
Until you are burned badly or shot , I don't figure you know their pain. If you can think of others pain don't expect them to think of yours. If you think a badly burned person only hurts one time you go to a burn unit and see and hear the crys of them. 
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Charlie
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Re: what the pain has taught me
« Reply #7 on: Aug 15th, 2002, 5:49am » |
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God is all-powerful, always present, and always benevolent. Lots of people believe this.
If so, hell and satan cannot exist.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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kim
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Re: what the pain has taught me
« Reply #8 on: Aug 15th, 2002, 8:07am » |
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Funny thing iukid, for me the pain of ch has made me feel more empathy for anyone suffering any form of pain. it's not THEIR fault I have a painful disorder. And I am NO ONE to put measure against ANYONE's pain. Besides, that thinking is pointless.
I worked in ER and once saw a 5 year old child who was unconscious from cold medicine. Her mother was crying and begging for her to wake up. the fear and grief in that woman's voice will stay with me FOREVER. Lots of things I witnessed there put things in perspective QUITE EFFECTIVELY. 
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oringkid
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Re: what the pain has taught me
« Reply #9 on: Aug 15th, 2002, 9:22am » |
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I wouldn't go so far as burns and amputations, but like iukid this pain has made me a little harder on people who freak out over a torn cuticle or hangover headache or something like that.
Remember this may be the worst pain but it is also brief compared to the months and months of constant 24/7 pain that burn victims go through.
I have never been a very empathetic person. (Sometimes I feel like an alien LOL) But, I would not belittle anothers major pain because pain is relative to the person. What might not even phase me might send another to the ER and vice versa.
Just like here. Although Ch is the WORST pain I have EVER had. It seems that I have a very high tolerance for it. I know that my pain does not affect me as badly as a lot of you. I sometimes feel very out of place because of it. But, like I say it is relative to the individual.
So, what has the pain taught me? To love every millisecond that I am pf. See I also have other pain. Chronic neck pain (from the damn computer) terrible knee pain that sometimes gets REALLY bad. Almost constant lower back pain and now to top it all off I think I am getting arthritis in my hands. Oh happy day...
Most of the pain I can ignore and when the planets align just right I will get a few minute without any pain and that is bliss!
Without pain I guess I wouldn't appreciate the pain free times as much.
Sherry
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echo
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Re: what the pain has taught me
« Reply #10 on: Aug 15th, 2002, 11:24am » |
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Pain has taught me to be conciderate and compassionate to others who are suffering. That their pain is real and their quality of live is being adversly affected.
Don't have much time for whinners however.
Ch pain is by far the worst I have ever experienced. A close second was when I had to white knuckle having a fingernail pulled out without the benefit of any injected pain blockers. That made me truly understand the pain that has been inflicted on so many prisioners of war to try to make them talk.
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jimmers
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Re: what the pain has taught me
« Reply #11 on: Aug 15th, 2002, 6:30pm » |
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Well said Sherry! When ever I start to pity myself all I have to do is think back about 2 years and picture in my mind the sight of my son who was born a little over 1lb. and all of the things that he had to go through just trying to survive. It sure is amazing how a little baby can teach us so many lessons and not even know it! These HA'S have not made me hard, they have made me even more aware of other peoples pain. It may not be as severe, but it is pain nonetheless. I say lets not have hardened hearts (Unless someone is whining like a little girl over nothing) because someone has to put up with our pain as well i.e. loved ones, Hopefully they do not have hardened hearts towards us! If I had the choice between having HA'S or being in a wheelchair, I'd say "Bring on the beast". Look around, someone always has it worse.
Seeya,
Softboiled heart Jimbo.........
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I don't suffer from INSANITY; I'm enjoying every minute of it!
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kim
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Re: what the pain has taught me
« Reply #12 on: Aug 15th, 2002, 6:39pm » |
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B4 ch i was an idiot. During ch I am an idiot. After cycle ends, i'm still an idiot. Period.
Glad I'm still alive and still an idiot. 
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catlind
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Re: what the pain has taught me
« Reply #13 on: Aug 15th, 2002, 6:49pm » |
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I'd have to agree with Elaine. A burn patient suffers what is considered by many many pain management specialists to be the worst pain a person can endure. When we suffer a CH it's our trigeminal nerve, there are 2 branches of them that are specifically affected. Your skin and body have nerve endings everywhere, imagine CH pain covering your entire body inside and out.
What I've learned is that when a person says "Man does this hurt" I don't think to myself "have a child and talk to me about pain" LOL, I've learned that when my children cry because they stubbed a toe, to hold them and tell them I know how much that hurts, instead of saying "are you bleeding? are you dieing? No? then get over it". (guess I'm not the most compassionate parent in the world LOL) I've learned that just because you can't see a bone protruding from the skin, or a wound that is obvious, there can be pain that is beyond our comprehension for that person.
Along the years I've learned something else from another circumstance entirely, and that is that you can NOT compare one pain to another from one person to another. I can type on the computer with a kip 8, others are tearing their hair out. Pain is pain, and for each person who suffers pain, it is their pain and they have a right to feel it and a right to express in their own way how severe it is for them. It's like saying that physical abuse is less severe than sexual abuse. Abuse is abuse is abuse. Pain is pain is pain. Different forms, different personalities....it just can't be truly compared.
Cat
(wow, talk about a holier than thou post...someone smack me for that, and I hope no one takes offense, it's meant only for imformative purpose)
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Not4Hire
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Re: what the pain has taught me
« Reply #14 on: Aug 15th, 2002, 7:55pm » |
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Cat..consider yerself smacked (not slamm(y)ed...or shaken....or stirred...) but what you (and Sherry) said IS *The Truth*......pain is subjective = not really measurable.
The Kip scale is useful, but not absolute. One person's *5* is another's *8* ......Really, only *1* "Life is beautifu"....la de dah... and *10* "Suicidal" ....where's my toetag.....have any absolute meaning. I, personally, must cop to having had 9.9999's but in truth, I could FUCKING NEVER take my own life....it's not mine to *take* any more than I could ever GIVE life or surcease from pain to anyone.
I feel sorry for iukid that your sympathy has *gone away* and I hope it comes back. I'm glad you are stronger.....you have to be to deal with this, but don't be *hard*....
I could take issue with each of these posts....charlie's is probably the hardest. I believe he is a Boddhisatva...one who came back to teach us what it looks like on the *Other Side*....and his post's about God and Satan are a zen koan........a riddle and a lesson.
(Den too, but he's whacked ;D.......)
For my part: Pain Has Taught Me .......that I'm just a wart on the ass of all the suffering that humankind brings on itself.... from it's evolution from a reptile brain to the crown of creation. My personal pain is just that..... I deal with it the best I can, armed with my knowledge and all y'alls support..... what more can each of us ask?
PF and SHUT THE FUCK UP!!!!
.....now, I'll put on MY kevlar shorts........ after re-reading.... this is REALLY holier-than-thou........ 
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Mantra: This will NOT kill me...This will not KILL me... This will not kill ME...
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kim
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Re: what the pain has taught me
« Reply #15 on: Aug 15th, 2002, 8:03pm » |
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hey not4hire: wow! ya really knocked my sox on that cool blast of fresh air. i smell better already 
PS: WHERE IS STINKO ??? ???
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don
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Re: what the pain has taught me
« Reply #16 on: Aug 15th, 2002, 8:29pm » |
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How can anyone who sufferers the pain we do not sympathize with the pain of others? Pretty selfish stand point. Pain has not made you stronger, it has made you insensitive. Being strong is casting off your own misery to feel for someone elses.
You don't need to fear pain. You need to respect it !
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| « Last Edit: Aug 15th, 2002, 8:30pm by don » |
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kim
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Re: what the pain has taught me
« Reply #17 on: Aug 15th, 2002, 8:34pm » |
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Next time General Cluster comes to town remind me to salute
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Ted
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Re: what the pain has taught me
« Reply #18 on: Aug 15th, 2002, 8:36pm » |
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I thought the Indians killed General Cluster.
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kim
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Re: what the pain has taught me
« Reply #19 on: Aug 15th, 2002, 8:38pm » |
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Snap out of it TED! I AM the Indians
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Ted
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Re: what the pain has taught me
« Reply #20 on: Aug 15th, 2002, 8:40pm » |
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The whole team?
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kim
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Re: what the pain has taught me
« Reply #21 on: Aug 15th, 2002, 8:44pm » |
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Nope. Just the ones that swig the whiskey, scream incoherently and ride painted poines around while swingin hatchets (or garden clippers)..... 
Screams ALOT.
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kim
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Re: what the pain has taught me
« Reply #22 on: Aug 15th, 2002, 8:45pm » |
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poines is ponies in indian dribble
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BobG
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Re: what the pain has taught me
« Reply #23 on: Aug 15th, 2002, 8:45pm » |
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Touche, Charlie.
Good One!
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Stay stressed. Never relax. Never sleep. Ever.
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Ted
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Re: what the pain has taught me
« Reply #24 on: Aug 15th, 2002, 8:48pm » |
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I think I've taken you home from a bar before.
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